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Anne,
I’m so sorry to hear that you are going through all of this, and boy oh boy, do I remember those days when you feel like you can barely keep your head above water. Breastfeeding and having an active toddler only add to the the stress, in my opinion, as does eating a limited diet. I’ve been there, and I’m so sorry that you are there now too.
I too live away from family, and while friends have been “friendly,” there hasn’t been much understanding of the real situation…. I know what you mean about people blaming the breastfeeding too. Very frustrating.
Anyway, please let me encourage you to HANG IN THERE. It does get better. You will sleep again; your babies will heal and be happy again. They know how much you love them.
You are a strong woman, stronger in more ways than you will ever admit to yourself. You can do this!
That being said, I would look into getting Joe’s ppi dose increased. Is he really only getting 2.4 mgs. a day???? Maybe I’m reading that incorrectly. But, if he is still having such a hard time, you may want to look into getting it bumped up. What form are you using?
Also, are you involved in a church? I know that our church has been a true lifesaver for me, and people that I don’t even know have reached out to help in many ways.
Oh- and my daughter’s 3rd birthday was 2 months after Ben was born, and I was just dreading it, having no plans and no idea what to do either. We ended up going to Chuckie Cheese. She had a ball, and I guess with all the background noise, Ben just checked out and slept through the whole thing! I had visions of him screaming the whole time, but I figured that at that loud place, it wouldn’t matter.
we had an upper GI and a abdominal sonogram this afternoon. and you guessed it, they were normal. meanwhile, Joe has lost his voice from all the screaming, is puking everywhere and the d*mn doc still won’t up his meds.
i have tried baby wearing (i actually make and sell slings) but he won’t have anything to do with it. he arches and bucks so wildly that i just let him roll around on the floor on a comforter (we have hardwood floors) until he finally passes out. dh and i just sat and cried with him when we got home today. we just don’t know what to do. there were 6 week olds that we ran into in the hosp. today that were bigger than Joe Oh, no I am so sorry. I can’t stand those tests. I actually have a friend whose husbands does the barium swallow test and he says they are worthless. They are not going to tell you if your baby has reflux. Sometimes your baby has it and it won’t show. When we went with my oldest son, the man doing the test simply asked if he was coughing. I of course, said yes and he said well there’s your answer, he has reflux. After the test Luke puked all over my husband and the floor. The man looked as though he had never seen anything like it before. With Justice I refused to do testing. You will find that gi docs can also be a waste of time. Not all so no tomatoe throwing. I really feel like the best bet a lot of times is a good family doc. You could always e-mail Dr. Phillips at Marci-kids and see if he would be willing to call your doc. You could always try to up the meds to marci-kids dosing and see if that helps. It’s kind of hard for a doc to dispute that. I didn’t really tell Justice’s doc what we did though. I just talked to Dr. Phillips about it all. If you do e-mail him you have to keep it short and to the point. He is very busy and you can tell that from his responses. Please keep us updated. Oh, babywearing, do you have anything besides a sling? Justice hated the sling and I do mean hated it. He bucked all around too. I ended up getting a mei tai and he loves it. He gets so excited when I pull it out. If you make slings, I’m sure you could easily make a mei tai too. I’m sure you have tryed the upright postion in your sling, but if not maybe try that. Again though, Justice didn’t like the sling no matter what I tryed.
Justice’smom2007-6-6 7:56:58
Hi Anne,
I’m so sorry for all you’re going through with your little ones.
It’s so hard, and even worse with no support! I also suggest asking your family doctor for the higher dose of PPI. That’s where we originally got Bryce’s higher dose. Good luck with everything! I sure hope you can get things under control soon and start enjoying a happy baby.Anne,
I’m so sorry for what you’re going through. Your last post gave me goosebumps. I know how you feel. I just hate that your little one is hurting, and especially that he’s not growing – that should be a HUGE concern to your ped and your ped GI. I can’t believe the way these doctors minimize reflux the way they do. My ped told me Caden would just outgrow his in time and not to worry! How do you not worry about your own infant who is crying in pain every day and in your case not gaining properly?!?
Mine finally prescribed Prevacid 30mg (just like you), but it never helped my son either. I was so discouraged, but in time Caden did better on his own (thank goodness). However, he wasn’t losing weight. He always comfort nursed and gained appropriately. So, I didn’t have that concern, but I HATED that he was uncomfortable and felt that there was nothing I could do
I’m going to pray for you today. I know how hard this must be for you. Especially not having friends/family close by. I’m lucky that I do have family close by, but they all work full-time, so they couldn’t really help me much when Caden was a newborn, and I needed the most help. My mom actually took off work on several occasions to come help out. My husband also took off days to relieve me so I could rest a little bit. It didn’t take the worry away, but it did allow me to rest a little bit (when I could – sometimes I couldn’t rest for worrying about Caden). I think it would help you to just have someone you could talk to.
This board can be a lifesaver. Even though you’re not able to “talk” to these ladies, you can email and get responses back that can truly change your whole attitude for the day. There were many days that I came on here and posted something I was worried about and got TONS of responses – it was truly helpful and gave me the momentum to keep going each day, especially when I was in the middle of the 24/7 crying spree that we dealt with until Caden was about 3 months old. 4 months was the major turning point for him, and 6 months was the BEST! He is doing SO much better now at 7 months, and I am so thankful that he is finally outgrowing this reflux mess!
I am also very much pro-breastfeeding and have nursed all 3 of our biological sons. I almost gave up this time, because I kept thinking it just had to be related to the breastfeeding, but I am SO glad I stuck it out. Now, we’re going for the long haul. He’s 7 months old, and I want to make it the full year or longer if he wishes to. Our other two gave up nursing on their own around 1 year of age.
I am also pro-babywearing, and it has worked for Caden, but he fought it at first too. I just kept trying, and now he enjoys the carrier if he’s in the right mood. He also takes naps in it nicely when he won’t go down for a nap. He never liked the sling style carrier, but he loves the Mei-Tai. Have you tried that type of carrier? I’m sure you know about the different types since you make/sell them. But, I thought I’d mention it in just in case.
Anyway, just know that we’re all pulling for you here! I agree with the others to keep pressing your doctor for more solutions, increased meds, different types of meds, anything that will help. Since your baby isn’t gaining weight properly, they should consider it top priority to try different things to help him! Please keep us posted.
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