Infantreflux.org | Where to go now?? Help!

This topic has 20 replies, 1 voice, and was last updated 13 years, 1 month ago by Anonymous.

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June 10, 2011 at 5:47 pm #68494

Anonymous
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My baby Amelia (5 months) has been on Prevacid compound for almost 3 months. She is a happy baby but will refuse to feed. Initially we had a lot of success with the compound, then the pediatrician took her off Prevacid to see if she had “grown out of it”. She was off for a week before she stopped eating and we begged him to put her back on. She went back on Prevacid compound and our pediatrician also told us to thicken her milk with rice cereal. We started back on the Prevacid and did not thicken her milk, and Amelia was very good for about 7 days. We then started thickening her milk with rice cereal (1 tbsp/4 oz). Since day 8 she has been worse than ever. She now refuses to eat after as little as 0.5 oz. It seems like the rice cereal made things worse. It has now been 7 days since she had a good feeding. Amelia is so hungry, but wont eat.

I dont know where to go next. The Prevacid now seems ineffective. The pediatrician is open to giving her solutabs instead of the compound. Or what about Prevacid capsules with Buffer Babies? Or a different medicine?

Help!! Where should we go from here? We are all very stressed out and sad!

June 11, 2011 at 1:06 pm #68497

hellbennt
Keymaster

BUFFERBABIES

and, in the meantime, you can get prevacid capsules, open them up & give her the beads inside

you must give on an empty stomach and follow w/ a ‘meal’ 30 minutes later

when you give the beads, you give w/ 1/2 tsp of applesauce

CHECK FOR PROPER DOSE AT http://www.marci-kids.com

you do NOT have to time w/ bufferbabies

FORGET the compound. useless!

TELL dr you need rx for carafate in the meantime.

Carafate, coats the stomach and can reduce the absorption of other meds. So be sure to space it at least 2 hours before or after any other medication.

https://www.infantreflux.org/forum/forum_posts.asp?TID=13485&KW=search+feeding+aversion+forum

here’s more to help:

https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13876&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13875&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13866&KW=feeding+aversion

https://www.infantreflux.org/forum/forum_posts.asp?TID=13809&KW=feeding+aversion

https://www.infantreflux.org/forum/search_results_posts.asp?SearchID=20110108140213&KW=feeding+aversion&PN=2

FAX FAX FAX the dr

don’t wait for a call…

start off with a THANK YOU

keep it short & sweet

stick to the FACTS (no emotions and ramblings)

state current meds, doses & symptoms

make request- flat out- short & sweet

provide pharmacist name & contact info

THANK AGAIN

follow up by calling office to tell them fax was sent

call again later to discuss requests made in fax, ie:

is RX called in yet?

THANK YOU

sample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325

About faxing the doctor (& more): https://www.infantreflux.org/forum/forum_posts.asp?TID=2841&TPN=1

Feeding Aversion:

https://www.infantreflux.org/forum/forum_posts.asp?TID=13904&KW

hellbennt2011-06-11 13:11:00

June 12, 2011 at 8:53 pm #68507

Anonymous
Inactive

Rice can contain wheat which causes issues for some babies. It can also be constipating. My dd actually improved when we thickened with cereal, but only after we switched to oatmeal. If you aren’t seeing improvement, I’d cut the cereal out. It often causes more issues than it helps.

June 13, 2011 at 9:54 am #68513

Anonymous
Inactive

We are using Prevacid OTC with CaraCream Max and it’s working well. I like that you do not have to wait the 30 minutes.

1 TBSP of rice per 4 oz is not much, you wouldn’t think that could cause that much trouble but it’s worth a shot to try and remove it to see if that helps. We are seeing some bottle refusal with my little one right now too but she just got her vaccinations and I’m wondering if it’s somehow related to that. That was 3 days ago.

June 13, 2011 at 2:11 pm #68518

Anonymous
Inactive

Thanks everyone! We removed the rice and have seen some very marginal improvement. I sent my fax to the Dr. this morning with information on Bufferbabies and dosing per Marci-kids. Ill follow up with a phone call this afternoon. Will see what happens, Ill let you know!

June 17, 2011 at 4:14 pm #68531

Anonymous
Inactive

Update: We went to the pediatrician yesterday. He agreed to prescribe Prevacid capsules – 15 mg. I ordered Bufferbabies, so will give the Prevacid with apple sauce until then and then switch to Bufferbabies. He told us to split the capsule to one dose of 7.5 mg, so not the dose recommended by Marci-kids, but at least its a start.

Ill keep you posted on how she does!

July 6, 2011 at 1:33 pm #68592

Anonymous
Inactive

Update: Well, things have not gone as well as hoped. We switched from the compound over to the capsules and were giving 15 mg/day split into two doses. Amelia seemed to improve marginally, but we only did the capsules for a few days and then switched to Buffer Babies. I also added a third dose based on the recommendation of MARCI-Kids, so she was getting about 24 mg/day. There was no improvement (2 weeks of bufferbabies), in fact, she actually went downhill. My husband insisted on switching back to capsules (a capsule and a half, so ~23 mg/day). We did this starting 3 days ago. This morning she drank her whole bottle for the first time in months. I don’t know what that means, we will see if she keeps it up. We finally have an appointment with a pediatric GI on July 21.

July 6, 2011 at 7:34 pm #68593

hellbennt
Keymaster

ok well give the capsules on an empty stomach, followed by a ‘meal’ 30 minutes later (give the beads w/ a tsp of applesauce)

good luck

July 10, 2011 at 8:43 pm #68629

hellbennt
Keymaster

any updates, MamAmelia?

July 17, 2011 at 10:58 pm #68671

Anonymous
Inactive

Back on capsules, ~23 mg/day, but no noticeable change. We go to the pediatric GI this thursday, so hopefully he can help. Amelia gets some breastmilk and some formula, so I’m cutting out dairy and eggs and trying to get her to take Elecare to see if that makes a difference. Ill let you know what the GI says this week.

July 17, 2011 at 11:11 pm #68672

Anonymous
Inactive

Does your LO have a dairy/egg intolerance already diagnosed? What formula are you currently using?

If you’re cutting out dairy, be sure to eliminate all dairy, obvious (milk, cheese, yogurt) AND hidden (casein, whey, ect.) , and you may want to consider eliminating soy as well, it’s not necessary but a lot of babies who can’t handle dairy also have trouble with soy becuase their proteins are so similar.

Good luck! I hope things start improving soon.

July 18, 2011 at 12:27 am #68674

Anonymous
Inactive

No, she does not have an intolerance diagnosed, but at this point I’m willing to try anything. Im not sure what I would eat if I had to cut out soy as well. She is currently on Nestle Good Start and breastmilk. Right now Im thinking that once I transition her to Elecare or Neocate, I may stop pumping and see if that formula makes a difference. I tried Nutramigen, but could not get Amelia to take it. I’ll also discuss this with the GI on thursday.

July 18, 2011 at 7:47 am #68675

hellbennt
Keymaster

mix the formula w/ breastmilk, a little formula at a time…it’s sometimes hard for them to switch because of the taste…

also, have you read this, to understand about formulas?:

https://www.infantreflux.org/forum/forum_posts.asp?TID=6013

July 18, 2011 at 7:17 pm #68679

Anonymous
Inactive

You dont have to cut out soy right away, I just suggested it because like I said there is a high percentage of babies that have a milk/soy intolerance. There are babies, however, that cannot tolerate dairy but do fine with soy. But if you do decide to eliiminate both, you’ll probably find that once you get used to it, its not that bad. I havent had soy or dairy since my LO was about 7 wks old. The hardest part for me was finding bread that was dairy/soy free.

Talk to the GI and see what they say. You could jump straight to Neocate or EleCare, or you could try Nutramigen or Alimentum first to see if they help. They are not as expensive and less sensitive babies can handle their proteins.

Just introduce slowly so that baby can adjust, although babies under 4 months dont have fully developed tasted buds so hopefully the taste wont be a hard transition for your LO.

Let us know what the doc says!

July 19, 2011 at 4:42 pm #68680

Anonymous
Inactive

Thank you both. The article was very informative, I understand now that the transition must be very gradual. I originally mixed 1 oz Elecare with 3 oz regular formula and Amelia did not like it (she is almost 7 months). So now I cut down to 1/2 oz Elecare with 4 oz regular formula, and then Ill increase from there.

I understand about the soy allergy. But I decided Im going to stop pumping this week as my supply is now super low after having to skip pumping sessions due to travel – oh well, 7 months was a good run!

GI specialist on thursday, Ill keep you posted! I hope he has some insight as we have to travel 3 hours to get there…
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