- This topic has 22 replies, 1 voice, and was last updated 18 years ago by
.
-
Laura, I want to give you a special
because you are always there for every single person on this board…and it seems that you are there all hours of night and day. I am just impressed. And very, very thankful.I try not to complain too much, but sometimes it is just so so hard. It’s nice to know others have been there…and that complaining is normal.
You know, I was told that I would never have children. My husband and I adopted a beautiful little girl and then miraculously got pregnant with Jacob 2 months later. Because of this, I try extra hard to keep it all in perspective…because I wouldn’t trade him for anything in the world…..and acid reflux is a SMALL SMALL price to pay….and even though I realize how very blessed I am to have him, I STILL get so worked up about the reflux and just wish the days to pass so that he can be better and this can end. It makes me very sad sometimes, but I think it is very normal to just want it to get better….even under circumstances like mine.
That being said, every night I pretty much make myself give Jacob an extra hug and stop to think how lucky I am to have him – reflux or not (but darn those Moms who have never been through this!) ha!
Johanna
group hugit gets better- go read through the hip hip hooray forum- go back a long time to posters who no longer post here- you’ll see:
it does get better!
Naomi,
Yes, it does get better. I was where you are at (twice…I’ve had two refluxers
) so I fully understand how hard it is. (We all do!). In my sleep deprived fog I used to say things like “I wish I hadn’t had another baby.” Of course I didn’t mean it but taking care of a reflux baby can be a form of h*ll on earth. Try to hang in there. It really does get better. Zegerid was made for babies with reflux and it will almost certainly turn things around for your little guy. My first refluxer was never properly medicated and it never got better until she finally outgrew it, but my second refluxer was finally on a good PPI dose (Prevacid) and within 10 days he was a new baby.
Good luck….I hope you get the Zegerid soon and he is feeling better very shortly.
About compounded prevacid: I agree with the others. It’s so difficult to prepare properly and few pharmacies even know what “properly” means. I learned the hard way that the pharmacy doesn’t always know how to prepare it, even though they will say that they do. If they’re not willing to make it like you’ve asked, then maybe you can look for another pharmacy. The pharmacist is right, that when prepared unflavoured with the right amount of sodium bicab it will taste nasty- basically like salty water, but you can always try to add it to a bit of milk and see if that helped. I exhausted the city trying to find someone who would make it like I asked. Hailey suffered for so many months because her meds weren’t being made properly. Even when I finally got it made with 16.8 percent bicarb, the right concentration etc, I found out that they were still adding things (simple syrup, bitter stop, stevia powder) that also degrade the meds. That’s why many prefer the solutabs even though they can be a pain to time with meals. How many doses a day are you giving?
As for the hardships of reflux: I feel so bad for you guys. Reading your posts makes me remember what it was like in those early days and months. I really think that unless you’ve gone through it personally then you can’t possibly understand what it’s like. I used to get so upset that I would literally swear at Hailey and say that I hated her and wonder why I ever had another child, which of course is not at all true. I’m very ashamed to admit this, I’m just confessing so that you know that you’re not alone. Having a baby with uncontrolled reflux can be so draining that the sleep deprivation alone can really distort things. As the others have said, it does get better… hang on to that truth… even when it doesn’t go away completely, it still gets easier as they get older. As I said, there were many days early on when I wanted to hop on a bus out of town and assume a new identity. I used to post one boo-hoo after another that I think that people on this forum probably wanted to have me banned after a while (If you look through my posts you’ll know what I mean
). Things were so horrible, and they’re still not exactly where I’d like to be (We’re an exception to the norm though so don’t worry. It WILL pass). It’s so much better even though the reflux is still with us, and if I can say that then it really means something b/c reflux has really railroaded us. Now not a day goes by that I don’t thank God for bringing Hailey into our lives. She is such a joy and a blessing and seeing the little girl she is becoming has been so amazing that I would do it all over again even knowing now what I didn’t know then. The road has been bumpy, and far from what I envisioned before she was born, but watching her grow reminds me that sometimes we have to work for the best things in life.
Hold on and hang in there. It really will get better. Big BIG HUGS.
- You must be logged in to reply to this topic.
