When will it work?

[Anonymous]

I’m so tired of my son getting worse! Ben is 8 weeks old and it seems like, even though his screaming fits have lessened, every other symptom has worsened. He is eating less and less and having more trouble every time, sleeping less and when he does sleep (hardly at all during the day), he is obviously uncomfortable. His spit ups reek of acid, and I can’t figure out what is going on. His dose of Prevacid was upped to the highest dose MARCI kids recommends for his age and weight just this week, and that’s about when it all started to get worse! He even gets the Prevacid three times a day. What’s going on? I hate seeing him in pain, and I really really hate spending all day just wishing he would grow up faster so we could get this behind us. I’m wishing this time with him away, and I can’t stand the thought of that.

I HATE REFLUX! Can I hear an AMEN????

[Anonymous]

I hear you on the wanted them to grow up faster. Colt is my last and I wanted to be able to remember every last minute of it. Ha that was a joke just weeks after his birth I couldn’t wait until he was 1 then and now its 2. You probably have heard this but I will repeat it. Make sure you are giving it on an empty stomach and then feeding 30 minutes later. Can you get Zegerid? At 8 weeks old I couldn’t get Colt to wait to eat so I couldn’t give the prevacid like I should have. When we got the Zegerid it was only days later that I noticed he was doing so much better. Then there is the horrible question of are you on an elimination diet? You may be dealing with an intolerance to dairy or soy so you should eliminate those from your diet.

[Anonymous]

Ok, I’m not sure about this, but Ben is on a compounded form of Prevacid. From what I understand, you don’t have to wait to eat like you do with the other forms. Am I wrong? I make him wait a little, but certainly not 30 minutes. Maybe this is the problem. I am working on getting the Zegerid. Also, I have considered MSPI too, but I wanted to get the meds lined up before I try something else at the same time. SHould I just go ahead and start the diet anyway?

[Anonymous]

Hi Naomi, I just wanted to share my situation really quick. I started Zegerid and Alimentum within the same week (suspecting MSPI). Of course her results have been great and we finally have our happy baby, BUT now I’m not sure if the Alimentum was really needed. I’m terrified to take her off of it though. If possible, I would give the meds a little more time before starting the elimination diet…that way you know what the “cure” was and you won’t wonder. Does that make any sense?

Amy

[Anonymous]

Ask Dr. Sears: Coping With Baby’s Acid Reflux
–

“Feed tummy-friendly milk. If you are
breastfeeding, continue exclusive breastfeeding for as long as
possible. Breast milk has many advantages over formula, especially for
a baby with GER. It’s digested faster than formula, which minimizes
reflux, and it contains enzymes that aid digestion. Also, while babies
are not allergic to mother’s milk, they can be to many types of
formula, especially babies with GER. If formula-feeding, use a
hypoallergenic formula as recommended by your baby’s doctor. Besides
being tolerated better by sensitive intestines, some of these formulas
are digested more quickly so they remain in the stomach for a shorter
time. “

http://www.parenting.com/parenting/baby/article/0,19840,1052 599,00.html?topic=12000&stage=01

[Anonymous]

I love Trace’s new picture!!! What a cutie pie!!!!!!!!!!!!!!!!!

[hellbennt]

is the prevacid being compounded ‘correctly?’

there’s a link from “Prevacid 101” of how to ask for your PPI to be compounded

if it’s compounded (correctly) it can be given at any time, regardless of a meal, etc

as ofr elimination diet- I’d se if meds help then tackle the diet- one change at a time?

the elimination diet is n’t that bad; I did it. It’s 2 weeks & I found it to be totally ‘worth’ it…links from ‘groupie intro’ and ‘main’ mspi link…

[Anonymous]

Ok, so how long do I wait to see if the meds work? I mean, he’s been on meds for almost 4 weeks now, so they’re not new, it’s just a new dose. Wouldn’t he be getting better and not worse since it’s really just more of the same medicine????

As far as the compounding goes… my pharmacist refuses to compound it with the sodium bicarb. percentage that MARCI kids recommends… he says it would taste awful. I would much rather it taste awful and work though… maybe this is our problem. HE only mixes it with 8.6% I think.. and Ben’s dose is 4 ml at a time.

If I can track down a syringe… I’m going to try Zegerid and pray for relief… I really don’t know how much more I can handle. Last night was awful and he has already successfully missed one nap today because of the reflux..

[Anonymous]

yes it may not be working properly because of how it is being made.

also, i use zegerid and you dont necessariyl need the 20 ml syringe. i mix everyting up in a little plastic cup. and store it in the plastic container from the pharmacy. yes its easier with the syringe i think, but you can manage without it.;

another thing, my son did great on a PPI until the milk proteins in his fromula built up in his system and then it was like he wasnt even on meds. it was horrible. once i switched him to an amino acid based formula he was fine again,
you may want to do the elimination diet as soon as possible.

also maybe look for a different pharmacy or demand the 16.8 bicard and get flavoring on the side, and add that in as you go.

[hellbennt]

tell your pharmacist to humour you & make it like you tell her/him to

ask for flavoring on the side

as for syringe, try a vet (seriously, that’s what someone posted here)

maybe meds aren’t working because of both dose & way it’s compounded? are you getting it fresh every 2 weeks? well, if it’s not done ‘properly’ then it probably wouldn’t matter if it was made fresh every day…

carafate should help temporarily?

[Anonymous]

Yes, I hate reflux too and I truly understand “wishing the time away.” I couldn’t wait for my reflux babies to grow up because it was such a horrible place to be. That being said, my second refluxer was eventually properly medicated and things DID turn around. Life became much more normal. He was a big spitter and meds don’t help with that, so that continued to be a challenge, but everything else improved. His chronic irritablity stopped and his pain and screaming during and after feedings stopped.

It does sound like the problem is likely that the Prevacid is not being compounded properly. Can you ask for the Solutabs? Or, try Zegerid? If you need syringes you may have success ordering them at The Medicinne Shoppe. I was able to get them there…but they had to be ordered.

I wish you the best. I sure know how hard it is. Keep working on it and you’ll find the answer.

[Anonymous]

As far as the syringes go, check with your local veterinary clinic – I was able to get mine there

Robin

[Anonymous]

Amen, Amen, Amen!!!!!!!!!!!! I am so sick of reflux. We are in the process of taking my little guy off meds. Today is day five, but he has been grumpy the last 2 days. I never know if he’s grumpy due to reflux or just normal baby stuff. Don’t feel guilty either about wanting the time to pass by. I don’t know of any mom that enjoys there baby crying, not sleeping, and in pain. Too often you will get moms that have never had a reflux baby tell you to just enjoy it while you can. While this is true and they grow up way too fast. The person saying it has no idea what its like. I’m saying this from experience. I felt really guilty and that just added to the frustration. Keep pushing for what you think your baby needs. You know him best.

[Anonymous]

Just wanted to add my big, fat AMEN in here. This is miserable. The only hope I have is in seeing that pretty much everyone gets through it eventually. Somehow.

Johanna

[hellbennt]

JohannaC wrote: The only hope I have is in seeing that pretty much everyone gets through it eventually. Somehow.

babywearing https://www.infantreflux.org/forum/forum_posts.asp?TID=1044&a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;a mp;PN=1

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