When did you notice an improvement?

[Anonymous]

I was just wondering when people noticed an improvement in their childrens reflux? What age they were?

Also when did you find the worse time was for reflux?

I know every child is different but I’m interested to know!

I guess i’m feeling a bit helpless as her meds aren’t working and we are waiting to see the dr again but i’m unsure if he will prescribe a different med as he wanted to try Neocate but this is going to be difficult as my daughter has never drunk from a bottle before or had formula!!

Also i wondering why she seems to be getting worse instead of better as she gets older!!

[Anonymous]

Myles’ worst times were between 4 and 7 months. At 7 months we began to see days here and there where he was better, followed by bad days again, and back and forth for a while. By 8 months we were seeing good weeks, followed by bad weeks, and finally by 9.5 months his reflux seemed to be gone for good. (He was on meds and pain free, but I could gauge his progress because he was a big spitter).

My first refluxer (Eliana) seemed to outgrow it overnight at around 9 months. (She was a silent refluxer and never properly medicated. I knew she was better because she suddenly began sleeping all night and eating without a fight).

I’m sorry her meds are not working. When’s her appt with the doctor? Are you going to push for an increase in her dose? Myles finally turned the corner when he was on 30 mg.

[Anonymous]

she may need neocate. my sons reflux was horrible and it seemed like the meds werent working until i got him on neocate.

[Anonymous]

For us it was worse right around 4 months and it started getting better around 12 months but he is 19 months now and he still has reflux. If you decide to do a trial of Neocate you can mix it with breastmilk and slowly decrease the amount of breastmilk you put in a bottle until she is drinking only Neocate. Here dosage seems very low but even at the amount she is taking you would think you would see a difference. If you are totally against Neocate try and get a dose increase and see if you notice a change.

[Anonymous]

i have tried 30mg but i think the main problem we have is finding the best form of the med.

Capsules and dissolvable tablets don’t seem to work dispite us following the empty stomach and feed 30mins later rule.

The compound worked the best i think but it became unstable for the last 2-3 days of the 2 week period and because she went on a higher dose the dr did a prescript for 20mg/5ml so she was getting 2.5ml twice a day and it didn’t work as well but the pharmacy said they can’t do 2mg/ml which is what i wanted!!!

The caracream works but she hates the taste and usually throws it up hence we have to start again but by then she is refluxing and crying/choking!!

I wouldn’t mind trailling the Neocate and pumping incase it doesn’t make a difference but she won’t drink from a bottle and as she is not feeding great as it is i’m worried trying to get her to drink it would cause complete feeding refusal!!

I feel stuck between a rock and a hard place wondering if i can ride it out.

kkmum2006-10-21 14:25:28

[Anonymous]

that is weird that the pharmacy said they couldnt do 2mg/ml. several moms have had that done.
maybe try a different pharmacy?

[Anonymous]

thats what i thought!! I mean they are making it up speacially for her so why can’t they make it however???

I think that they were lieing to me!! I’m gonna ring round on monday and see, we have a family drs appointment on Tuesday to get more meds so i will ask the dr too.

It’s so frustrating as noone seems to know anything about reflux apart from me, but trying to tell drs and pharmacists about things like meds and dosage and they get all snooty like how could I possiblily know more than them….

kkmum2006-10-21 15:9:49

[hellbennt]

lori (s&H) reports that prevacid tastes better with the caracream- any chance of switching? that might solve the issue?

also: I’m sorry– I can’t remember if you’re on a special diet or if you’ve tried to figure out your diet

that is if you want to continue breastfeeding, otherwise nevermind…

again I forget have you posted over on the yahoobreastfeeding reflux board for diet support- thery’re really great about that over there…

~laura

[Anonymous]

Aidan started to improve a bit at around 6 months when he could sit up, and things really began getting better around 7-8 months, although we had and still have little minor episodes, if he gets a cold, teeth, ear infection, etc. But now at 10 months he hardly refluxes at all. It is really limited to if he gets sick (or eats or drinks something that I didn’t realize causes heartburn, like grape juice-oops on that one). He is standing now, and cruising from furniture to furniture, and I think that has helped a lot (gravity and all). Still on meds til he’s one jsut in case though, he’s a late teether and his ped wanted to be sure he was on medication through his first few teething episodes!!

[Anonymous]

You should be able to find a pharmacy that will make the meds the way you want them since you’re paying so much for them. I know what you mean about the docs getting mad that you know more than they do. I had the same problem, and still do have that problem.

For us, losec never worked nearly as well as the prevacid did. Losec never helped her. The same dose of prevacid started to control the pain, and upping the dose of prevacid got the pain under control for the most part with breakthrough especially at night. But it was much better, though still not near where I would hope to be, but better since she wasn’t hurting.

My advice is to try a different med- give the prevacid a try. Like Laura said, prevacid in CaraCream tastes a MILLION times better than losec in CaraCream. You still have the thickness and the same texture, and unfortunately the saltiness is still there (which unfortunately, I think goes hand in hand with properly compounded PPIs), BUT (and it’s a big BUT) that NASTY bitter flavour, which is the losec, is not there. Prevacid is not bitter so it tastes better. (I know it’s wierd, but I’ve tasted all of Hailey’s meds, formulas, and foods to find out why she refuses certain ones).

When I first stopped nursing, I had to because Hailey stopped feeding. So I pumped and gave it to her in a bottle. I first tried giving her the hypoallergenic formulas. I would mix the tiniest drop into the breast milk, and because they tasted so foul compared to my milk, she would never accept it. We kept trying, but she just get refusing, and because her feeding aversion was so bad, we had to give in and give her the breastmilk because she wouldn’t eat. She knew how to take a bottle though, but she wouldn’t accept any formula for a long time. I think that the switch from breastfeeding or breastmilk to hypo formulas is harder than the switch from regular formula to hypo formula. For us, the feeding aversion really complicated things, but we seem to be a severe case on all fronts. I always wish that I had known about the elimination diet and had given that a try, though if I remember, you had tried that already.

Good luck. I feel really bad for you guys, and hope that you can find something that works.

[Anonymous]

the whole thing with the compounded meds that the pharmacy does is such a pain in the but. i think that it is pure laziness from the pharmacy’s part, that they don’t want to make a 2 week supply. they always give me a hard time about the whole prevacid thing in the first place. just wait until i start asking for the two week supply, they are going to give me some bull#### excuse that they can’t do it. and they make so much money.

[hellbennt]

fax your doctor the request to please humour you and to write out the script so it reads how you want it to- spell it out-

then call the dr’s office to tell you sent the fax

then call to get the script

maybe with this, the pharmacist won’t blame you?

[Anonymous]

Well i rang the pharmacy and they can make it 2mg/ml so the chemist lied when i asked them and they said NO!!!

So i am off to the drs today to get her to write a prescrip for it, the caracream hasn’t turned up yet and as my daughter throws it up its not too good anyways!!

We now have an appointment in 1 month to see yet another pead GI for a second opinion. Another mum i spoke to says he prescribes prevacid as a first step as its so easy to give and works better!! i don’t want to give up bf as the other dr said.

If the prevacid doesn’t work then fine i will have to consider it but i think it will cause compete feeding refusal as she has never had formula or drank from a bottle before!!

Lets face it i only have 5 months to go before she can have cows milk/rice milk or whatever so i’m sure i can struggle on till then if needs be!!

Well they say kids are expensive and unfortuanly all the costs are on her medical appointments so far!

[Anonymous]

Good luck with the new doctor. I hope he puts her on Prevacid. It worked so well for my little guy. Keep us posted.

[Anonymous]

natalie—i really think that kaylee should have had at least SOME relief at this point—even with less than perfect meds. how is her weight and overall health. (besides the reflux?) has she had any testing done yet?

[Author]

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