Home › Forums › Infant Reflux Support › Boo-Hoo! I need YOU! › venting
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November 22, 2006 at 5:03 pm #18787AnonymousInactive
Oh my gosh you guys!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!
i just called marci kids and chad said i can crush up OTC prilosec and use caracream!!!!
why does the pharm charge 140? what a joke!!! its the exact same med!!!
oh man i am so excited!!!! this is going to save so much money!!!!!!!! yayyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyysorry i have to calm down lol!
LOri thank you for that info!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
nataliachick72006-11-22 17:20:26
November 22, 2006 at 5:22 pm #18788AnonymousInactiveHooray! Great news, and right in time for Thanksgiving!!
Medicaid is a federal program. Many (probably most) states have their own medical programs for qualifying families as well. In Wisconsin where I lived when I was on Medicaid, it was called Medical Assistance and is now called Badger Care. You should look in to it….he may qualify since he is on WIC and Medicaid.
I hope the Prilosec OTC works for him. That’s awesome that you can crush them and give them to babies!
November 22, 2006 at 7:41 pm #18793AnonymousInactivethanks christine.
crushing the pills was such a pain. we bought this pill crusher at osco that was a real piece. it was very hard to crush the caplets with it and we crushed 8 caplets and lost so much powder trying to get them from that container into the solution of therasol. so i ended up putting in an extra caplet, i hope thats okay…
i was looking more for something electric, or something like a pill “grinder” but not sure if anything like that exists.
ugh.November 22, 2006 at 8:44 pm #18795AnonymousInactiveWhat you need is a mortar and pestle. I think you can buy them. Yeah, you can….Here’s one.
November 22, 2006 at 8:49 pm #18796AnonymousInactiveNatalia, How have you been able to get CaraCream to use with the prilosec? Last Joel told me, they weren’t going to give it out anymore in the US, especially for use with prilosec due to their agreement with Santaurus. I’m sure that others would be interested.
November 22, 2006 at 9:05 pm #18799AnonymousInactivethanks for the link chrisitne….
Lori, i have had caracream for a while now…i pmed you about the detail a while ago, if you lost the pm, pm me again. i cant discuss it out in the open.
anyway, we just tried giving him some, he FREAKEED out, gagged, cried.
geez. i just dont know, it doesnt look like this is going to fly. i just dont know what else we are going to do. we cannot afford zegerid, he cant tolerate prevacid!November 22, 2006 at 10:15 pm #18803AnonymousInactivefirst question is how many ml of Zegerid is Trace getting a day. Justice is doing 5 ml 3x a day and has been for a really long time. Marci-kids says he should be getting 7 ml 3x a day though. I’m asking because I know they are the same age and also Justice has been really cranky since I tryed taking him off the Zegerid.
Also, is the 130 after the coupon? We get our meds at Sams club and they take the coupon.
November 22, 2006 at 10:33 pm #18805AnonymousInactivewe pay 124 actually with the coupon at osco. Trace is now on 42 mg. the dosing is different with the 40 mg packs than with the 20 mg packs. if he were on the 20 mg packs his dose would be 33 mg a day. he requires the highest marci kids dose…
so, we are now getting his meds like every 11ish days, its just insane.looks like we are back on zegerid as of tonight. this means no groceries for us as usual. how sad, im actually looking into foodstamps because we are so broke. plus, we have some neocate cans we pay for as well because we cant get a whole months worth covered.
i jsut cant wait for this reflux thing to be over!!!!
shelby-how often do you renew Justices zegerid? does yours last a full month?
November 22, 2006 at 10:48 pm #18811AnonymousInactiveI don’t have anything practical to add, just that my heart goes out to you all in US- whilst I complain a bit about reflux at least it isn’t sending me broke as well. It just sounds so unfair for you guys.
November 22, 2006 at 11:18 pm #18817AnonymousInactiveWe have to get Zegerid about twice a month. Just don’t tell my husband that. He has no idea. I actually wasn’t sure until recently. I think keeping the zegerid in a medicine bottle or syringe helps. I am almost positive that the water will evaporate if it is not sealed. I found that when I tryed to take him off his meds and only had one dose to give. After 5 days of it sitting there it was stuck to the bottom of the cup.
November 22, 2006 at 11:32 pm #18819AnonymousInactiveyeah, these meds are so expensive!!
we also keep ours in a sealed container.
November 23, 2006 at 9:12 am #18822AnonymousInactiveOh Natalia – I am so sorry to hear how expensive it is for you!!! We are extremely fortunate to have most of ours covered by insurance (b/c the pharmacist made a call for us…I think I told you about that) Anyway, we also go through more than a box a month and it’s going to get even worse now that we’ve upped her meds.
I know you’ve exhausted all resources, but if I think of anything new and different…I’ll send it your way! I also live in Illinois…hey the only other thing I can think of is KidCare. Have you heard of it or tried to qualify? It’s insurance for your kiddo. THAT MIGHT WORK!! It is kind of hard to qualify because you have to fall exactly into certain $$$ guidelines. I used to work in Early Intervention and we had to provide KidCare info to all the moms who don’t have insurance. Let me know if you want me to find anything out, or see if you can research it.
GOOD LUCK!!!!
AmyNovember 23, 2006 at 10:56 am #18826AnonymousInactiveyea we have it already, thankls though!
November 23, 2006 at 10:56 am #18827AnonymousInactiveI posted the information below under your question on medicines. We do not qualify for any programs because of our income. However, we do quaify for the below program because it is based on medical problems. Based on the payment agreement guide for our state monthly payments can be $0-$200 depending on family size/income range. That said even the $200 monthly payments is for someone with income levels that are beyond the charts because there is no ceiling for income. Maybe your state might have something like this?
Not sure if your state has this or not? It is called Children’s Special Health Care Services (CSHCS). It is a program run by the state for children with health problems. It does not matter how much your income is upper, middle or lower class. It goes on your previous years income and then you are required to make monthly payments for 1 year based on the range you fall in. It requires you to see a subspecialist (ped GI) not a ped. It covers Neocate, copays for your prescriptions, copays for the office but nothing to do with well visits, etc. Everything must go through your insurance and get declined then it can get submitted there CSHCS.
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