Home › Forums › Just For Fun › Keeping In Touch › Update on Hailey – Celiac Possibility
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February 15, 2006 at 12:34 pm #1554AnonymousInactive
Well, we are still in the process of doing testing to rule out reasons for Hailey’s loose stools (chronic diarrhea). We did a CBC and Celiac Panel last weekend to check the eosinphil level and to rule out celiac. I just got her celiac results and they aren’t all completely done but one thing that stands out is her Serum IgA level is low – result is 17 and the range is 82-453. I was doing some research and it sounds like a reduced IgA level and celiac go hand in hand. Just wondering if anyone knows anything about this.
debit34 2006-2-15 12:35:57 February 15, 2006 at 12:48 pm #1557AnonymousInactiveHi Stacey, sorry I can’t help you out. Maybe you can e-mail Christine direct- she probably knows more than anyone. Please keep us posted what you find out.
February 15, 2006 at 1:08 pm #1560AnonymousInactiveHi Stacey,
I hope that doesn’t mean celiac disease, when do you see the dr. to discuss the results? I don’t know much about it, is it hereditary?
February 15, 2006 at 2:01 pm #1561AnonymousInactiveThanks guys. Maybe I will e-mail Christine. Yes, the celiac panel is for celiac disease. If we get any kind of positive result (which I’m not sure if this low IgA is positive or negative and there are some parts of the panel not back yet) then they will do a biopsy of the intestine to confirm celiac. As soon as the full results are in, I’m going to call the office and find out what’s going on…
February 15, 2006 at 2:03 pm #1562AnonymousInactiveLooks like Christine’s e-mail is private – anyone have it?
February 15, 2006 at 2:06 pm #1563AnonymousInactiveI don’t, but I’d bet Laura or Eli’s mom (Tracy) probably does. I know Laura’s isn’t private, but not sure about Tracy’s.
Sorry to hear what you are going through, Stacey. It’s so hard when you think you are near the end of a lot and then something else starts. Keep us updated on Hailey.
February 15, 2006 at 2:18 pm #1564AnonymousInactiveStacey, I think she put her e-mail in one of her posts. I will try to find it and bump it up for you. Maybe she will look on the boards soon and see your note.
February 15, 2006 at 2:30 pm #1565AnonymousInactiveHi Stacey –
I’m so sorry to hear this – you guys have been through so much that this must be blowing your mind. I just wanted to add that my husband’s best friend (the best man in our wedding) recently learned that he has celiac disease. He used to be sick all the time, and generally just didn’t feel well. Since he changed his diet he feels so much better and has such strongs feelings about food allergies, intolerances, and all of that. He and his wife have come up with some really great foods to eat, some of which I’m sure would be great for Hailey if it came to that. They’ve had us over for many meals and I would never know what I was missing if I didn’t know. If you find out this is the case and need some recipe ideas, I’d be more than happy to share them with you.
Good luck – keep us posted!
February 15, 2006 at 3:10 pm #1572AnonymousInactiveStacey, I’m so sorry to hear this. Hopefully this result does not mean that she has celiac, or anything else that is serious. I recall Laura posting somewhere that she has Christine’s email. Good luck. Please keep us posted.
February 15, 2006 at 3:52 pm #1581AnonymousInactiveThanks guys. You are all the best. I just love having somewhere to go when there are questions and have this amazing amount of support!
More results came in…I think the lab thinks I am nuts. I’ve been after these results for days!!! I keep calling and calling and finally they are all in!
Two of the big part of the panel for celiac are negaitve:
Endomysial IgA screen – Negative
Tiss.Transglutaminase ab, IgA – Negative
also, these are part of the celiac panel:
Gliadin IgG and IgA’s are within normal ranges.
The only thing that’s odd is the IgA quant serum…It’s very low. I need to call and find out what this means.
debit342006-2-15 15:54:55
February 15, 2006 at 3:54 pm #1583AnonymousInactiveGood to hear that the other big parts are negative. Wish I could
provide insight into the low IgA number but way out of my realm of
knowledge. I hope it all works out ok!February 15, 2006 at 5:13 pm #1601AnonymousInactiveTyler recently had a test for IGA although I havent got the results yet. My doc said that babies with MSPI usually have low IGA, she never mentioned Celiac though. Sorry I cant be of more help.
February 15, 2006 at 6:03 pm #1609AnonymousInactiveWell, I searched and searched and did not find Christine’s e-mail. That is good news about the other test results. Hopefully, you will get some more explanation for the low IGA number.
February 15, 2006 at 7:01 pm #1610hellbenntKeymasterI’ll email her- meanwhile I found this that I’ve sent to her recently:
not sure if this pertains to you and your family or not but this was posted on the yahoobreastfeeding group:
some general info at the link below:
http://www.stayinginshape.com/3osfcorp/libv/i77.shtml
“IgA normally stands guard at the body entrances, intercepting bacteria,
viruses, toxins, and certain food components. The cause of IgA Deficiency is
not known, and it may differ from one person to the next. In fact, NIH says
some people with IgA Deficiency may not have symptoms. Others may experience
recurring ear, sinus or lung infections. IgA Deficiency itself seldom causes
serious trouble. However, people with IgA Deficiency are very likely to have
any of a variety of other problems. They are especially prone to allergies,
asthma, autoimmune diseases such as rheumatoid arthritis and diabetes;
diseases of the gastrointestinal tract, and neurologic diseases.”I also found this info interesting, though don’t have the link handy:
“IgA deficiency is 10 times more common in coeliac patients than in the
general population. Patients with coeliac disease and selective IgA
deficiency often have circulating antibodies to food proteins; they also
have circulating immune complexes, suggesting that absence of an intestinal
barrier might allow the absorption of antigenic material from the gut.
Antibodies to some antigens might cross react with the host’s
self-components and might indirectly produce autoimmune disease.”– And –
“Antibodies to food antigens, especially cow’s milk, are common and may be
related to the high incidence of malabsorption.”February 15, 2006 at 7:56 pm #1615AnonymousInactiveStacey, I hope that they are able to give you some answers soon. I’m glad that the rest of the results look good.
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