Home › Forums › Infant Reflux Support › HELP!!! › update after ENT
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January 28, 2013 at 5:58 pm #71552AnonymousInactive
So again nothing is black and white…but with that said the scope showed her adenoids are large and so her tonsils (they are 3 out of 4). This would not cause her coughing fits though…but could cause her not to stay in a deep sleep as she could be snoring and waking herself up out of the rem (think that is what it is call) stage..therefore not getting the right rest and could make her sick more. The vocal cords were red (but again she has been coughing her brains out the last phew days so could be that)..if it is acid reflux causing the redness she has the LRP “silent reflux” and this is the harder one to deal with. So we r going back on AR meds and im going to try and learn more about how we can control it say by changing her diet (even though alcohol/caffeine are the big triggers and unless she is sneaking out at night she does not get this stuff).
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> He did see her in one of her fits and he said she was def refluxing as she coughed and if he did see it he would swear she has whooping cough. He also thinks she has what they call a cough tic…this is were the brain keeps telling her to cough…so while she was in the fit the nurse ran and got her apple juice and while she was drinking it he was asking her about her pretty hat and she stopped coughing…..so more or less she gets herself all worked up and cant stop coughing.
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> He now more or less said he agrees it is prob not asthma…so we are taking away the Albutroil but keeping the pulicort and uping it to twice a day till winter is over (not agree 100% with that..but will do it). We are also taking away the singular.
> So she will only be on AR meds 4 ml twice a day and pulicort 2 times a day.
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> So for now im going to learn all I can on LRP/AR and read more on the cough tic.
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> Thanks for all you posts and support!
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January 29, 2013 at 1:15 am #71553AnonymousInactivemy daughter had large tonsils and adenoids. She developed obstructive sleep apnea because of them being so large. she was fine when she was awake–but as soon as she fell asleep, she sounded like she was struggling to breath.
She did not develope the obstructive sleep apnea until after she had her fundo at almost 10 months old. She had been failure to thrive since birth–even after her fundo, when she could keep food down, she continued to be failure to thrive. We dealt with one episode of esophageal thrush where she would refuse to eat, or she would chew her food and then spit it out—–a good course of diflucan had her eating, sleeping and gaining weight–until she got sick.We finally saw a pediatric ENT and she told me that obstructive sleep apnea can cause a child to be failure to thrive because they produce most of the growth hormone in the deepest stages of sleep—since she was always struggling to breath–it would partially wake her throughout the night.Sylvia had her tonsils and adenoids removed a week after she turned 2—she only weighed 22 lbs. She also had an inguinal hernia repaired the same day. The doc told me that when sylvia went to sleep, her tonsils were touching. She also told me that they were full of debris.Interstingly enough, sylvia had never had a sore throat, that we were aware of, until after her surgery was already scheduled.All but one of my 6 girls have had very large tonsils. 5 of my girls have had their tonsils out. I had large tonsils out and had them removed when I was 24—you know how they say it is so much worse when you are older to have your tonsils out?——–It’s worse than they tell you!!!!January 29, 2013 at 3:05 pm #71555AnonymousInactiveDid she cough at all?
January 29, 2013 at 8:46 pm #71559AnonymousInactivesylvia did not cough that I can remember–but she would sometimes sound like she was gasping for air.
When you talk about the cough tic, it reminds me of something another one of my children did. He would constantly clear his throat–it was driving us crazy. we finally took him in to the ENT and were told that he had polyps on his vocal chords. I don’t know what caused them, but the constant throat clearing was just making them worse. I think they may have put him on an inhaler for a little while and they also had him go to speech therapy to teach him to stop abusing his voice. It all eventually went away–but my son is now almost 30—and he has had horrible allergies since he was young. Don’t know if you can glean anything from all of that.
My sylvia looks like she has thrush–she is on antibiotics—what a pain. After 9 kids, this is the first time I have ever had a child get impetigo. I don’t want to go back in to the doc to confirm thrush—I’m almost better at diagnosing things than he is.
When she got esophageal thrush as a baby, our ped gi thought that we should probably put her on a course of diflucan every time she had antibiotics. She really hasn’t had antibiotics very often.
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