Under what circums, is it OK to email Dr. P?

[Anonymous]

any thoughts?

[hellbennt]

I happen to be on the computer ATM (at the moment), so I’ll keep answering for now

I would say after you’ve gone to groupie/intro and clicked on ‘finding a specialist near you’ and looked to see if there’s anyone listed near you. I would even contact marci-kids to see if they have a dr that works with them/supports their doses/research near you.

then, after trying different doctors and no one takes you seriously, I would find SOMEONE who is at least willing to learn a bit more. then I would contact marci-kids/dr philips. HTH (hope this helps)

[Anonymous]

Great, thank you, will do!

[hellbennt]

thanks for the signature!

I would say the neck-twisting sounds like a Sandifer’s symptom? also from ‘groupie intro’ there’s a ‘section’ about Sandifers. If you feel that your baby is exhibiting Sandifer’s symptoms, then I would use this as ‘evidence’ to your doctor as to WHY your baby needs more/different, etc. meds. I say FAX your doctor.

FAX FAX FAX the dr

dont wait for a call…

start off w/ a THANK YOU

keep it short & sweet

stick to the facts (no feelings and no rambling emotions)

state current meds, doses, symptoms

make request- flat out- short & sweet

THANK AGAIN

follow up by calling office to say fax was sent

call again later to discuss requests in fax, ie: have you called in the increased prescription yet? THANK YOU

sample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325

[Anonymous]

I agree with Laura. If your doc won’t listen, then you can ask Dr. P. to speak to him/her. But, he’ll probably recommend Zegerid.

[Author]

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