Home › Forums › Infant Reflux Support › HELP!!! › Twins at 3.5 months old – wits end
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January 17, 2013 at 3:37 pm #71444hellbenntKeymaster
any updates? the site has been over-run with spam; I’m trying to clear it up! I hope it hasn’t scared you off
January 27, 2013 at 8:32 pm #71537AnonymousInactiveAs an update: they are now almost 6 months old. And the feeding aversion is gone for the most part. Ethan is off prevacid 100% for almost a week now and no issues….and one big benefit is he can make bowel movements on his own now every day, whereas before he needed a suppository every 3-4 days to go. Lougan is still on prevacid, but we are starting to cut his dose down as well. Both are eating around 800-1000ml per day, only problem is they still have 2 night waking to eat, but we have been weaning those down in volume and its resulted in more daytime intake thankfully. Next step will be to water the nighttime feeds down (as we have gotten them down to 80ml feeds now at night and daytime is always 120-150ml per feed).
January 27, 2013 at 8:56 pm #71539hellbenntKeymaster<font color="#000e00"
glad to read your news!
so, what helped? what worked?
what advice to you have for others?
can you recommend your ped GI here (or not! write those drs that you don’t recommend, too!)
Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660
thanks!
hellbennt2013-01-28 16:02:54
January 28, 2013 at 2:25 am #71541AnonymousInactiveI am SO happy that your little ones are doing better!!!! I hope that soon Lougan can be off the Prevacid too.
I also am curious as to what has helped your boys get to this point.
January 28, 2013 at 8:46 am #71544AnonymousInactiveIt hard to say exactly what was the magic cure, and to be completely honest I beleive it was more about them getting older and stronger than anything else. Ethan started to roll around a lot about a month or so ago, and now actually sleeps on his belly – doesn’t matter how many times you turn him over, he rolls back on his belly. So with Ethan working on his core seemed to make the constant spit up go away, and then we just weaned him off Prevacid over the course of about 2 weeks. I guess I could definately say that what helped with their “pain” from reflux was the Prevacid – hands down, guaranteed. The issue we had then (if you’ve read through this thread), once the pain was under control, was the bottle aversion associating eating with pain. What helped with that was the advise from the OT about never forcing the situation – read their cues, and if they only eat an ounce and then turn their head away, that’s it – stop. So that helped we beleive turn around their aversion pretty quickly (caught it soon enough that it wasn’t quite that hard wired in their brains).
With Logan, he doesn’t have near a strong a core as Ethan now does, and he spits up pretty much every meal about a half ounce to an ounce. Sometimes he will spit up like 4-5 times after a feeding (makes you wonder how much of it he kept down) – but they are both growing strong, and are in the 25th percentile, so he must not be loosing all that much from spitting up. We’ve only kept Logan on the Prevacid becuase his spit up is still constant – but he doesn’t mind it happeneing like he did before.I guess at the end of the day it was likely a combination of things, and we will never know exactly what helped and what didn’t – just happy the worst seems to be over and happy that they signaficantly improved by 6 months old.February 3, 2013 at 12:19 am #71596AnonymousInactiveHope you don’t mind me asking…Did you ever try probiotics and/or enzymes? If so, did they help or not? The bottom line is that your little ones are doing better 🙂 but just curious if you tried em or not.
February 3, 2013 at 1:05 pm #71600hellbenntKeymasterI’d also like a dr review…the good & the bad…thanks!
February 4, 2013 at 8:26 am #71601AnonymousInactiveWe tried the probiotics/enzymes for 3 weeks, and it didn’t really seem to do much of anything except eventually they started spitting up immediately after giving it to them so we just stopped. If it would have helped with the constapation we would have kept it going.
We never actually got in to a pediatric GI, only family doctor and pedeatrician. Both were pretty good, but rather not share the names. The OT and feeding therapists at the childrens hospital in Calgary were really good – don’t recall their names though.February 4, 2013 at 11:31 am #71603AnonymousInactiveWell, that is too bad that the probiotics and enzymes didn’t help. Most people find that they do help but not all. I don’t know if they brand you tried had the enzymes and probiotics together, but if you wanted you could try a brand that had them separate. Some babies with reflux are helped a lot with just probiotics. But every baby is different and what helps one may not help the other.
I hope that you keep finding answers and your little ones continue to get better.
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