my son is mspi as well as intolerant to wheat/gluten. no testing since these are intolerances. its stinks though…its hard for me to think of things for him to eat sometimes.
Well, it was too good to be true, at least with the milk trial. We are taking him off milk again and putting him back on EO28. He’s still off meds, though, so at least one good thing is happening.
I am sorry the milk didn’t work out. We too have tried milk and it seems to build up in his system and then one day – it is just too much for him to take. Maybe at 2 1/2 ? Hey, at least you are med free! Nice to be free of the medicine schedule!