The Nutritionist’s response to my dh

[Anonymous]

Dipping must be a big stage which of course Alexis missed! She can’t stand dipping any of her food! Ranch dressing was also a suggestion, yeah right she would run the other way! She doesn’t even dip her french fries in ketcup. No dipping what so ever even now, she thinks it is disgusting! Our Peds MD’s daughter is going on 7 years old and has been under the 5% her entire life and she is just completely healthy! Our peds MD just wants Alexis and Taylor to maintain their percentiles, if they drop it has to be a very large drop for her to be concern, the dietician of course is much more concerned when this happens. I just think, as long as the child is healthy, keep on offering the foods, get some help with therapy things will get better! Why a tube now that he is over a year old? Don’t they think if he gets a NG tube he would pull it out and have even more aversions?

[Anonymous]

Isaac is 23lbs and 32inches long and trust me we are not worried about him being too skinny it is just the non eating that really worries us. She even had the nerve to say that he was at a low weight. We know he doesn’t eat enough right now but when she broke out a feeding tube I lost so much respect for her as a nutritionist…I really think she was just trying to scare us or something ugghh.

We are waiting on EI to call us to start therapy so i don’t even know when that will happen.

[Anonymous]

Tyler is 9 days older than Isaac and his height and weight are exactly the same as Isaac’s. He has dropped from the 25% to the 10% over the last 6 months but his doctors are not worried. He eats alot but doesnt seem to put on weight easily. Our GI doc seemed to think that babies with intestinal problems such as reflux, MSPI are always low on the weight charts but still grow up healthy. I know your worries are more in relation to eating than weight, but just wanted to let you know that I have the same worries about weight but if the doctors arent worried then I’m not going to either. Feeding tube sounds like a backward step to me when you are trying to teach him to eat more.

bree&tysmom2007-1-19 5:41:37

[Anonymous]

I have said this before – as a mom of a fed tube baby, you will know if it *ever* comes the day when you need one… Isaac seems like he is healthy – i do understand all your concerns about eating and feeding himself because they are part of *normal* development, although i do not want to say there is a norm. Anything you can do to help him get there will be great (all therapies etc). But the dietician does not seem to get it!

[Anonymous]

Thais-I know! I think she just really wanted to scare us into doing whatever she says…..which basically she tells us to give him stuff that we told her that he hates. I just feel a tube is not even an option now and I am also wondering why would she speculate on that b/c that would be the ped gi’s job-and let me tell you that is not something he has ever mentioned! Her response to us saying that he just doesn’t like the foods she tells us to give him is they have to try it 20+ times before they will like it sometimes-yeah like this is the time for that!

Amber-We had a drop in just 3 months so the ped said that his “growth curve” was not staying consistent or slowly dropping. Then he lost weight which he still has not put back on but again the weight doesn’t worry me so much b/c dh and I are not big people by any means We just need to supplement him until we get feeding therapy going hopefully

[Anonymous]

I’m just seeing this thread now for some reason. I’m sorry to hear about your nutritionist’s response. How infuritating! I hope you can find another one that you can work with and who is more understanding of your situation. I think even with nutritionists and doctors you have to take what they say with a grain of salt. You know your child. She sees your child very briefly here and there, and for the most part is probably going “by the book”, which is a good starting place, but obviously needs to be adjusted for each individual child. In my opinion, the best thing you could do is listen to their advice, then alter it to fit your child. We also had to take things in to our own hands with Bryce when the advice our nutritionist was giving us wasn’t working for him. It ended up being just what he needed, and he did much better after that.

As for the tube, I agree that it should be more of a last resort, and only if he’s not growing, etc.

Good luck with everything.

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