Sensory issues

[Anonymous]

Hi,

A visit with a occupational therapist said my little guy with the reflux, hypotonia and sleeping issues said he might have sensory issues.

If your child had or has it, how was it diagnosed and how do you help them?

Thanks,

Jessica

[hellbennt]

an occupational therapist that specializes in sensory issues is usually the way it is diagnosed and treated

https://www.infantreflux.org/forum/forum_posts.asp?TID=10631&KW=sensory+integration

https://www.infantreflux.org/forum/forum_posts.asp?TID=4048&KW=sensory+integration

[Anonymous]

Hi my children don’t have hypotonia although one of them is double jointed with some of her joints but definately sensory issues are there big time, i have read somewhere that reflux and sensory issues go together. Can i ask how old your refluxer is, mine are 9 and nearly 5yrs old my 9yr old also has a lot of learning difficulties i know it dylsexia and dyscalcula she not been diagnosed as over in the uk they won’t due to the cost and i can’t afford to get her diagnosed. I sometimes wonder if the reflux as to do with it as she has problems with her sleep. They have both been under a speech therapist my 9yr old as just been released from there services she was found to be 2yrs immature at the age of 6 in speech and language. My youngest is still medicated 20mg of omeprazole but my 9yr old as had the fundo op but i don’t think it has worked as she still suffers from clearing her throat and belly aches which is what it was like before so she is going to have another barium meal to see what is happening. Both have had the ph study and endoscopies and barium meals. We think it is a immature sphincter in the oesophagus i also clear my throat and suffer from bouts of heart burn never been tested my son who is 20 is the same he also had severe asthma up until the age of 8 they said it is linked. So could be a family thing oh and yes my dad as had the fundo too. Sharon x

[Anonymous]

my daughter that had to have a fundo did not seem to have any sensory issues–but i have a son who is now 22—and he seems to have sensory issues—i am also pretty sure that he had MSPI as an infant. he spit up all the time and was extremely small and always looked sickly—we just didn’t know about infant reflux back then–or MSPI. we thought he might be autistic. he startled very easily and was sensitive to sound–he also had echolalia and spoke jibberish, but he had all the intonations of regular speech. he would become mesmerized by the sound of the vaccume or flashing lights, and would rock back and forth on his hands and knees until you turned the vaccum off.

he was two years in a developmental preschool and then went on to develope pretty normally. we do notice that he has trouble when we send him to the store with instructions for specific things. very often he will get the wrong thing, not be able to find something, or forget something. he also is still very sensitive to light and sounds and he has to rock in a rocking chair—he can’t sit still.

this is where it gets interesting for our family. i started rocking as an infant and at almost 49 years old i continue to have a very strong need to be in a rocking chair—i rarely sit still. a glider does not cut it for me very well–it has to be a rocking motion. i also have become sensitive to bright lights and loud noises. walking into a well-lit, noisy room directly from a dark room can throw me into a state of depersonalization almost instantly–it is almost as if my senses get overloaded. it used to scare me when i would get this feeling. i have learned to ignore it and it eventually goes away. i had bilateral shingles when i was about 4 years old. back then, it was rare to get shingles at that age and even more rare to get them bilaterally. i have a scar on my lower back that has no sensation–which means i must have gotten some nerve damage from the shingles. i did not get pain from the shingles, which means it could have possibly backed up my nerves and gone into the spinal column and caused an overall sensitization–a psychiatrists also told me that it could affect my brain also.

i have 3 other children that also need to rock. we have a houseful of people that just can’t sit still—i will become almost agitated sometime s if i can’t rock. someone once told me that it caused alpha waves in the brain—which would be why it helps calm me. my mother also told me she saw an article recently that talked about rocking and seratonin somehow being connected. i’m still waiting for her to send it to me.

anyway, i know this doesn’t answer the specific questions you asked, but i just wanted to let you know that there are some of us out here who understand what it is like to deal with being oversensitive to your environment–but that you can also find ways to work with it and around it.

granted, none of us have an actual diagnosis of sensory issues, but i know we seem to fit the profile pretty well.

life is such an adventure!!

[Author]

Posts