Saw the ID

[Anonymous]

I’m not quite sure how I feel about what they said. First off, I ended up seeing the director of the ped ID department at Miaimi Children’s, which is good. She said that they have been doing lots of studies on C-Diff in Europe on infants. They are finding that infants often don’t produce the amount of receptors needed to allow the c-diff toxins to bind to the intestines and cause damage to the GI. This is why many docs don’t treat the C-Diff unless the baby is symptomatyic or have a + biopsy. Allthough my baby was symptomatic for the first 3 months of life, he hasn’t been for the past month and a half. They don’t think we should treat him right now which is fine with me…well except I am terrified my 2 and 4 yr old will get it. They did however say the amont of Flagyl he was taking wasn’t enough and that may be why he has developed a resistence to it allready. They also said he should have been on the normal probiotic as well as the florastor while we were on the antibiotics. I learned this a little too late. Point here is…..we are going to wiat and see what happens and if we do end up having to treat it, I am confident they will go about it the right way giving him the best combination of probiotics and the right strength of antibiotics to hopefully kick it. Until then we wait….and hope he gets better and my family remains C-Diff free.

[Anonymous]

Chris,

That is great news I think! I mean what you found out is both great and bad I guess. But at least you know in the future you have the right people to look to. I hope it all continues to go well.

[hellbennt]

good news!

I’m in Miami (well, not at the moment, LOL!)

which brings me to my thought:

I’d like to Stickie some of the C-diff info since this is all such valuable info!!!

So: someone please remind me

(or, even make one page w/ the links to the various threads we’ve had)

sometime at the end of next week

thanks!

[Anonymous]

I could find all the C-diff threads pretty easily, I just don’t know how to compile them. I bet I could figure it out though. I’ll work on that.

[Anonymous]

Chris,

I’m so happy you’ve found these drs to help your little guy. Sounds like they know what they’re doing & there’s a plain of action. Optimistic thoughts going your way…

[Anonymous]

I think it sounds like good news, Chris! Great plan of action! At least they will now how to tackle it shoud things flare up in the future. Prayers with you that your family stays C-diff free!

[Author]

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