Prevacid, solutab or ?

[hellbennt]

one more thought: have you had a Swallow study done? you might want to get one so you can tell what’s happening when she’s eating (you say you hear coughing/gulping)…

[Anonymous]

actually the doctor give us reglan, instead trying prevacid first, eventhough i’m pushing for prevacid.
he gave chloe 1ml 3-4 times a day.
i’m sooooo afraid to give it to her.
the swallow study, i mentioned the gulping and the cough but the doctor didn’t mention anything.
amber, if you ask you gi about the outgrow dge, please let me know!

i found this article
http://www.infantrefluxdisease.com/gastroparesis.php

said on infant dge can be outgrow…

[Anonymous]

Thanks for the article it had some really great info and pretty much covered all the bases…

I guess, from reading the article, the Drs thought is that your LO is refluxing and if she were on a motility drug like reglan(or EES) that she would move her food faster so that there will be nothing there to reflux. Then she’ll be more comfortable and wouldn’t need the PPI to control any pain that refluxing may cause. So, I would call your Ped and ask them to try the EES BEFORE you try the reglan.

Also, the last part of that article says that it can be outgrown…”Fortunately, as with reflux, most babies will outgrow their DGE problems as their digestive track matures and becomes more coordinated.”…So, that’s GREAT news. BUT I’ll be sure to ask our GI and when I do I’ll be sure to update you! Let me know if you get the EES.

ETA: Meant to say…She should start eating better after a few days of the emycin. It’s taken my DD about 9 days before we saw any improvements. So, you may have to give it a little time before writing it off…

valentine4mommy2008-09-30 11:47:58

[Anonymous]

EES is being discoutinued so I woudln’t relay on that…sorry. We are weaing.

EES also has the side affedt that is *can* cause C-diff. An infection. It’s not fun. Taht said Jedd has been on EES daily for about a year and has never gotten C-Diff. Knock on wood. I will say that he has something going on right now because we have taken him OFF the EES.. His GI tract is a litte screwy right now. We are tryinig to balance out he “floura” of his tract right now.

DGE can be outgrown, but it all depends on what kind it is. If if is cause dbyt he NON contractions in the GI tract then NO. If it is viral induced then yes, it can be outgrown.

The test for it is called a Gastric Emptying Scan or GES (some call it a milk scan as well, I think) Most of th eladies I know they call it a GES at their children’s hosptial.

The other test is called an Antro-Duodinal Manometry test. THIS one is VERY VERY reliable as it test for the contractions through the lower stoamch and throughout the upper portion o fthe intestines.

Likw Laura said, I’d do amn EDG scope and “see” what is going on as well. A Modified Barium Swallow Study or MBSS would not be a bad idea either. Esp. if you are hearing coughing or sputtering while eating.

Have you had an UGI done to make sure there are no atresias in the esophagus?? Those are small holes.

ALSO I truly believe tha tsome of Jedd’s DGE was caused by his body’s need for a high dose of a PPI. Seriooulsy. I think his dose was sooooo high it caused his belly to empty slower.

The theory is this, the PPI stops the acid production in teh proton pumps, RIGHT…..so if you ahve to shut them off toooo much, then there is not enough acid in the stomach to digest food. Thus causeing DGE…SEE WHAT I MEAN?????

I have talked with our GI about htis and he says that very well coudl have bee what was going on.

Jedd was off ALL meds for tesing fo rhe A&D test and he seemed to do great. All the testing came back fine. AS soon as we startee back on meds…..he started vomitting horribly and had DGE again!!!!! That very night!!!!!!

He came off meds because he had an Impendance probe done so he need to be off them. The probe shoed enough acidic episodes to go back on the full dose of his Prilosec. We ere not seeing any signs of reflux but….he was storing some in his liver. So you can be off of meds for about 2-4 weeks and not see any affects. Such was the case with us.

I actually cut him back when we came home and after about 1.5 months we had to go back ot the high normal dose. I was seeeing pain while eating, burping, and all the signs of needing to be back up n the dose at full strengthn.

If you google DGE and PPIs you will ifnd meidcla studies that oproves that there are links to DGE and the use of high dose of PPIs. Jedd is livving proof.

That is why we are tryiing to wean over to a H2blocker right now. We seem to be having some success doing it as well.

[Anonymous]

My daughter has been on erythromycin for about 3 days now. So far no difference in her eating patterns… YET. Hopefully we’ll see some improvements like Amber after a week or so.

She does seem a little bit fussier than normal too btw. I’m assuming it’s tummy cramps. Poor baby. She’s also pooping more than normal. She used to go once every 2-3 days, now it’s 1-2x a day! Hopefully all the nutrients are being absorbed before it passes.

[Anonymous]

JESSICA~ I talked w/our GI about the discontinuing of EES and even though he said that “yes” they are, he also said that they will still be giving it in another form. It’ll have to be made into a suspension, but that they’ll still have the emycin, just diff. from before. Do you know anything about it? He said it was going to be available there at CHKD. Just thought I’d let you know…

I’d still try the emycin even though it’s supposed to be discont. b/c if you DON’T see any improvements then you know it’s not an issue and you didn’t have to go through possible scary side effects for nothing, kwim?!

[Anonymous]

jessica, i think the acid help the food digest faster is make sense.
since chloe dose of zantac been up from 1 ml to 2 ml, she went to feeding strike.
do you think because not enough acid in her stomach?
and we gonna meet doctor again next week, but the doctor ask us to give reglan and if she fussy than usual, he ask her to take her off from reglan asap.
i don’t know, i give her reglan this morning, half dose, how long it supposed to take effect?
and if the high dose of zanta causing this dge, how long i suppose to wait to get back to normal?
and ees has scary side effect too?

[Anonymous]

I agree, there has to be enough acid in the stomach in order for food to digest properly. That said…some babies NEED that high dose to feel better and so therefore DGE MAY be a side effect of the high dosed PPI. Thankfully the emycin helps TREMENDOUSLY. There are NO serious side effects associated w/EES. Only tw/he reglan.

ETA: As far as the Cdiff that Jessica is referring to…you can start probiotics to prevent that from happening. IF it even were to happen, not always the case.

I don’t think that zantac is strong enough to cause DGE, I think only the PPIs can do this. I think that your DD is either suffering from silent reflux and needs to be on a PPI or you should consider motility issues and try the EES or reglan. Since you’ve started her this morning I’d give a few days before knowing if it helps. Jessica would be able to better tell you how long before it kicks in.

Jolene~ My DD too seemed to be in a little discomfort for the first few days. BUT I think it was just her body getting used to it and now, no problems whatsoever! She is improving w/her food intake(went from 15-20oz/day to 24-30oz+solids/day) and her BMs have regulated. I think it’s doing the job for Audrey if you’ve noticed an increase in her BMs/day. Maybe a few more days and you’ll see her eating better too!!! That’s kind of the way it’s happened for Averi, so…GOOD LUCK!!!

valentine4mommy2008-09-30 14:01:38

[Anonymous]

Amber, that’s quite an increase! That’s awesome! My dd is currently getting only 15-20 oz. Hopefully she’ll get to where Averi is now! How often are you giving her the emycin? Audrey’s on 1.4 mL 3x a day. She absolutely hates the taste and has gagged and thrown up a few times when I’m giving it to her so I’ve been mixing it w/ her cereal. How do you give it?

[Anonymous]

amber, you soooo lucky can get her 24-30oz, that what my dd used to drink!
i’m lucky if i can get her 15oz, yesterday she take 5oz at 2am and take 5oz at 7.30pm, almost 15hours!
i think if has reflux, more to silent reflux (with the gulping, swallowing sound etc) with minimum spit up.
i’ll ask the doctor eec.
when you will take her off from ees? what you gi said about this?

[Anonymous]

Jolene~ I know, it’s been such a blessing! I have to say, I wanted to fight the GI at first…BUT…I know she had slight improvements when she was on it a month or so before her endoscopies. So, I figured we’d give it 2 weeks if nothing, then we’d discuss a med change. Also, she hasn’t been posturing like before starting the emycin! She gets 1ml 4x/day. Averi is JUST AS BAD when it comes to meds. FINALLY, I have been doing this…Right before her bottle I put a Xcut nipple in her mouth, she begins to suck & & I squirt directly in the nipple tip the med, she slurps it down, immediately I pop in the bottle w/her formula and she’s none the wiser! This has been a recent breakthrough discovery(LOL). ALso, w/her prevacid I have been popping the pill in her cheek and immediately giving her a bottle w/no more than an oz of plain water. She gobbles it up and I don’t have to deal w/her spitting any of it out. I’m tellin you this girl REFUSES meds and this has been the only way to get them down her w/absolutely NO PROBLEMS. Before I used to syringe the emycin in the side of her mouth while she was eating her bottle, but I think that was making her stop eating b/c of the taste. So, maybe these few tricks will help you get Audrey to take the meds easier!!! I know she has an aversion and I know you don’t think it’s the nipple, but I SWEAR by the MAM bottles…Have you taken a look at them?

Chloemommy~ Averi USED to do that. She would go HOURS before wanting to eat and TBH, that’s a sign of DGE. I agree, your DD does sound to have silent reflux and I would PUSH for your Ped to get you the RX for prevacid. I’m not sure how long Averi has to be on the med(EES). It’s something that will be dicussed at Averi’s next GI appt(NOV). So, hopefully it’s related to her meds and once her reflux GOES AWAY she’ll no longer have DGE issues!!!

[Anonymous]

i’ll be checking with you, please let me know about eec (how long averi will be in this) since i dont go to gi.
jolene, chloe almost the same age as audrey, and also fussy eater!
i went to doctor yesterday, all of them around 4-7 month, have the same problem as chloe!

[Anonymous]

and how much audrey weight?
chloe is 17lbs, only gain 2 oz since 3 weeks ago…not good!

[Anonymous]

valentine4mommy wrote: JESSICA~ I talked w/our GI about the discontinuing of EES and even though he said that “yes” they are, he also said that they will still be giving it in another form. It’ll have to be made into a suspension, but that they’ll still have the emycin, just diff. from before. Do you know anything about it? He said it was going to be available there at CHKD. Just thought I’d let you know…

I’d still try the emycin even though it’s supposed to be discont. b/c if you DON’T see any improvements then you know it’s not an issue and you didn’t have to go through possible scary side effects for nothing, kwim?!

I talked to the head pharmacist an dhe is the onle who told me it is being DX. I also know alo to fkiddos on line who use it and they are being told the same thing by their phamracies. They may have made a course of action as to what to do by now. Yes they are still going to have it in th epill form. NOt sure wha the cost will be from the ins. co on suspeending it though. It may be cheaper jsut to split and crush it at home.

*Jessica*2008-09-30 15:41:07

[Anonymous]

ChloeMommy wrote: jessica, i think the acid help the food digest faster is make sense.
since chloe dose of zantac been up from 1 ml to 2 ml, she went to feeding strike.
do you think because not enough acid in her stomach?
and we gonna meet doctor again next week, but the doctor ask us to give reglan and if she fussy than usual, he ask her to take her off from reglan asap.
i don’t know, i give her reglan this morning, half dose, how long it supposed to take effect?
and if the high dose of zanta causing this dge, how long i suppose to wait to get back to normal?
and ees has scary side effect too?

I don’t think it would be too muhc of an issue with an H2Blocker because the H2’s just deaden the acid that is already in the stomach and an PPI will stop the pumps from making any acid.

That said, yes it would not surprise me if that could be the issue inand of itself. I would ride it out for a fe wdays with both new meds and see what happens over the course of the time.

How often do you give the Zantac at that dose.

With the Reglan we say right away a lessening of vomitting. But we started at the full dose. Reglan is also very weight sensitive. So if yo uahve a weight gain, you need to up the dose. Even 1/5 pound will do it.

So if you only gave 1/5 the dose it may not have been anywhere near high enough to do very much, sorry.

Chloe’smommy is right all you ahve to do it give a probiotic and it should couter affect the EES and it’s side affect. Jedd just eats/drinks yogurt. His issues right now are due to the fact that we have completely cut off the EES all together. So his floura needs to readjust fo rth etime being. It has taken about a week. Today was hisfist normal day.

[Author]

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