Prevacid, solutab or ?

[Anonymous]

I’ve been posting this couple days.
Chloe is on feeding strike again since last friday, we took of the Zantac on Saturday, we know zantac not working anymore on her.
She starting reduce her intake of breastmilk (pumping) and soy milk since Monday (cut half her intake) but totally on strike on Friday.
She’s not crying, fussing , she just doesn’t want to be fed.
She’s not crying on bottle or anything, she just play with the nipple, thats it.
Since friday she’s only take 4-6 oz/day.
We are going to the doctor today and I don’t know what should I ask.
Chloe is in unique situation , she never cry in pain from the start, she just stop eating/drinking.
So we never really sure what situation with her.
If I ask for the prevacid, which one better? and where can I buy caracream?
And what is DGE? I know is delayed gastric emptying, but how do I know if my chloe has one?
During feeding strike, she could go 12-13 hours without feeding, when I offer her breast or bottle, she just chewing the nipple.
I know she’s hungry since she always move her mouth.
If she has reflux, I would say she the silent one, since she barely spit up.
Please help!!!
I don’t know what to do, any suggestion will be appreciated.
Oh since she off from Zantac, she sleeps through the night (12 hours) when she’s on Zantac, she like toss and turn whole night.

[hellbennt]

Caracream: https://www.infantreflux.org/forum/forum_posts.asp?TID=11191&PID=94236#94236

[Anonymous]

Alot of times the DR will just RX some type of motility med. for it instead of doing testing. The testing for DGE is very unreliable. VERY….my GI fully admits this. There is only one test that is compeltely reliable and you can only for that one IF you have a G tube. Jedd had that one done.

Here is my best attempt at explaining DGE.

In normal epmptying the stomach has contracitions. These contractions go througt th eGI system in order to “move” food through the tract in order to gain the vitamins and minerals needed to grow.

IN DGE either the stomach or part of the GI tract does not move properly or in sync enough to move the food through properly.

The contractions can be too slow (DGE) or too fast (Dumping Syndrome) or can be intermittant causing BOTH issue to occur in the same child.

If the DGE is bad enough and meds do not work I know some childrne who have had success with doing Botox injection intot he pyloris to help. This is temp. it lasts about 6 months and must be done inthe OR only for obvious reasons.

Dumping syndrome is treated with either continuos feeds with the pump or adding corn starch to foods to slow the process down. These kids can have extremly LOW blood sugars. Hence the fact that many of them ar etube fed so that food is almost always present in the body. At all hours of the day including while sleeping.

The hardest to treat in DGE. Currently there are 2 drugs apporved by the FDA for use to treat it. Reglan and Erythromycin. EES is getting ready to discoutinue making it so tha twillleave only Reglan. Many kids don’t do well on Reglan.

Propulsid “can” be sued but the hcild must pass the standards fo rthe drug trials in order to get an RX fo rit. Even then they are monitored extremely closely by cardiology and GI and pedi. whiel taking the drug. It has cardio side affects which is why Propulsid was removed form the US market. It is however still approved for use in Europe nad Canada.

The *quick* fix for some children is jsut to do the med and if the symptoms dissapear or get drastically better, they continue on the meds. That is just the way it is with DGE…unfortunetly.

Here is some more info that will hlep you to understand DGE better…

Here is the homepage for that e-magazine:

http://www.complexchild.com/

Here is the section on DGE and motility issues…

http://complexchild.com/gi.html

In the above link yo uwill see the word wotility that will answer TONS of questions about DGE.

Hope this hleps you out alot…Jessica

[Anonymous]

jessica, the doctor prescribe reglan, i asked for prevacid but the doctor ask me to try reglan.
i’m sooo worry with the side effect!
she used to eat 25-30 oz/day, since last week, she’s only taking 5-8oz.
suddenly she lost appetite.
she only gain 2 oz for 1.5 month.
is dge proble can suddenly appears? when it will go away?

[Anonymous]

Yes DGE can be intermittant in the same child. A child can have Viral induced DGE as well. That is caused by a virus as apposed to regular DGE caused by improper spams of the GI tract. Viral indeuced DGE will go away with time the DGE caused by incorrect spams will not ever go away…:(

I know an adult hwo is now J tube fed ( I have acutally met her 2s’x) and she has viral indeced DGE. Her’s was soo bad that they went ahead and placed the G and J tubes so tha tshe would stop loosing weight. I met her before an dafter letme tellyo she lost ALOT of weight ALOT!!!! She drains her G tube because her stomach is not moving and feed into the J tube. That way she can get her nutrition to stay alove and stop wasting away. LOL

I know some here may disagree with em but go ahead and dothe Reglan really it will be okay. We did it for 16 weeks and Jedd is NO worse for wear.

The side affects are completely reversible. I nkow some here may say they aren’t bu t htey are…I assure. We reasearch it to the hilt before giving Jedd any of it.

As long as you monitor for the side affects you will be safe.

Did they tell you how to reverse the side affects??? They should have.

If yo usee any twitching or eye strains or eye ticks or what may looke like a sueisure STOP the meds and give a full dose of Benedryl for the child’s body weight and age.

If the hcild is too young for Benedryl call the pharmacy and tell them and they pharmacist will give you the dose.

IF you want you can go to the ER. As soon as you arrive make sure to tell them your child is taking Reglan. If they mistakenly think that your child is havin gseisures the meds for seisures will NOT stop the side affects and can cause more damge. MAKE sure to TELL them each dr who comes in repeat it….EVERY time.

But really there is no need to go to the ER the Benedryl will take care of it. If the one full dose doesn’t do the trick reapeat the dos ein the proper time frame.

Jedd’s only side affect was serious irratability. He was what we call a “screamin’ deamon” it was horrid. Our EI team came to eval him while he was on it. After we took him off the team came back out for the 6 month review. They could not believe it was the same kid. VAST differnce in attitude and pleasantness.

BTW most of the kids who have the nuerological side affects are children with neurological impairments already. So if that (obviously) is not an issues your chances of seeign the side affects is even lower.

Also RElgan worked fantatically for Jedd and I mean fantastically. I realy did NOT want to come off of it. I now for a fact that it worked because I coudl drain his gastric contents before and after a dose and see a HUGE HUGE didffernce.

Before the med he would have about 70% of the feed left (that’s awful BTW) and then I would give that back into him along with his med. I would recheck and he would drop in 30 mins to about 3-5% left. HUGE HUGE deal with us!!!!!!

Becuase he was on such a high dose and was on it for 16 weeks it tok about a full month to get our happy baby back. He was taking 1.5mls 5x’s a day. Pretty high. He took it form about 9.5months until 11.5month give or take a bit he wieghed aobut 18 lbs at the time. (he was right at 19.5lbs at one year.)

Let me know if you have any other questions.

If the child is not fussing at all, then I would think it’s a motility issue and not GERD that is what I think your GI is thinking.

[Anonymous]

thank you!
But the problem is , Chloe has been a good eater, but at 4 month of age suddenly she on feeding strike, give her zantac , its good, she back to eating but not as much as she used too.
And then at 5 month, (last week) she starting reduce her intake again, and today she only take 5 oz only.
I heard with motility issue, there’s got to be vomiting or excessive spit up, but Chloe never vomiting and barely spit up.
I think if she really has a reflux, definitely the silent reflux.
Can you tell me what is the viral induce dge or dge spasm?
If Chloe has dge, but appears on the 4th month, what is this?

[Anonymous]

With DGE yes you can have the vomitting but if she is not tubed and you are demand feeding you will probably not see that as much. Does that make sense. You will just see food refusal.

In older children they just are not interested in eating at all. Or if they are to an age wher ethey like to eat but don’t understand that they will vomit it they eat too much Those kids wil eat and eat and eat until finally they burst open the flod gates and out it comes. Those kids have too be limited on what they eat and how high the fat contents are in the foods they do eat.

If you think the Zantac was making a differnce and you still have some at home I wou ldgo ahead nad use it. It’s not going to hurt anythign that’s for sue KWIM??

[Anonymous]

Oh sorry forgot to answer the ?? OOPPPSS

Viral indeiced is brought on by a virus. It iwll hang out and live in the GI tract basically wreaking havoc on the passage of foods. It can take months or years for this to clear up. For examply Jedd caught Hand foot and mouth. This complety ruined his motiltiy for months. It took aoubt 3 months to get him back up to par and even then, he was not all the way back up to normal pump and bolus feeds for him.

In “normal” DGE the body just plain doens’t wokr right. The spams or contractions throughout the GI tract jus tdon’ twrok right. There is NO cure for this.

Ther is a GI pacemaker but right now it is only approved for adults. I know I htink 1 chidl who is in the works to get approved for a sutdy trial of it in his body. The GI [pacemaker would work in the same amnner tha ta Cadio. pacemaker works. The GI one woudl cause the muscles inthe GI trac tto “do their job” and contract in a proper manner and contract together.

If this gets apporved fo ruse in chidlren it will be groundbreaking, really. It would be awondrful hting to have happen.

personally, I think since it works well in adults so far, tha tit wil jsut be amatter of time until the FDA approves it for hcildren. When they first do it, it will proebaly be alimited amount of children and then over time they would widen the criteria.

[Anonymous]

thanks jessica,
I’ll try to push the doctor for prevacid, you know when chloe eating/drinking a lot, she never vomit or barely spit up, so I don’t think its the motility issue.
Because when she spit up breastmilk, only spit up clear, or when on formula, she spit up cottage cheese appearance (but when she’s on Zantac, her spit up is formula like).

I just afraid if she keeps on her feeding strike, her stomach will get use to be fed only smaller amount, so its hard for her to recover her feeding…
Thank you for replying when nobody else does!

[Anonymous]

HHHMMM,

The clear makes sense as BM passes fast and that is what it wouldlook like when it comes up.

The cotage cheese I am GREATLY familiar with….LOL Jedd’s vomit looks like that. That is partially digested foods…EEEWWWWW

And yes, the stomach gets used to not stretching so I’d keep n top of thigns. I know it’s hard. I woudln’t worry about ath too much. That (not stretchign) normally happens in long term tube fed kiddos…not an issue with you…LOL

And yes, I try to answer even if I can only contribute a tiny but. I know what it feels ilke to search for answers and feel like you are the only one out t here!!!!!

Hey, I’ve even had some despare new Mom’s on P2P ask if they can call me in the middle of the night when I am online….LOL I jsut pass out my cell number…hehehehehehe

Sometimes it’s hard to communicate via just typing. but, we get it done, don’t we…LOL

Good Luck!!!!!

[Anonymous]

I just wanted to add that my DD is currently being treated for DGE. She is on erythromycin(EES). My DD also does not display the same symptoms as what you’d come across when researching DGE. She almost NEVER spits up and she has bmovements w/no problems(nowadays)…BUT…Like your DD she’s not eating well. I was hesitant to put her on the med given her “non”symptoms, but having been back on emycin for 11 days, she has been eating SOOO much better. Granted, it’s not every day, but it has GREATLY improved. So, basicly what I’m getting at is…maybe you could ask your Ped for emycin instead of reglan? Explain that you don’t believe she has DGE but if they insisted on her being treated that you would prefer emycin b/c it doesn’t have all the scary side effects. Just a thought! Hopefully you can also get the prevacid. GOOD LUCK!

[hellbennt]

I’m so sorry your baby has been suffering so much!

I really don’t know a lot about DGE. All I know is that there’s a test for it, but Jessica seems to know more about it? I don’t really know the answer, but from her posts it seems like her opinion is that the test for DGE isn’t all that reliable? I truly don’t know. I THOUGHT the test was called a milk scan. you might have to google it.

I don’t know WHY exactly your baby is on a feeding strike. It could be reflux, it could be DGE, it could be both. Maybe ask for a ph probe? this would measure the acid and see if it IS reflux (acid). Maybe ask for an endoscopy to see what’s going on in her esophogus? it could even be THRUSH in her esophogus making her uncomfortable. I think an endoscopy would find this?

[Anonymous]

the ees, what is the side effect?
i’m so stressfull right now, i’ve been sleepfeeding her and she still has this cough or gulping sound when drinking, and after that episode she discourage to drink….

[Anonymous]

and i heard infant can outgrow the dge? along with the gerd?
is that true?

[Anonymous]

From what I understand…the main side effects of erythromycin is stomach cramps. Hopefully it makes you feel better but my DD was extremely sensitive to diff. meds and she has done BEAUTIFULLY w/the emycin. She hasn’t had any problems. So, I would definitely go for it BEFORE the reglan. Also, I have no idea about whether or not they can outgrow the DGE. I thought so, but after reading what Jessica wrote, I don’t know. I’ll be asking our GI for sure about that one. Yes, they can outgrow the GERD. Usually b/t 9-12mths of age. Hopefully you’re able to get the right meds for your DD! Good Luck & keep us posted.

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