please give some advice

[Anonymous]

okay i feel like i have repeated myself like a million times so please forgive me. i feel like every time we take a step forward, the next day we take 2 steps back.

basically i switched dd to neocate about week ago. no change, somedays she is fine and today she was choking on her reflux all day. it was coming out her nose ect. it’s very painfull for her and for us to watch. i am constantly wondering if the prevacid is working. were on the compound and she’s at her max dose 30mg. i have the solutabs but her feeding is so errractic that i don’t think that the timing would work for us. what should i do?

we are waiting for her poop sample to come back. why is she still in pain. she doesn’t freak out when she eats only after she eats when the acid comes out of her nose and mouth and she has sandifers. are the meds not working??? i want to tear my hair out and try and figure out whats going on. any advice would help

[Anonymous]

hmmm
you prob already know this but meds dont stop spit up they just suppress acid.
are you sure she is in pain from the acid or is she just uncomfortable when the milk comes out her nose? my son screams when that happens but i know its not the acid being an issue.
have you considered trying compounded prevacid? that way you dont have to time with meals or anything. i imagine the solutabs are a pain in the butt with the timing and such a young baby. the timing really does make a big difference for many babies.
are you keeping her elevated most of the time?

[Anonymous]

she already is on the compounded prevacid. i just don’t know what to do anymore i just don’t think that it’s right at all. i don’t know if she is in pain from the acid or just the stuff coming up. oh well i guess this is a battle i am not going to win until she can talk

[Anonymous]

Did you know that the compounded Prevacid only is stable for about 2kws. Are you using it long that it could be ineffecive after that time? So sorry to hear that she and you are having such a ruff time.

Andrea

[Anonymous]

It is very hard to prepare a stable prevacid compound. That being said, some moms have had success with it. Hailey has a feeding aversion, and so I’ve always had the same issues with the solutabs (or delayed release meds)… it’s impossible to time if they won’t eat on command.

If you don’t want to try a switch to zegerid, which would help with the timing issues, then can you contact marci-kids and find out how you can get CaraCream. That might be an option for you. Then you can still use the prevacid, not worry about meals, and know that it would be stable.

Also, how many doses a day are you doing? Splitting the dose might help. My guess is that if she’s screaming and crying when she spits up (even when it doesn’t come out the nose) then she’s likely still in pain. Vomitting can be annoying and uncomfortable, but it shouldn’t hurt enough to really upset them unless it’s acidic (that’s just my opinion though).

Good luck. Hang in there. HUGS!

[Anonymous]

Also…..it can take two weeks to see a significant change with a new formula. If she’s MSPI it can take that long for all of the milk proteins to leave her sywtem.

So, I’d give it a little more time and also make sure her Prevacid Suspension is being prepared properly. The info for that is at http://www.marci-kids.com and in Laura’s intro (stickied under Introduce Yourself)….scroll down to PPI’s to find it.

If you ask for a two week supply instead of a month’s supply that can help with the stability issue.

[Anonymous]

thanks i am going to the pharmacy today and asking for a printout of what exactly is in the compounded prevacid. they told me only calc carb but, im not sure thats all there putting in yea the pharmacy is telling me that the months supply that they are giving me is stable for a whole month in the fridge. well i think thats a bunch of #$#$. so i am going to start to ask for a week supply. they are going to be pissed cause they made the impression on me that the compound was a pain in the but to make. well if they don’t make it that way i will show them what a pain in the but can be. hopefully you won’t see me on the news in jail

[Anonymous]

I also asked for a printout which is how I found out it wasn’t been made properly. They told me over and over again that it was unflavoured with no other ingredients. All I can say, is HA!

Also, make sure it’s done with sodium bicarbonate and not calcium carbonate. They both act as a buffer, but only the sodium bicarb also activates the proton pumps, which is why you don’t need to follow it up with a meal 30 minutes later.

Here is Joel’s reasoning for why that is true:

“One of the main ingredients in gripe water is sodium bicarbonate (baking soda), which is a natural antacid. Unfortunately, on its own sodium bicarb is not a very good antacid, which is why it is not sold as such. The reason for this is that, while it very effectively neutralizes stomach acid, it also activates or “turns on” the acid producing proton pumps in the stomach lining, causing them to produce even more acid. Magnesium hydroxide and calcium carbonate are more often used as antacids because they neutralize acid without turning on the proton pumps.

When combined with a Proton Pump Inhibitor (PPI) such as lansoprazole or omeprazole, sodium bicarbonate actually enhances the action of these drugs. In order for a PPI to inhibit or “block” proton pumps, the pumps must be in an active state. So when a PPI is combined with sodium bicarbonate, the bicarb neutralizes the acid, protecting the drug from degradation in the acid, and turns on the proton pumps, which are then blocked by the PPI. Zegerid is an FDA approved form of such a combination. It contains omeprazole, sodium bicarbonate, and a peach/mint flavoring.”

As for the one month supply, stick with your guns. When they talk about stability, they’re talking about tests they only did on maintaining a neutral ph of the drug and not the same kinds of tests that marci-kids did. Good luck with your pharmacy. Stay calm, but be strong.

[Anonymous]

thanks

[Author]

Posts