Home › Forums › Infant Reflux Support › Boo-Hoo! I need YOU! › Older DD and marriage suffering
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March 1, 2006 at 12:41 pm #2760AnonymousInactive
Hi everyone,
I’m pretty new to this board. I’ve gotten great input so far on various issues and I really appreciate it. We’re scheduled to see a pediatric GI tomorrow and have recently switched our regular pediatrician because our old one didn’t believe that DD had silent reflux. I’m hoping we’re on the road to recovery because, as my post subject heading says, I don’t think our family can take much more of this…
Our DD is 2 months old and, as near as I can tell, has had silent reflux since she was born. It took me about a month to figure it out – I thought the various symptoms were due to other things (a cold, gas, etc). We have an older DD who is 3 1/2. She has been a trooper through much of this but she’s reaching her limit lately.
DH or I have to hold DD#2 pretty much all day and all night. There are brief spans of time where we can set her down but I estimate that she is in our arms for 20-21 hours a day. It’s been like this for almost 2 months now. We take shifts at night sleeping in a recliner with her on our chest. In the beginning we each still had some energy when the other was dealing with her so that we might play with DD#1 but anymore it’s all we can do to not fall over from exhaustion. DD#1 is starting to have MAJOR tantrums and I know it’s for attention. I feel like I’m neglecting her so much. When I do manage to spend time with her I’m terribly grumpy from the lack of sleep. Basically I feel like a horrible mom. DH and I have taken to being mad at each other on a daily basis. We’re just both running on empty (or below!) and can’t deal anymore.
I’m trying to stay positive hoping that we’ll get some good news/drugs from the specialist tomorrow but maybe I’m setting my expectations too high? I know any new medication will need time to start working (we’re currently on Zantac which has definitely helped but not enough and now seems to be wearing off?). DH is beyond hope. He worries we will spend the next month trying to find the right meds and doses meanwhile having to deal with things the way they are now. He’s actually had to take a partial leave of absense from work to help me care for DD. I really just don’t know how much more we can take.
Thanks for listening, everyone. I hope to be posting about a good day soon.
Karen
March 1, 2006 at 1:05 pm #2763AnonymousInactiveHi
Hugs to you during this time I too have a 4 month old silent refluxer and a 2 1/2 year old. The stress can be really overwhelming. Is there anyone that lives close to you that could take the baby for a few hours? That way maybe you could get some sleep or spend some time with your older child. It is very hard and I too have felt that my older child is suffering as I cannot devote as much time to him as I used too. Plus, mommy is always tired. It is heartbreaking. After we saw the GI, things have turned around for the better as she is now on Prevacid instead of Zantac. Hope things get better. Just know you are not alone in feeling this way…
Krista in Houston
March 1, 2006 at 2:14 pm #2769AnonymousInactiveOh my gosh Karen, I could have written your post about a year ago. When Andrew was born, my older son was 3 and I was just too tired out to play with him after tending to Andy’s needs and crying ALL DAY. I felt so guilty that I asked my parents to start taking my older son to their house once a week to get him “away” from things. It helped tremendously. I also enlisted the help of my in-laws, too. But they usually watch the baby and I took Matthew to the park, library, etc. I know that I am very lucky to have both sets of parents living close by so it helped. If you don’t have family nearby, how about a neighbor? Is there a neighbor that your older daughter can play with? Or maybe a nursery school program a few mornings a week? My son goes and LOVES every minute of it.
This time is so overwhelming for you, and I know how exhausted you are. Try to enlist as much help as possible – you deserve a “little” break, too. Also, DH and I alternated nights so that one of us would be able to have “some” sleep in order to handle the next day. I used to get so jealous that he was able to leave to go to work and “escape” the house.
I just want to assure you that it does get better! Also, we ordered a Tucker Sling for his crib and he slept so much better in it and we were able to sleep in our bed – not holding him. It gave us at least 4-5 hours of sleep….that at this point is probably more than you’re getting in a week, I know.
Hang in there and know that you are not alone in this Reflux World. This site has the BEST information and is so supportive. These girls are wonderful!
Hugs!
Andrea
Matthew 4 years old – no reflux
Andrew 10/18/04 – silent reflux and MSPI
March 1, 2006 at 4:17 pm #2782AnonymousInactiveHey Karen – I am always saying this to newbies and others for that matter. .. if all else is failing try taking milk and soy out of your childs diet. Its a safe and easy test to see if your dealing with something beyond reflux and it can be a lifesaver if you test it out early on. First off your right and Zantac is not usually strong enough for most refluxers. .. I would try switching to a ppi since Zantac can wear off with every weight gain. You still have to keep an eye on the ppi’s but they are a little more consistent. Secondly, I would definitely try a sling for bedtime too. My daughter required constant care like your describing with Tess and I cannot even imagine if I had a toddler in need of my attention as well. Its no wonder your marriage is strained. . .ours was and we just had one. Theres two things to remember – it will eventually be a distant memory and this is a situation that you can both use to make you stronger or one that can tear you apart. Obviously if you have a new baby and a toddler your together for a reason and while its really hard when your tired to look at the bright side try to remember that your both doing your best. I second Andrea and say pull on every resouce possible right now. Try having hubby take the older one out for breakfast once in while, to a mcdonalds indoor playground. . .whatever – try suggesting ways for your husband to help and he’ll feel more needed and you might get a little break from feeling guilty about the two year old too. I know I didn’t really provide my husband with a game plan and sorry to the guys out there but lets face it . .. most men need one. I resented my husband terribly but really I was distraught and he was clueless about what to do. . .its really a mess for most.
I feel so bad for you because I know how hard this is. .. I held my daughter for just about the same hours your describing. . .day and night. When she turned 4 months I finally started putting her in the swing at night on high speed. .. even then she woke every hour. We switched her to a ppi from Zantac at 6 months and she had boughts of improvement but the misery continued. .. irritability, sleeplessness, up and down moodiness. .. ugh – I thought I just got a lemon . It wasn’t until I found this board and researched and took advice that I FINALLY started eliminating dietary things. Since we didn’t have any of the “normal” symptoms of MSPI I just sort of thought I was nuts and btw – I was too tired to care. My daughter would only go to me and I resented my hubby, I was exhausted and at my wits end. My dd was like a new child once we changed her diet by 11 months. .. please try it now and see if it saves you some grief. Theres also some testing that you might want to consider if a ppi and dietary changes don’t have any effects. The diet wasn’t a cure all for my dd – we still kept her on the ppi but she slept and was manageable for a change.
BTW – I know it seems far fetched now but I have a happy and med free soon to be two-year old (sniff sniff) and I so wish that I could get back some of those infant months so that I could have known about the MSPI sooner and maybe had a happier baby. Just throwing it out there in case med changes don’t do the trick for you.
~Liz
March 1, 2006 at 4:37 pm #2784AnonymousInactiveThanks to everyone for the support. It means a lot. We’re currently on Alimentum formula and have been for a month. I gave up breast feeding at 3 weeks because we were having such trouble. I thought my supply was low but now I realize that it was probably the reflux, we just didn’t know yet. I really regret giving up on the nursing but what’s done is done. The Alimentum did cut down on the amount of gas DD has but it didn’t do anything for the reflux so I think we can safely rule out MSPI.
Our older DD is actually in full-time pre-school. I can’t imagine what life would be like without that! I’m sure I would have completely lost it by now. I suppose it says something about me that I can’t handle things even when I only have to deal with one of them for most of the day, huh? I normally WOH full-time but am on part-time right now. That’s turned out to be a joke. I’m only in the office for a couple of hours twice a week and I don’t get any work done at home. Thank goodness my boss is understanding. I feel bad about it, though, and that adds to the stress.
We have no family or close friends nearby. We moved to this area about 6 months ago. We have some great neighbors whom we’ve called on for help a couple of times but we don’t feel comfortable asking them to babysit too much. DH and I do try to take turns doing stuff with our oldest on the weekends – both for her benefit and to get out of the house. The main problem is that whoever is left with the baby is usually completely frazzled by the tme the other gets back. It’s like neither of us can get enough sleep/time away to recharge our batteries. So we’re constantly running on a deficit. That’s why I said we can’t continue like this much longer.
March 1, 2006 at 7:31 pm #2797AnonymousInactiveI know it’s really stressful right now, but things will get better. Try to take it one day at a time. My son had MSPI and cried ALL the time and would not sleep on his own. When he did sleep, it was only 10-20 minutes at a time. He improved a lot at the three month mark though he was difficult the whole first year. My recommendation? Let your DD sometimes cry on her own. I know it’s difficult to do, but you ned to at least take care of basic things for yourself every day like a shower and meals. If you do not take care of yourself you could end up chronically depressed. That said, I cannot imagine how hard it must be for you. I did not have another child when I was dealing with my son’s constant crying and I still felt like I was going insane! Hugs to you. And know that youa re not a bad mother. The fact that you haven’t gone completely insane is a testament to your strength. Oh, another thing, my son did much better in the Amby Motion Bed than even sleeping on my tummy. It is expensive, but if you could put hre in it, it would be a lifesaver. I know help is hard to come by, but if you don’t have anyone to babysit your other child, I suggest finding a friend with a child her age and switching babysitting or having a playgroup. That way she can interact with the other child and get some of the stimulation she needs with a little less effort from you. I am sure the last thing you feel like doing is getting out, but it might relieve some stress to talk to another human being and have your child be entertained by another child. One more thing, when all else failed, Colicalm Gripewater helped soothe my son a little bit. I don’t know if it would work for your DD, but it might.
Emmy2006-3-1 19:41:29
March 1, 2006 at 7:43 pm #2798AnonymousInactiveKaelyn was so much like your dd as a baby. Dh and I had to hold her constantly. We’re living in fear that baby #2 will be the same way. I honestly can’t imagine doing it with a toddler. It’s no wonder that you are exhausted and frazzled. Please know that it will get better!
I don’t know if this is possible for you, but dh and I ended up alternating nights. So, that way we’d each get a full night’s sleep every other night. If she had an absolutely awful night, we might wake the other one up, so we could get a break, but usually one of us would manage to make it through the night dealing with her by ourself and the other would get a decent amount of sleep. It’s amazing how much easier she was to deal with when you knew that you’d be able to sleep the next night!
March 1, 2006 at 9:34 pm #2804AnonymousInactiveKaren, OMG can I relate to your post. In addition to my little reluxer, I also have a 2.5 year old (they’re 20 months apart)… I had never heard of reflux and didn’t know that it was even possible to have such an irritable baby. I had to hold Hailey almost all day and night until she was 5.5 months old, and it was awful. To make it worse she wouldn’t go to anyone else- not even my dh. She cried all day and night and my older one would always say to her “all done crying Hailey…it hurts my ears.” It was so bad at times that I actually had to hold her while I went to the bathroom- both a disgusting and difficult feat! To this day, I still feel bad for my older one and feel like she has gotten a raw deal. Now that Hailey’s older, my husband will take her for a portion of the evening (an hour or so) so that I can spend some time with my older one and relax for a few minutes. If you have any family support, try to spend a few minutes taking care of yourself. I am alone here, and so I’ve had to do it myself, but I feel everyday like I am growing more and more tired and in need of a break. My point is, even if it’s just for a few minutes, try to find some time to re-energize. If she’ll sit for it, stick her in front of a baby einstein video. I know it’s not great, but you do whatever works with these little ones. If it helps at all, Hailey’s screaming seriously decreased at around 6 months, though we’re still battling the reflux monster. Hang in there. Big HUGS.
March 2, 2006 at 12:58 pm #2844AnonymousInactiveKaren, where are you? Maybe there are some veteran reflux mommies in your area that could lend some support, refer you to great docs. Great that you got an appt. with the ped. GI. I found it helpful to print off some posts and take them with me. Also, go to marci’s kids and print off the reccommended doses and new research. Ask the doc about tummy sleeping and possibly getting a wedge and tucker sling. When we got ours, our daughter was 9 weeks old (got it in the hospital) and she finally started sleeping 4-5 hours at a time.
Your story matches alot of ours. I really did fall into depression and am now trying to seek help so my kids don’t suffer. My 1st grader has to tuck herself into bed at night. I can’t even kiss her good night some times. But…. now that my daughter is 6 months old. She is doing better since she is on neocate and a high dose of PPI. She plays now, and can sit up.
I just got my babywearing sling. I love it and i am joining a group (yahoo groups) to find out how to use it better. It was really pulling me down carrying her around and always having to hold her upright. Wish i would have done it earlier.
Please post what the doc says tomorrow.
Oh… If there is speculation about MSPI they the doc can do a simply stool test in the office with a swap to check for blood and mucuos. Takes 1 minute, just smile and ask him to do it!
March 2, 2006 at 1:43 pm #2855AnonymousInactiveI too had to hold my son most of the day and had to sleep in a recliner, but fortunately/unfortunately that wasn’t good enough for him at 3 months and wouldn’t sleep in my arms anymore, I was forced to let him “cry-it-out” and after an hour of crying choking and coughing, he slept for long chunk of time for the first time ever. I totally know how hard it is. My family lives 1.5 hours away and never helped out (big surprise no one wants to hold the screaming baby) and my husband left when my son turned 8 months old (things were already getting bad before my son was born). Luckily I was able to be home with him until he was 13 months old, then I was forced to go back to work. My son had tracheomalcia and larygomalacia and had his esophagus sewed to his stomach at 3 days old so he could eat, and he screamed and coughed while laying on his stomach to fall asleep, but NO soothing teqniques would work. I figured if my son was screaming all day anyway, why not let him scream for an hour in the crib and then sleep for 2 hours? Its OK to lay her down. I could hear my son refluxing over the monitor while he was sleeping, so I knew the reflux “burning” wasn’t what was keeping him up. No sense stressing yourself more than you need to.
Also, you should consider switching to Prilosec or Prevacid they actually shut down acid pumps whereas zantac is just an acid blocker.
March 2, 2006 at 2:42 pm #2868AnonymousInactiveI started a new post in the “HELP” section with my disappointing results from the GI…
https://www.infantreflux.org/forum/forum_posts.asp?TID=4907&a mp;PN=1&TPN=1
Sarah – My first (useless) ped did a stool sample check and it was negative.
Marsha – I would love to try a PPI (see above link).
Karen
March 2, 2006 at 8:14 pm #2906 -
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