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January 24, 2013 at 8:07 am #71502AnonymousInactive
Hello everyone,
I was directed here by a friend of mine and spent the evening reading so much that has been posted. Thank you for the information.
Our third child, D, is 7 weeks old. He has been on Zantac, 1ML every 12 hours for silent reflux for 3 weeks. It was working pretty well, but the past few days we’ve been struggling again. I suspect this is due to a recent growth spurt. I called the ped today and asked if I could switch his medication to every 8 hours. He said no, instead I should increase the dose to 1.6ML every 12 hours.
We’ve had some success with baby wearing, an elevated mattress, and lots of movement (bouncing, swaying, patting).
January 24, 2013 at 11:23 am #71503AnonymousInactiveAny idea why the ped would be reluctant to let us start dosing every 8 hours as I see some of you are doing? By exactly 7ish hours (which is usually 2 am/pm) he is miserable again until the next dose. Increasing the amount did seem to help until around 5 am last night.
January 24, 2013 at 6:43 pm #71505hellbenntKeymasterwelcome!
you’ve found the best place to research all you can to be the best advocate for your baby!
first of all, I have learned that it’s better (in most cases) to TELL your doctor and see what happens. So, I’d TELL the doctor that you’re going to do ____ after researching all you can.
Zantac dosing– my/other’s question (has axid & pepcid doses, too):
https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1
From above link: zantac dosingby weight: 10mgs per kilo.
no need to ‘just’ take my word on this (or anything! please don’t! research and make your own decisions!)
Research all through the Medicines Forum and then you’ll know what you’re talking about when you TELL the doctor.
I don’t mean to discourage you, *sigh.* It’s just that you really have to know your stuff and be able to TELL your doctor what it is that your baby needs.
Even OUR doctor, who was WONDERFUL, we had to tell. He didn’t object – he listened, our request(s) sounded reasonable, and our baby got what he needed. it was a long process. I hope to help others, to get theirs going faster…
Seeing a specialist may or not help, I’m afraid. However, I strongly recommend getting to one!
Look here to help you research:
Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660
there are recommendations for ped GIs in your area…
I’m guessing your read through Groupie Intro:
https://www.infantreflux.org/forum/forum_posts.asp?TID=853, where I explain how most babies seem to plateau on zantac…it’s very weight sensitive.
I can help you calculate PROPER DOSE. Do NOT ‘just’ take my word on it!
read the above zantac link
In the meantime, I’d research about PPIs,
(Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1 ) and
about ‘the products’ (again, in Prevacid 101)
I can’t recommend them (‘the products’) strongly enough- I am NOT paid by them, nor do I receive any compensation from them WHATSOEVER! I just BELIEVE in the University of Missouri and their research team and Dr. Philips, in particular.
Again, it’s in Prevacid 101 (or maybe in the ‘products’ page- the ‘products page’ is linked to from Prevacid 101)
To be honest, I found that FAXING the doctor(s) worked best.
TELL dr you need _______ (example: new rx for zantac or how to write the PPI Rx, or what dose of PPI) don’t ask. TELL.
FAX FAX FAX the dr
don’t wait for a call…
start off with a THANK YOU
keep it short & sweet
stick to the FACTS (no emotions and ramblings)
state current meds, doses & symptoms
make request- flat out- short & sweet
provide pharmacist name & contact info
THANK AGAIN
follow up by calling office to tell them fax was sent
call again later to discuss requests made in fax, ie:
is RX called in yet?
THANK YOU
sample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325
About faxing the doctor (& more): https://www.infantreflux.org/forum/forum_posts.asp?TID=2841&TPN=1
Have symptoms down pat.
If baby cries, is it HOWLING? SHRIEKING? (that’s what my baby did).
When? After eating? (for my baby it happened any time, regardless of when he ate)
How are poops?
Are they mucousy? Mucous can look stringy, like the inside of a banana, or like jelly or cottage cheese.
Are they painful?
Does baby strain & grunt & push & then when it finally comes out it’s soft?
Is it hard little pebbles?
muscous in the diaper usually is a sign of a protein intolerance-is your son breastfed? formula? if formula, which one?
& here’s
reflux what I have learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&a mp;PN=2
this is a LOT to learn, but you can do it & we’re here to help!
hang in there!
laura
January 27, 2013 at 1:17 am #71527AnonymousInactiveHi… just wanted to say WELCOME!!! Laura has given great advice. She knows a lot about med dosing. My oldest was on Prevacid till he was 3 and my second son till he was 1. I had a friend give me some Prevacid and so I could up my dose on my own. The ped claimed my child could have much less but when I went to the GI specialist she said OK to a much higher dose. She said that many peds will not prescribe very high doses because they aren’t extremely familiar with the meds.
I hope you don’t mind me commenting on this but just wanted to offer a hug on the loss of your little girl. (((HUG)))
January 27, 2013 at 5:48 pm #71534AnonymousInactiveThanks, ladies! And Happy Mom, I love talking about my sweet, very missed girl! <3
January 27, 2013 at 5:55 pm #71535AnonymousInactiveHe is EBF and we baby wear! I have cut out dairy and reintroduced it. I don’t see much of a difference.
January 27, 2013 at 8:51 pm #71538hellbenntKeymasterhow much does he weigh? I can help to calculate zantac dose…
also: what are poops like? mustardy/seedy breastfed baby poops?
green and frothy, like shaving cream?
mucousy?
how long did you cut out dairy? was it HIDDEN dairy, too?
January 28, 2013 at 7:52 am #71543AnonymousInactiveNo, I didn’t worry about hidden dairy. Ugh, I am dreading elimination diets and guilty of putting it off.
He was 11 lbs. three weeks ago, but I think he had a growth spurt since then and I don’t have a scale. He was on 1 ML every 12 hours (15MG/ML) but ped increased it to 1.6 every 12. We did the math and he was on the low range of the working dose before and the high range now (if he was still 11 lbs.), correct?
I’m going to call the ped today, but we have wintery weather so if they want us to come in, we’re screwed.
Just typed a bunch about his sleep here:
https://www.infantreflux.org/forum/forum_posts.asp?TID=16009
Poops are usually yellow, seedy, regular EBF poops, but occasionally mucousy (stringy). I do have overactive letdown, but we nurse on one side for a 2 hour block, upright with him on me, and I let down into a towel when he can’t keep up.
January 28, 2013 at 9:11 am #71545AnonymousInactiveUgh, the pediatrician’s office just called to check on us. I told them that we are still having symptoms with the Zantac and asked for the Prevacid and they said that if the Zantac isn’t working, the Prevacid wouldn’t either. What now?
January 28, 2013 at 10:49 am #71546AnonymousInactiveI just called and asked the nurse to ask him again, as I’ve read they do two different tasks. She disagreed with me over the phone about that (said they both control acid, which is TRUE in a sense, but they do it in different ways). I pushed back and said if they aren’t any different, then I’d like to try the other just to say that I’ve done all I can do! If they are the same then he wouldn’t mind swapping them out, right? 😉
Waiting for a call back…
January 28, 2013 at 12:16 pm #71547AnonymousInactiveWell, as I said before, Laura is the med expert but even I know that Prevacid and Zantac do not work the same. For MANY babies that use Zantac and it doesn’t work, they will find relief when starting a med like Prevacid.
I like what you asked about the doctor not minding swapping the meds out. You are a smart creative mom.
January 28, 2013 at 3:59 pm #71548hellbenntKeymasteryes you ARE a smart creative mom! sounds like you’re going to need those skills as you muddle through this!
PLEASE, if you do start a PPI PLEASE research and TELL what one you need and what FORM –ME, I’d get capsules and buy the products and if necessary I’d increase the dose if dr won’t rx high enough.can I tell you to do this? NO. I’m not a medical professional ,etc.But I DO know my STUFF!! I DID use ‘the products’PLEASE read PREVACID 101 and PLEASE continue with the zantac.as you’ll read in prevacid 101, we learned the HARD WAY that if you DON’T continue w/ the zantac then it’s as if your baby isn’t on any meds at all! because the PPIs take a good 2 weeks to shut off the pumps/’show’ that they’re working AND this is all IF it’s the proper DOSE and FORM of PPI…HOW DO I KNOW? I’ve been on this board NINE and ONE HALF YEARS!!!I learned from my own baby but also from the MANY people who have come & gone before you…I know from personally interacting/communicating w/ Dr. Philips. Etc.Sorry, but I get passionate about this stuff!January 28, 2013 at 4:26 pm #71550AnonymousInactiveI love your passion!
Ped called back and won’t prescribe a PPI because they aren’t FDA approved for babies under the age of one. We are scheduling a second opinion consult with another ped. What a nightmare.
In the meantime, I think we’ll try the Mylanta (store brand, cherry supreme, aluminum free).
January 28, 2013 at 4:36 pm #71551hellbenntKeymasterYou can always go ROGUE! research & buy OTC prevacid & the products.
also: NOTHING is FDA approved for babies! no one will ‘test’ meds on BABIES!harumph! so there!give the meds yourself- research it your self! gotta dash!January 29, 2013 at 3:33 am #71554AnonymousInactiveJust wondering…. have you ever heard of, or tried probiotics and/or digestive enzymes for your little one?
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