MSPI v. milk allergy

[Anonymous]

I have read through all of the information and am still confused. My daughter was diagnosed MSPI at 5 months. She has been on EleCare and doing great. Her reflux has cleared up and she is off meds!!!!

The GI specialist sent us to an allergist to get her tested. She came up as negative for a milk allergy. What does this mean?

I want to understand this a little better before we see the specialist next week.
Thank you!

[Anonymous]

Hi there,

I understand it as the following:

If you have an intolerance, that can mean discomfort in digestion, gas, bloating, general discomfort and pain without having a true allergy. Think about people that are lactose intolerant. They have trouble digesting, diareah, etc….

Allergy is more where you have a reaction like blood in stool, rash, and in severe cases anaphalaxis (sp???) etc….

She is not even 1 so allergy testing is not reliable and there are also many false negatives, so that is not really very reliable anyway. If she is generally fussy and can not be happy or comfortable on milk products, then I would say regardless if it is intolerance or true allergy, it really doesn’t matter, as you should avoid those foods all together.

Hopefully someone else might explain it better, but this is how I understand it to be.

Ann Marie

[Anonymous]

Thank you. I guess my real question is – what do I advocate for at this point? The insurance company will stop paying for EleCare at a year. Should we step down in formula?

[Anonymous]

maybe at around 11 months try yogurt? see if she can handle that.. and if so .. i would say u are in the clear to switch!!

if she cant handle the yogurt.. and your insurance wont cover after 12 mos.. then u can try alimentum ..its cheaper then the neocate.

or you can try a non dairy milk?

[Author]

Posts