Gunner my 7 month is suffering badly at the moment. He only spits up through his nose never out of his mouth. He has done this since the NICU, they would have to change out the CPAP contantly. We are currently seeing our 2nd GI for him bc the first was doing absolutly nothing for him. He has had 2 swallow studies both show aspiration and nasopharnygeal reflux. We have our 3rd swallow study the 20 on this month. he is currently on prevacid,zantac, bethanacol,periactin,carafate, and levsin. Hes in pain and i cant take it but the drs are doing nothing for him. We are seeing craniofacial and ent to rule out cleft palette and velopharngyeal insufficieny and anything else that could be causing the nasopharngyeal reflux. We also see a speech path and pulmonolgist for swallowing/eatting issues and lung problems. Hes currently up to 13lbs thanks to 30cal/oz elecare We had an endoscopy and it showed minimal damage so themeds are working but again hes in pain. just wondering if someone could help me in the right direction or what to do?
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