Home › Forums › Infant Reflux Support › HELP!!! › Hello again everyone……need help
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February 16, 2006 at 9:21 am #1650AnonymousInactive
Hello Everyone!
It’s been so long since I’ve been around, and it’s been an extremely
looooooong last 6 months and this post is only half of the story (the
other half is disturbing and graphic and will be posted a little later to read
only with warning). BUT I need some advice/insight/experiences from
other moms of recovered OR older refluxers. Aidan has grown and
recovered from his reflux But there are a LOT of other behaviors that
concern me and I’m having a hard time getting answers for them (kinda
reminds me of the first months of his life, LOL) Okay here we go with
things I’ve noticed about him:
1- He doesn’t eat like a normal child some days he will only eat chicken
nuggets (reminds me of Ann Marie & Dylan). The chicken has to be a
certain brand (only one that he will eat) and I have to cut it for him.If it’s
not cut he takes too big of bites, gags and throws up. His eating has
gotten a tiny bit better since he’s learned to use the fork (like he didn’t
want to touch the food).
2- I believe that he is speech delayed ( I say I because his doctor says not
to worry till he’s 3) He can say ma ma and da da, juice, this, bye, and toot
toot, chug chug (while playing with trains) but this is it. He talks seldomly
and does not try and imitate our speech. I’ve been trying to teach him
sign language for the last 2 months (working on 2 signs, drink and
diaper) but he’s extremely stubborn and closes his eyes whenever I try to
sign with him.
3- I read Janices post about sensory intregration disorder and it sounds
like Aidan to a certain extent. When Aidan is in a new environment he
sometimes has meltdowns and we are unable to calm him. Even if it’s
someplace that he’s been before. At home he will get worked up from not
being able to communicate something with us (hence me trying to teach
sign language) and it’ll be 30-45 minutes before we are able to get him
to calm down
4- Aidan also seems to have a high gag reflex and if he gags even a little
bit he throws up. I realize that this may be a GI problem that is ongoing.
But I’m not sure if I should put him through testing when he’s not
showing any outward signs of reflux at this point.
5- Aidan also does this weird thing where he will carry small beads
around (Thanks big sis!) he holds them in his index finger and thumb and
he will function with his other 3 fingers. We call him “nib” and joke about
early onset carpel tunnel, but if it’s not the beads he finds something else
like a piece of fuzz pulled off his blanket.We also joke about him having
OCD already…….he HATES getting his hands dirty, brushes his hands to
rid himself of any crumbs, won’t be in any clothing that has anything that
could be considered dirt.
I keep saying to DH that I would like to meet a really, really smart gastro
that would not be afraid to admit that he didn’t know the answer without
brushing me off, but I would like to know if there have been any studies
with older refluxers that are and aren’t still on meds. to determine
whether there is a occurance of speech delay, oral aversions,
stubborness, extreme pickiness and finickiness. I’ve thought about the
possibility of autism and researched it but the thing that keeps me from
jumping to thinking that’s what’s wrong is I’ve read that children with
autism sometimes have difficulity bonding and Aidan will lay with me and
look me in the eyes for 5-10 minutes at a time, he will give kisses and
hugs when asked and on his own and I will admit that he is a mama’s boy.
I don’t want to wait till he’s 3 (as his doctor says) to dertermine IF there is
cause for concern BUT I’m not sure where to turn. Who do I need to be
referred to? Do we go back to the Gastro? How do I get the ped. to refer
me to a speech pathologist when we aren’t in agreement. Are my feelings
grounded or am I overreacting? AND for you mom’s with older kiddos that
have/have had reflux does ANY of this seem familiar to you?
I see a TON of new faces around here and I’m sorry that you’ve all
gathered here under reflux circumstances BUT this is the best place I’ve
found for support and I still think about you all often…….especially with
the way the last 6 months have gone for my family……but that will be my
other post. It’s good to see everyone again and I thank you all for any
advice that you may be able to give me!
Amber
February 16, 2006 at 10:03 am #1658AnonymousInactiveHi Amber!!!!!
I have thought about you often and so need to catch up! For some of your questions:
1. This still is Dylan. He will do other foods now like Jello, raisons, ritz crackers, etc. but mostly still the one brand of chicken nuggets. It is really frustrating, but we just keep offereing and hoping that will get better. Does Aidan have any restrictions at this point? Milk or anything? I remember him being on soy formula, so I don’t think that is an issue. Have you tried pizza? Usually a favorite if he can have it, and you could chop veggies so small and sneak them in. Fruit chews are a favorite, so we buy those chewy vitamins and mix them in with fruit chews, so he is getting a vitamin daily as well. I don’t worry too much about the diet as long as Dylan is gaining and staying healthy.
2. I would agree about the speech delay. How much does Aidan understand? That would be a good indicator. Dylan didn’t have ANY receptive language a year ago (at 2). He didn’t know I was mommy or David was Daddy, or he was Dylan, etc. He did take off like a rocket, coincidentally when we got him off Prevacid. I don’t think I would have stopped Prevacid any sooner if it did have something to do with the delays, because he needed it, but I am not sure if there is even a connection. How long has Aidan been off meds? Have you called early intervention? Dylan got a lot of benefit from our Birth to Three program and really has grown developmentally miles from where he was. They will do comprehensive so that might address the sensory issues as well.
3. This can be tough. I think since our little ones have gone through so much, that this is an issue for a lot of them. I would agree that the degree of it can vary, but to some degree. I would imagine that his inability to communicate his issues with you is also causing some melt downs. We definitely have seen this, and it has improved greatly with the help of the speech therapy. Dylan didn’t do so well with the sign language either. It took a very long time just to get a few signs for him, and when he had them, they did help a lot, but it did take forever! Have you tried pictures? I think Susan (wow, name from the past) gave me that suggestion on here once, to take pictures of the favorites, crackers, chicken, raisons, playscape outside, bike, etc. and then when I could see Dylan starting to loose it, I would take out the pictures and he could point to what he needed. It was not fool proof, because we didn’t have pictures of everything in the world, and sometimes we would miss the window, but it did help sometimes.
4. I might explore the ENT. If the gag reflex is due to large tonsils and/or adenoids, they can do something to help it. We have had both the tonsils and the adenoids removed, and it has been a huge improvement for Dylan with sleeping, eating, etc.
5. I am at a loss. This could totally be related to #3 and be sensory issues. It also could just be a quirky thing that Aidan does. How does he react if you try to take it? Does he seek these things out to hold and have a melt down if he can find them, or does he just do it when it is in front of him to pick up?
I also wouldn’t think autism if he is making good eye contact and trys to engage you. We had this diagnosis for almost a year, until we met the right doctors and got the appropriate services for Dylan. I don’t think that is your concern. You do not need your pediatrician (at least in CT) to refer your child to the state early intervention program and they should come out and just do the evaluation and let you know of their concerns and what services they could give you to help Aidan. In Ct, they charge your ins. co, but even if your ins. co doesn’t pay, you don’t pay either. There is a sliding scale fee, but the fees are minimal, and it is pretty high, so most families pay nothing at all for services. From our early intervention program, Dylan is receiving speech therapy for 2 hours a week, OT for 1.5 hours a week, and and Early Intervention teacher for 7.5 hours a week. Dylan is getting 11 hours of service which has made the world of difference for him.
I am not sure this is reflux. I think I would look into calling your EI in the state.
Again, Amber, so good to “see” you!!!!!!!
Ann Marie
February 16, 2006 at 10:29 am #1665AnonymousInactiveHey there! I had to stay home this year, but I have taught school for 6 years. Last year I taught preschool, I was trying to get my masters in spec. ed. at the same time but I had a difficult pregnancy. I had a very special little boy that came into my class at the end of the year, who had alot of similar tendencies as your son. There are many different types of autism, i feel it is worth looking into and getting him assessed. My student had outbursts and was inconsolable for long periods of time, seemed overloaded by stimuli, and really had a problem during snack time. If there was a cheeto at the table he would freak out. He was very finicky about texture as well. Have to go now, she’s up! hope you get the answers you are looking for!
February 16, 2006 at 11:03 am #1671AnonymousInactiveamber!!! i have wondered where you dissappeared to!! i am eager to hear the rest of your update. i was so surprised to see a post from you. reading about aidan sure brings back memories of my 16 year old as a toddler—–i thought there was something wrong with him from early on. we thought he might be autistic, and had more than one person tell us how much he reminded them of some other autistic child that they knew. i remember the frustration of not being able to communicate with him—–it only happened if he initiated it. ian did not talk until he was 3, before then, he had his own language. he had all the intonations of regular speech, but very few real words. he would ramble on and no one knew what he was saying. people even referred to him as speaking “ianese” or the “adamic language”. he cried for 2 years. he also had self-stimulating behaviors and echolalia. i also felt like he would get frustrated when he couldn’t get across to us what he wanted to tell us. ian also was very sensitive to loud noises—-he still does not like alot of noise. i had never been aware of the sensory issues Janice has talked about until after sylvia was born. when i have read about it—-i see ian and even my self as being a little sensitive when it comes to sensory issues. i guess i should tell you that ian is a “relatively” normal teenager. (like normal and teenager can really be used in the same sentence!LOL!!) we had ian in the developemental pre-school in our school district for 2 years, he also had speech therapy. then we moved him to a private pre-school for one year, and then he started kindergarten when he was almost 6 1/2. by the time he hit first grade, it was his fifth year of school. there WAS something wrong with him—but we don’t really know what it was. we have recently learned that he has an IgA deficiency which probably explains in part why he was so sickly as an infant. my twins and molly have just recently been diagnosed with celiac disease and we are in the process of trying to get some other testing done for ian to see if he also has it. his IgA deficiency made his celiac test worthless for the doctor. would you send me an e-mail so i can keep in touch with you? i typed a bunch of other stuff to you, then erased it all—it was starting to be a book.LOL!
i didn’t even tell you about sylvia—-she is doing wonderful!! she had obstructive sleep apnea. we had her tonsils and adenoids removed and her ingunal hernia repaired and we saw major improvement in her. she eats well, looks healthy, and competes with samantha in ruling the house!
kevieb2006-2-16 11:8:26
February 16, 2006 at 11:43 am #1676AnonymousInactiveAnn Marie–
So good to hear from you…….somehow I knew you’d be one of the first to
respond!!!! CONGRATULATIONS!!!!!!!!!! Cyber hugs and good vibes being
sent from my computer to yours!!! I am so happy for you I could
burst…..WONDERFUL news!!!!
Ok before I lay it on too thick LOL, down to business LOL
Aidan will not even try anything that looks the least bit squishy or
pudding like. nothing frozen or greasy. The snacks that he most often
eats are crackers and popcorn. Occasionally he will eat plain white rice.
He will also sometimes eat beef (like roast), but the chicken is the only
consistant thing that he will eat. He isn’t on any restrictions as far as diet
is concerned, however when I took the bottle away he started refusing
milk. I tried strawberry flavoring awhile back and he would drick that for a
bit then out of nowhere he started throwing up as soon as it hit his
stomach….so we stopped trying with the milk. Just out of curiousity what
brand of chicken does Dylan eat? Aidan will only eat tyson nuggets with
the green stripe on the label. He refuses all other brands!
Aidan seems to understand what we say. He will point to what he wants
and pull us to where he wants us to be. He also can intonate he babble up
and down, but it’s his unwillingness to try and speak that is so frustrating
and concerning to me. There is almost no real language there. The most
that he babbles is when watching Thomas the Train or looking at Thomas
books ( I swear they subilimially get kids hooked on Thomas) The actual
train sets are the main toy Aidan gravatates towards, and I can see him
using his imagination with the trains. As far as Early Intervention goes….I
haven’t tried that route, there isn’t any listing for them in our phone book
would the health department be able to help me?
I hadn’t thought about the pictures!! Aidan does tend to point but
sometimes he leads us in circles like he doesn’t know what he wants. I’m
gonna borrow my dad’s polaroid and snap some pics to start and see how
that works. Thanks for that idea!!! I’m also going to explore the ENT
possibility. Alyssa and I both see an ENT and they removed my tonsils as
a kids……I never made any sort of an connection between that and his
gagging.
With the beads and fuzz he gets upset if we take them from him. He
kinda hoards them around the house. He always seems to be able to find
a bead somewhere. I guess it is pretty quirky of him, but I really wanted
to be sure and list all his behaviors that I’ve noticed to give you all as best
of an idea of what’s going on.
Sarah–
So nice to meet you! I thank you for your advice especially being a
teacher. I’m am going to look into getting Aidan assessed.
Christine–
So good to hear from you!!!! I will e-mail you after this post. How would
IgA deficiency be diagnosed? Should I try and get Aidan’s ped to do a
blood workup? He’s never had any other blood testing except whatever
they do at birth. Also something I forgot to mention earlier is that Aidan
has a constant allergy shiner under his left eye. Not sure if it has anything
to do with anything, but feel it’s worth mentioning. Some days it’s worse
than others but it is consistantly there. I have no clue where to begin as
far as that’s concerned and the shiner is his only symptom…..he isn’t
troubled with constant sinus problems or anything. I swear these kids
have to keep us on our toes don’t they? LOL! Ok time for
lunch…….chicken nuggets again! Take care! You updated while I was
posting LOL…….Great news about Sylvia, so happy to hear she’s doing so
well!!!
Amber2006-2-16 11:46:56
February 16, 2006 at 12:33 pm #1681AnonymousInactiveHi Amber,
Thanks! We are excited, but I will be 24 weeks on Friday and I am having contractions daily, so just keep your finger’s crossed. It has been a rough road so far, and I am praying I make it to 30 or 32. That would be great!
Anyway, Banquet chicken tenders, ONLY. Not really the nuggets. The tenders look a little more like white meat. He’ll do Mcdonalds as well, but the only ones he will eat from the package are the Banquets.
I found this number: Contact Help Me Grow:(216) 736-4300 online and I think it is what you need for Birth to Three in Ohio. Let me know if it’s not and I will help you find the number. That is great that he understands. They should be able to help him with his expressive language, then.
The ENT thing I thought of also, because I remember you had an issue with your ears as well. also, he may be speaking as he is hearing. If he understands you, it may not be how you and I hear what is being said, but he is trying to say as he hears it. I don’t know if that makes sense, but it also could make the noise a sensitive issue as well.
Hang in there, and so great to hear from you!!!
Ann Marie
February 16, 2006 at 4:12 pm #1698hellbenntKeymasterAmber!!!
hi you!!!! I’m also preggo and expecting another boy in July!
so good to see you!!! I always remember you because you helped folks get baby carriers made…well I remember other things, too, like don’t you work as a manager of a pizza restaurant? if I’m wrong about these things, then let’s blame my pregnant-brain…
I don’t have anything much to add- Ann Marie is right that you don’t need a referral for the birth to 3 programs…
please keep us posted, as I am truly interested in all of aiden’s progress!
~laura
February 16, 2006 at 9:45 pm #1733AnonymousInactiveHi Amber – great to hear from you! First, let me say that for James, the chicken of choice is Dino Buddies. He’ll eat McNuggets AT McDonalds, but not at home. I used to have to cut hem as well, but now he’s better about not biting off more than he can chew . And he too will not eat anything squishy, mushy, etc. – no mashed potatoes, no casserole type things, etc.
James is two months younger than Aidan, and his vocabulary consisted of mama, dada, and ball until this week, and now he is sort of saying an approximation of his teachers names and brother and sister’s names (wouldn’t be recognizable to anyone but me.) We started EI when he was 18 months, and he gets an hour a week. I don’t agree with that “wait until he’s 3” stuff – why not help them earlier and try to reduce the frustration? Plus, it isn’t painful, it’s free (mostly) and it really is like play for them. He had tubes done at the end of December, and his babbling and jargon have really taken off since then – have you had Aiden’s hearing tested?
James also hates dirt and anything messy – how many two year olds do you know who ask (I should say point and grunt) for a napkin at dinner? And he would not step into snow for the longest time this winter – tough in New England. He’ll only wear one pair of shoes.
My oldest, who also had reflux, has that gag reflex problem…I’ve heard that it is common with former refluxers. He’s 9 now, and just tonight I had to give him nasty cough medicine and he came incredibly close to barfing. We used to call it the firehose effect – the slightest gag and everything would just come flying out. he’s much better now – just more likely to gag/barf than the average kid.
I’m no expert, but autism really doesn’t sound likely – there is a wide spectrum, but the things they look for is lack of receptive language, lack of interest in people, lack of interest in trying to communicate. The fact that he is affectionate, bonded, plays appropriately and imaginitively with toys, he gestures, points, verbalizes, and understands you, is great. (they told us this about james.) He may just need a jump start to get going on expressive language. And if you call EI for an assessment, they assess everything – speech, fine motor, gross motor, cognitive, social, etc.
Sorry to have gone on so long – just wanted you to know I live with two former refluxers and Aidan would fit right in with them!
Oh – and I wouldn’t worry too much on the bead thing – toddlers are odd little creatures! I think some quirkiness is just quirkiness. If you think it is getting excessive, maybe try redirecting him with something else to hold – a bigger toy or an animal.
February 17, 2006 at 8:16 am #1745AnonymousInactiveAmber,
I just wanted to say that I’m so sorry to hear about what your family has gone through in reading your other post. I also just wanted to tell you that my older daughter exhibits several of the characteristics that you outline in your first post, and she is a normal 2.5 year old. She too has serious meltdowns when brought into a new environment, in fact, when people she doesn’t know come to our house, or there’s too much noise, she starts screaming and crying. We’ve always thought that she’s “hypersensitive” to environmental stimuli much like I am- I can’t stand crowds, or noise, or new places, and can’t do too many things at once or I can’t concentrate. My little one is like this to. As for the bead holding- I thought that my daughter was the only one who did this. But for us it’s not just beads- it’s anything small. She just likes to carry them around with her. Her favourite is little pom poms from daycare, or fuzzy hair elastics, or little pieces of paper. It is kind of odd, but we’ve started to think of it as her endearing little quirk. In fact, I’m embarassed to admit this, but lately she’s taken to going to daycare holding a cracker in each hand. When I tell her to eat them, she says that she just wants to hold them. Sometimes she will be holding pompoms or other little things, and says that she wants to take them to bed with her…she starts screaming when we try to take them away. I don’t know if this makes you feel any better, or just makes you think that my family might be a bit nuts, but I swear that she’s a typical child, and otherwise is really doing great. Good luck to you.
February 18, 2006 at 4:49 pm #1864AnonymousInactiveHi Amber!
Good to hear from you! I would definately explore an evaluation by a ST and an OT that has a background in sensory integration. It could contribute to the eating issues that he has and also the gag issue. A speech theripist can help you with the speech (obviously) but also the oral moter stuff that is a problem. The child does not have to have “autism” to have sensory integration problems. You can email me and I can give you more info if you would like.
February 19, 2006 at 1:10 pm #1905AnonymousInactivekevieb wrote:
amber!!! i have wondered where you dissappeared to!! i am eager to hear the rest of your update. i was so surprised to see a post from you. reading about aidan sure brings back memories of my 16 year old as a toddler—–i thought there was something wrong with him from early on. we thought he might be autistic, and had more than one person tell us how much he reminded them of some other autistic child that they knew. i remember the frustration of not being able to communicate with him—–it only happened if he initiated it. ian did not talk until he was 3, before then, he had his own language. he had all the intonations of regular speech, but very few real words. he would ramble on and no one knew what he was saying. people even referred to him as speaking “ianese” or the “adamic language”. he cried for 2 years. he also had self-stimulating behaviors and echolalia. i also felt like he would get frustrated when he couldn’t get across to us what he wanted to tell us. ian also was very sensitive to loud noises—-he still does not like alot of noise. i had never been aware of the sensory issues Janice has talked about until after sylvia was born. when i have read about it—-i see ian and even my self as being a little sensitive when it comes to sensory issues. i guess i should tell you that ian is a “relatively” normal teenager. (like normal and teenager can really be used in the same sentence!LOL!!) we had ian in the developemental pre-school in our school district for 2 years, he also had speech therapy. then we moved him to a private pre-school for one year, and then he started kindergarten when he was almost 6 1/2. by the time he hit first grade, it was his fifth year of school. there WAS something wrong with him—but we don’t really know what it was. we have recently learned that he has an IgA deficiency which probably explains in part why he was so sickly as an infant. my twins and molly have just recently been diagnosed with celiac disease and we are in the process of trying to get some other testing done for ian to see if he also has it. his IgA deficiency made his celiac test worthless for the doctor. would you send me an e-mail so i can keep in touch with you? i typed a bunch of other stuff to you, then erased it all—it was starting to be a book.LOL!
i didn’t even tell you about sylvia—-she is doing wonderful!! she had obstructive sleep apnea. we had her tonsils and adenoids removed and her ingunal hernia repaired and we saw major improvement in her. she eats well, looks healthy, and competes with samantha in ruling the house!
That is what I was going to say too. Get tested for Celiac disease. I have that and it can really make you feel and act different. Go to http://www.celiac.com and read about it. I hope you find something that helps him out.
February 20, 2006 at 9:23 am #1961AnonymousInactiveOk Everyone, so sorry that it took me so long to get back on here, LOL
weekends are absolutely crazy around here. I had an epiphany this
weekend that I hadn’t thought of before and personally I could kick
myself for not thinking of it earlier. I have 2 Aunts in the med. field one is
an OT working with special ed. kids in the next school district over and
the other has her masters in nursing. So I call my nurse Aunt and ran
everything by her and she has a speech pathologist friend that she is
trying to get ahold of to get her take on things. I’ve also been trying to
reach my OT Aunt to also get her opinion. I’m going to get him into the
ped. to discuss everything but to also see about the ENT and try to get
him to explore the sensory intregration disorder. We had a prime example
of the sensory disorder last night at my nephews 4th birthday. We walked
in and everyone said “Hi & Hello Aidan” he lost it. Clung to me leg would
hold his head up. After 5 minutes of this I took him into a back bedroom
away from everyone trying to give him quiet to calm down in. It took us
10-15 minutes and after we did finally come back out he held my hand
and sat with his head in my neck for the whole night. Funny thing is is
that my SIL’s house is basically a new place for him he’s definitely not
there enough to remember.
OK I have a lot of you to address individually, this could be the longest
post ever, bear with me LOL:
Ann Marie–
Every part of me believes that you will hold out till it’s time for little
Carter (LOVE the name!!) to come. I think your will power alone could
accomplish that!!!! Just know that we in Ohio are rooting for you!!! OK
down to business, I appreciate the help my grow number, I’ve written it
down and after we go back to the ped I’m gonna get ahold of them. I’m so
glad you’ve had so much luck with Dylan working with them. Can I ask
though do you go to them or do they come to you? Somehow I think
Aidan MIGHT do better if it weren’t here and I wasn’t in the room. My
mom always tells me that Aidan acts totally different (in a good way)
when I’m not there and I think it’d be important for them to see both
aspects of his behavior.
Laura–
OMG!! Your preggers too? CONGRATULATIONS!!!!!!! What happens I
leave and everyone decides to have more? I have to say that can’t happen
on this end-DH got snipped last March. I would however like to do egg
donation at some point ( I quit smoking for GOOD 6 months ago) but DH
and I don’t agree, so no plans at this time for it. Off subject but have you
driven by Miami Ink yet? Do you watch the show? I’m obsessed, and to
think your right down there…….I’m so jealous!!!!!!!
Tricia–Thank you so much for sharing your experience with me!! I knew
that by coming here there would be women that could tell me better then
anyone else could!!!!! Plus with Aidan I’m unsure of what behavior is
effected possibly because of the reflux, what he’s behind in and what is
just cause he’s a boy!!! I will certainly say boys are soooooo different than
girls!!!!!
Lori– I definitely don’t think your family is nuts LOL or mine is too. It
does make me feel worlds better that Aidan isn’t the only one doing the
weird bead thing. If anything I’m starting to just think that he has
excellent fine motor skills, LOL! I’ll admit that I am also sensitive to crowd
and high amounts of noise. I don’t like malls or even wal-mart on the
weekend. I find those kind of places very unnerving, ESPECIALLY if I have
to take both kids with me!!
Janice– Thank you for chiming in……it was your article I think that first
made things click for me. We are starting with the opinions of a ST and
OT (not formally) just speaking with them, depending on what they say I
may be going to the doctor asking for 3 referrals. Lucky for me when
asking for referrals he hasn’t fought me in the past so we will see what
happens if I ask for 3 different types of referral! Wish me luck, LOL. It’s
really nice to “see” you, I’ve really enjoyed all the “old” faces I’ve been
seeing!
Thanks everyone for your advice! I knew I’d gain more by spending 5
minutes here then 1 hour doing anything else!!! I really appreciate
everyones help!!!
February 20, 2006 at 11:02 am #1977AnonymousInactiveHey Amber,
I hope you’re right! Friday was a scary day, but I go back next Monday and we will know more then.
The EI here in CT is in the natural environment, so they do come to us. (or they see Dylan in Daycare). But wherever his natural setting is. I think the point is to try to help them be successful at their natural environment. Your state may be different, but I think that’s how most of the EI programs work. Don’t worry, if he is acting like “himself” that is how they are going to know what he needs. I would give them a shot when you are ready. Once Dylan turns 3 (on next Tuesday) he starts the special ed preschool program that our school district offers and then he will go to them ON THE SCHOOLBUS! do you have any idea how freaked out I am??? I told the bus company that I am not some psycho, but I would be following the bus at least the first few times he takes it. We did install our own carseat and the bus is only for his preschool class, so no big kids at all, but I am still a little freaked by it all!
Hang in there, and keep in touch!
Ann Marie
February 20, 2006 at 11:12 am #1981AnonymousInactiveAnn Marie–
Thanks for the advice!! I do see your point and agree with you about the
natural environment, I didn’t think of it from that aspect before. I hear you
about the school bus. Alyssa started kindergarten this year and WANTS to
ride the school bus BUT mom is nowhere near ready for that! She’s
convinced that next year I will let her and I’m bouncing back and forth with
it. It’s so hard to let go, and especially worse because Alyssa is a social
butterfly (opposite of me) and is miss popular in her class. Oh the joys of
parenting………I can only imagine how big of a boy Dylan will feel climbing
onto that yellow bus!!!!!! Keep me updated as much as you can about you
and Carter! I’m on pins and needles for you and my fingers and toes are
crossed!!!!
February 20, 2006 at 5:14 pm #2012AnonymousInactiveMy six year old actually has ocd..he was diagnosed at 2… it’s not funny.
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