Thanks Lori. I know i don;t know why it said mild esophagitis… i have not been able to discuss it with him. He did tell me at the time that it seemed like there HAD been some esophagitis in the past but was gone because he could see some scarring but was really nothing… so don’t know if that is what they meant?
Thanks for your kind words… i am only as strong as Matthew makes me because he is a strong little one and i need to keep up with him. Both our journeys have been challenging but as i always say… we are going to get there one day! Yes, the surgerywas scheduled quickly… uckily the ped had ordered blood tests a couple of weeks ago and they were good and our GI is really excellent and responsive. I know it is going to be hard to have the PEG in but i am going to be able to look at Matthew’s face again and no more tying (don’t even know how to spell anymore) him down to bed for the NG anymore adn no more marks and no more sensitivity around tube!!!
One thing i wanted to talk to you about… has your OT ever said something about sensory issues for Hailey around the hands adn upper body? We had someone else come in and take a look at Matthew. She said he looked really defensive around his upper body. If you get his hand and try to get him to touch anything, he freaks out even if i do it. He is not really interested in touching textures, but he does put everything to his mouth so she does not think there is anything around the mouth. She said that that, rather than discomfort around belly, could be the cause of him not crawling. Also when holding him he cannot be facing you. It is his space. So we are going to work on some exercises and brushing and compressions and see if he changes his temperament a little bit. She is not specialised in feeding… but i was wondering whether Matthew may have an issue with us approaching him with the bottle and the spoon and him getting so defensive and pushing it away… who knows i will have to discuss it with her next time… just thought it was interesting idea!!
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