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[Anonymous]

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krisp2009-10-04 10:56:25

[Anonymous]

Hi there,

I am not much help, just support. I can tell you that I was where you were with our first son Dylan. I really thought there were some days that I did not want to do this at all anymore! Now, looking back, I should have reached out to my doctor for help. They could have given me something to handle the day to day struggles so I am suggesting to you that you go see your doctor and let them know how difficult things are and you are feeling very badly and I’m sure they will give you something to help you get through.

For DS, I would say that between months 4 – 7 were the WORST for us so hopefully it will be the same for you. You are on the tail end at 6 months, so much better days can be right around the corner. Dylan is now going to be 5 in February. When he was a baby, he wouldn’t let me soothe him. Holding him was a nightmare and he would not settle by cuddling or rocking. At 2 he had no expressive or receptive language. Now, he is so catching up, it is crazy!!! He is such a cuddler! He loves hugs and kisses and he is just a wonderful four (almost 5) year old and he is emotionally well adjusted.

I do think it took so much out of us, so please don’t feel bad. You know in your heart as well that no one will love that baby more than you! You are doing a great job and it is SOOOOOO much more difficult with a reflux baby.

I would also tell you my sister had perfect babies. slept well, did everythign on schedule, etc. They are great kids, don’t get me wrong, but I can see what a different relationship that Dylan and I have. Dylan is sensitive to others’ needs and will try to play with and include all children. they are not like that at all.

I guess what I am saying is we are all here for you!!! You can vent any time and THINGS WILL GET BETTER!!!!!

Hang in there!!

Ann Marie

[Anonymous]

Oh my gosh!

Krisp everything that you said about is ditto for me, it sounds like i typed your above letter and some of the things that Anne Marie said are also ditto. I worry about Ashlynn alot she just is not a happy baby. She does have days where she will do a little cooing ,but other days she looks so sad, like what is happening to me. MY older daughter who did not have reflux was so talktive and active. I try and not compare Ashlynn to other babies that I see out in public becasue is also makes me sad, but these babies our not suffering from reflux. Ashlynn first 2-3 months of life where pretty rotten for her. She was on so many meds for reflux and also had to do a one day stay in the hosptial for iv zantac. Currently she takes Nexium 20mg and Erythro 2ml 3x’s a day. We just recently weaned her off of periactin. I have cut her erythro down to 2’s a day seeing if that would make a change. I pray for this little one everynight that everything gets better. Everyone tells me that I worry to much and that I need to stop it, but you know what this is my little girl and I am going t worry about her and I am going to make sure I do everything possible to let her have a happy life. Both of my girls our my world, Ash is just having a ruff time and I also tell myself that this to well pass. God does not give us amymore that we can handle, hang there. Ash is 5 1/2 months and there our days that she coos a little and there our days she just looks like she lost from that pain.

[Anonymous]

I’m so sorry to hear about how hard things are right now, and I can tell you that I’ve been there twice. I had two reflux babies and it was h*ll on earth both times. My first refluxer never slept more than an hour at a time and most nights she was up every 20 – 40 minutes all night long, every night of her life. She was miserable day and night, and I worried that she’d end up with emotional problems from all the chronic pain and misery. I even feared that she lacked normal attachment at one time because she was so anxious and unhappy, even though I was home all day with her and held her nearly every minute. Well, I can tell you that she turned out just fine! Despite 9 months of poorly treated reflux and constant pain, she turned out to be the happiest and easiest of my three children. Once she outgrew her reflux her temperament changed dramatically. She was the most delightful, happy, easy to please toddler you could ever hope for, and those happy days more than made up for the rotten days of reflux that she and I endured together. Oh, that reminds me, I used to always say that I “survived” Eliana’s infancy; that’s how bad it was. And believe me I had plenty of days when I felt sorry for myself and I still feel that it was unfair and plain wrong what she and I went through. But thank God she’s just as happy as can be and I really don’t see any lasting effects from those miserable days.

My son also had reflux but fortunately he was eventually properly medicated, so thankfully he was only in pain for 5 months (too long, of course). He also seems to be just fine. He’s more ornery than my other two but I don’t think it has anything to do with having been a reflux baby.

I didn’t have PND, but I had a very serious case of Post partum anxiety after the births of all three of my children. It was unbearable at times. I hope you have someone to talk to and some support because that’s really important at at time like this.

Yes, silent reflux does eventually end. For Eliana it was finally over at 9 months. Myles also outgrew his reflux at 9 months.

31.5 mgs of Prevacid sounds like an appropriate dose, but I remember at least one baby on the board who needed a higher dose than that (42 mgs, I think). Maybe a different med would be better for him. Or perhaps adding an H2 blocker. There have been a few babies on the board who did best on a combination of PPI (like Prevacid) and an H2 Blocker (like Zantac/Pepcid). I hope you find the answer soon.

[Anonymous]

Don’t feel bad at all for your feelings. Those are your feelings and it’s okay to feel that way. It is very hard to see through it all when your tired and have no time for yourself. My first refluxer was as you described your baby. He finally outgrew his reflux at 9 months. My second refluxer was properly medicated and is very happy and was then too. He also outgrew his reflux at 9 months. I say all that to say that for most of us it does get better and usually around 9 months to a year. In the meantime we are hear for you. We understand and want to help you.

I am one of the people that had to have their baby on a dose higher than an adult would take. My lo was on zegerid and I think he was on something like 50 mg. Maybe even more. Have you thought about maybe MSPI issues? Sorry if you’ve already answered that. Please feel free to vent anytime.

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