Hi there! Welcome to this site!
I am sorry your little one has been diagnosed with FPIES. You can actually go to the very top right of the page and if you see the link that says “private messenger”, you can start a new message and type in username “addysmommy” and send her a private message. I am sure she would love to answer any questions you have regarding FPIES. I say to PM her b/c she posts once in a while, but since Addy has gotten better she does not post here a lot.
Let me know if you have any trouble.