Infantreflux.org | FPIES outgrown? WONDERFUL!!!

This topic has 31 replies, 1 voice, and was last updated 16 years, 1 month ago by Anonymous.

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May 16, 2007 at 11:00 am #33397

Anonymous
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Hey eveyone! I just wanted to say thank you to everyone who has been so supportive of me and of Addy the past 16 months. I don’t want to jinx us but it seems that Addy has outgrown her FPIES!!!!! Sticking with Neocate only for so long was so hard, but well worth it. We are absolutely thrilled. She is eating EVERYTHING except diary. (Even some hidden diary like McNuggets)…we are trying to feed her heathly stuff but come on, she needed a treat after waiting 16 months for solids! Even though I think they are disgusting, she loves them! She is still on Zegerid twice a day but doing well. YAY FOR ADDY!!!! I just had to share the good news!

May 16, 2007 at 11:02 am #33398

Anonymous
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Awesome news!!!!

May 16, 2007 at 11:16 am #33400

Anonymous
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That is SO great, Tracy!! I’m so happy for you and Addy. I hope everything continues to go well.

May 16, 2007 at 11:54 am #33403

Anonymous
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Totally awesome news – I just love reading these good posts. It is such an inspiration to new members who are just starting their reflux journey, wondering if it EVER gets better. You and Addy (and so many others) are proof that it DOES!! Speaking of good posts, I better get in and type one up too!!

Robin

May 16, 2007 at 2:08 pm #33422

Anonymous
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Hooray for Addy!!! I used to always feel so bad when I though about her only getting Neocate. It must have been so hard for you to not give her food when she probably wanted it.

I am so very happy for you and Addy!!!!

May 16, 2007 at 8:03 pm #33465

Anonymous
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Thank you all! It has been such a wonderful 2 weeks! The best since she was born! We are so happy! I am so thankful to all of you mommies for your support!

May 16, 2007 at 8:03 pm #33466

Anonymous
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Tracy,

That’s such wonderful news! It is so great to read posts like this, and know that there certainly is hope out there for us. If your little one can get better, so can mine!

May 16, 2007 at 8:17 pm #33477

Anonymous
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YAY YAY YAY!!!!!!!!! So glad things are continuing to go so well!!!!!!!!

May 17, 2007 at 2:53 am #33511

Anonymous
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Fantastic news. Well done Addy

May 17, 2007 at 10:43 am #33522

Anonymous
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YAY ADDY WE ARE SOOO HAPPY FOR YOU!!!!! ENJOY YOUR MCNUGGETS SWEETIE! KADEN LOVES THEM TOO!

Jill, Landen (no Mcnuggets for a while) & Kaden (big McNugget Fan)

May 17, 2007 at 1:53 pm #33539

Anonymous
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Horray for Addy!!!!! That is wonderful news!!!

May 17, 2007 at 2:52 pm #33550

Anonymous
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This is wonderful news!!

May 22, 2007 at 12:08 am #34071

Anonymous
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Wow, I havent been on in awhile….YEAH ADDY! that is such awesome and HOPEFUL news…..WHOO_HOO!

We are in the midst of the FPIES ordeal, and was getting very discouraged lately, but YEAH ADDY, now we have hope again

Im smiling huge right now for you both

May 22, 2007 at 2:57 pm #34135

Anonymous
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Congratulations!

Now, what is FPIES (excuse my ignorance)?

May 22, 2007 at 3:14 pm #34137

Anonymous
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Thanks!

Its Food Protein Induced Entercolitis Syndrome. Basically meaning she couldn’t tolerate any solids until about 2 1/2 weeks ago. She drank only Neocate til she was 16 months old bc her body could not process any protein. Kind of like she had an intolerance to anything! It was rough but we are so thankful now!!!!!!!!
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