Ever heard of Eosinophilic esophagitis o EE

[Anonymous]

Maybe you’ve already read this, but I have read that other people have had problems with the prevacid suspensions degrading the medications so that they are rendered ineffective.

We were doing the prevacid solutabs but Nina seemed to not tolerate the lactose in them, so we switched to the capsules. I hope Nina takes to the caracream; if anyone wants to say a prayer please do.

Andrea, did Paige have the same symptoms? Are your kids intolerance to any foods? Sorry if you’ve already talked about this and I missed it. If this helps anyone…my son was the biggest vomitter (sp?), gagger, etc. and has outgrown almost every problem. He still is on Prevacid, though, we go through trials every six months or so, and so far he always essentially stops eating if we quit the prevacid.

I’m trying to figure out when, how and what to start to give my 5 month, soon to be 6 month old. I’ve read some of the past messages, but I should spend a bit more time going through them. Thanks.

[Anonymous]

My daughter grew out of every problem she had by two years. Most of the reflux was gone by 1 year. She was the baby that would throw herself off your lap while eating. She also refused to eat sometimes. She was always on the bottome 10% of the growth charts for weight and is still there. However, she is really tall for her age. As a baby she would vomit all the time. I think most of it was the colic(which was maybe caused by reflux). She would throw up every time she would start on one of her colic sessions. She also hatted the carseat. Would throw-up as soon as you would put her in. Looking back I think she got car sick a lot. She would cry constantly in the car until she was turned forward at a year. She was basically a miserable baby but a very happy kid now with only a nut and bee allergy.

My son is a different story since he doesn’t throw himself around while eating. Maybe it is the difference between a boy and girl. He is also not a one to throw-up. He more spits up and it will be about 2 hours after he eats. His spit-up is really acid smelling. He also hates to burp – cries when it is coming up.

I will have to talk to his dr. to find out about switching to a better version of prevacid.

I have been letting him eat any type of food since his allergy test came back negative to everything. I haven’t found that one food makes things better or worse. However, I have never done the elimiation thing and started all over. So I could just be stuck in a loop and not know that something is affecting him or not. I hear an allergy could show up hours or days after you feed themm something.

Becky
What is making you think it is EE? Just curious. Our last doctor is suspecious of it since he thinks CArter has asthma and the two are sometimes related. I am skeptical since it is related to a immune system and all that testing came back fine. The only thing that is making me think it might be is because of his swallowing and being congested right after eating. This is making me think there is an allergy here to something. I am just not sure what the allergy is since we have had him on aliimentum with little or no change.

[Anonymous]

Our Ped GI said our daughter was refractory (resistant) to acid suppression meds because she was still in pain on 15mg of Prevacid per day. I, on my own, had moved her up to 22.5mg of prevacid before we could get back in to our GI doc. Her symptoms improved but she is still challenging to feed. Our doc said that either she has EE or acid reflux and needs a Fundoplication. He said he would not give us 22.5mg prescription and we could try to get it elsewhere. Well, I did, our family doctor agreed since she is growing well. Again, she is improved, but only about to between 50-75% improved depending on the day.

I think she has possibly both EE and acid relux which the doctor said is possible. Since my son had all the same behaviors and symptoms except for eczema (only when I was ingesting dairy while breastfeeding). I just believe that if I can get her through the first 1-1.5 years, I think she’ll be fine. Although, my son did have a g-tube for 2.5 years. Because he had low muscle tone, though, no one considered silent reflux or EE. My son was also born in 2006, which is just on the cusp of EE recognition.

So, anyway, I have put off the upper and lower endoscopy and the pH probe for several reasons. One, if they do a sigmoidoscopy and find she has a dairy allergy…she’ll still be on Neocate. Two if we do a pH probe we will have to quit Prevacid for a full week, and she will be in so much pain not to mention how the oral aversion will get worse. Not to mention that if she is identified as having acid reflux what’s her treatment…PPI (or Fundo which I will fight at any cost since she is growing). Three, the upper endoscopy is the one I am considering because those biopsies are what will reveal EE, but the treatment for that he said are short-term inhaled steroids and guess what…Neocate, which she is already taking.

As far as allergy testing. The allergy department at a well-respected regional center in Wisconsin told me that infants and young children do not benefit that much from allergy testing, many false negatives. And, positive results do not mean that a child will actually exhibit allergic symptoms. They told me to wait as long as possible before I get her tested.

I guess when Nina turns 6 months I will add one food every couple weeks. From what I’ve read though, those with EE, even the typically TED foods can be irritating. So, where to start?

Sorry to ramble. I needed to vent.

Thanks for liking the name Wyatt.

[Anonymous]

acpaop wrote:

I have been letting him eat any type of food since his allergy test came back negative to everything. I haven’t found that one food makes things better or worse. However, I have never done the elimiation thing and started all over. So I could just be stuck in a loop and not know that something is affecting him or not. I hear an allergy could show up hours or days after you feed themm something.

This is making me think there is an allergy here to something. I am just not sure what the allergy is since we have had him on aliimentum with little or no change.

Just to comment on a few things…

Eliminating a food can take up to several weeks before you see any improvements in behavior/sleep/etc. I would strongly suggest you try and see if it helps.

You also mentioned having him on Alimentum and not seeing any change… It’s very possible that he is STILL reacting to the milk protein found in alimentum. Alimentum DOES contain milk protein like other formulas. Difference being that it is more broken down so easier to digest. Have you discussed switching formulas to an amino acid based formula?

Asthma is can also be related to food allergies. Another reason why I was thinking allergy. Sorry if I’m “pushing” allergy on you. I’m just giving my opinion based on his symptoms. 🙂

Oh, and I agree about a med change! Be aware the Dr may not be keen on this, or atleast not prescribe a high enough dose. Marci-kids.com has a lot of great info in this regard. Prevacid would be listed as lansoprazole.

Good Luck & please keep us updated!

[Anonymous]

The allergy is not that far fetched for me. When I was younger the allergy test came back as being allergic to 99% of the things they tested for. I was put on a jello diet as a baby and still was having problems. They decided I was allergic to everything and put me in an oxygen tent at home. Oh and I would projectile vomit across the room as my mother always tells me. I was so bad that most relatives were afraid to watch me and my parents rarely got out of the house. At one point DCFS was called in because doctors wouldn’t believe my parents weren’t doing something to me. Here is hope for all you parents out there – I am for the most part completely normal 🙂 Most of my allergies are gone and my asthma is completely under control. Things do get better! I don’t tell this story to get sympathy because I don’t need – had great parents who treated me like I was normal and had nothing wrong. Just want to let you know that it does get easier. You just need to learn to fight for what you think is right for your child. Doctors don’t know everything and that is basically why we are all on this forum. Parents do know the most!

Anyway, the asthma allergy thing my not be that far off. The only real problem is there is not test for asthma to confirm. So does he wheeze from reflux or from asthma/allergies? He has been on prednisone/steriod before with no change.

Amber,
I used the dosage calculator and his dosage wasn’t in there. There is no suspension for prevacid.

[Anonymous]

I would think that if he was on a steroid w/no change, that allergy would be a red flag. There’s so much history w/you having had issues as a baby that it’s more than possible!

You’re right about the suspension not being on there. There is a way to calculate it though….Laura, Beth Help? 🙂 I don’t remember how you do it! lol

My advice would be…Formula change/med change and increased dose. Most of the time that’s what these LOs need.

[Anonymous]

The dosing(mg) is the same no matter what form of prevacid. You just have to figure out what the dose would be in mls. You need the concentration of your suspension. For example, 15mg/5ml.

[Anonymous]

He has a 3ml suspension which he gets 1/2 tsp 2xday.

[hellbennt]

what does the bottle say in terms of MG?

it should say MG / ml

if not, call the pharmacist….

[Anonymous]

the bottle just says:
Lansoprazole 3MG/ML Suspension

[Anonymous]

Now that I look I think it is wrong. I pulled up his walgreens records online and he use to be on:

*PREVACID SOLUTION 15MG/5ML

That was from an old doctor/ped he saw in urgent care once. I should call his doctor today and make sure he is on the right dosage.

[Anonymous]

Its still the same concentration either way. There is 15mg in 5ml or 3mg in 1 ml. It all divides out the same. Basically he is getting 7.5mg twice a day if your giving 1/2 tsp at a time.

(1/2tsp=2.5ml x 3mg/ml=7.5mg)

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