Doc pushing for Reglan

[Anonymous]

Good luck with the reglan. We tried domperidone, but I don’t think you have access to that where you are. Hope that she doesn’t have any of the side effects.

[Anonymous]

Update: It’s been 2 weeks on the Reglan and we haven’t seen any side effects NOR have we seen ANY benefits. Sooooo…I put in a call to the GI doc yesterday. Long story short, she wants to see her ASAP and squeezed us in for Wednesday. I assume this appointment is just to check her weight and recalculate her dosage (b/c the dose is based on her weight) and discuss how things have been going (or i guess i should say NOT going). i do know the Reglan is doing something b/c we have seen an increase in poopy diapers. But that’s not what I signed up for when we decided to give her this med. I want to see a decrease in what’s coming out the top end!!! not an increase in what’s coming out the bottom end!! if this is all this med does – NO THANK YOU!

[Anonymous]

Ugh. Sorry to hear the Reglan’s not working. Good luck at the GI tomorrow. I hope you can find something that works better.

[Anonymous]

Good luck tomorrow.

[Anonymous]

viridian1 wrote: Update: It’s been 2 weeks on the Reglan and we haven’t seen any side effects NOR have we seen ANY benefits. Sooooo…

I think you now have your evidence to request (OK demand) another med (eg that erythemycin which I can’t spelll or pronouce). Maybe if you say well we did a trial your way and it hasn’t really had any benefits…can we trial the other to see if we get benefit. It would seem a little rigid if the Dr wasn’t prepared to be more open if you tried her way. Maybe then your only option is a more openminded family dr (or a road trip)

I hope you get some help at your appointment.

[Anonymous]

ANOTHER UPDATE: The GI checked her weight and she gained about 10oz in 2 weeks – which is great – remember she only gained 15oz the previous MONTH!! So here’s the plan: The doc recalculated her dosage of the Reglan to the max amount and we’re gonna give it another 3 weeks. We go back to the GI on the 16^th and if she is still not showing improvements by then (with the spitting up) the doc is gonna do a scope. GI says if that amount of Reglan doesn’t work then we’ve missed something. If we do the scope she’s gonna take some biopsies and, based on those, will make changes to Lil’s diet/medication. GI thinks we could be dealing with food allergies on top of the reflux but Lil is too young for normal food allergy testing. So the scope and biopsies should tell us something. If it does then she’ll be put on prescription formula (Neocate??).

So we’ve been on the higher Reglan dose for a week now and still no change. Maybe I’m expecting too much from the Reglan? She gained weight and she hasn’t thrown up an entire feeding since starting the meds. Maybe that’s all the Reglan does? But the spit up hasn’t changed. If she’s awake – something is coming out of her mouth. 30 minutes before her next feeding she’s still spitting up the previous bottle. I guess I need the GI to clarify what my expectations should be for this med. I know it’s not gonna stop the spit up completely but shouldn’t I see some improvement with that?

I’m not trilled at the idea of doing a scope. I’ve talked to some people in the medical field (not pediatrics or GI) and the general feedback is a scope would be very invasive on an infant this young. Did any of y’all scope your kids? And what age? And how did it go?

[Anonymous]

I haven’t used reglan so I can’t comment, but I’ve used domperidone as a motility med, and here’s what we were told:

Since it’s increasing motility of the gut, then you would expect more poopy diapers. That’s usually a good thing since most refluxers are prone to constipation when on a PPI. It should stop the MASSIVE puking by moving the contents through the GI tract faster so there’s less chance for major vomitting. But the baby may will still spit up, there’ll just be less in the stomach so the volume will be less.

Also, I don’t really know why your doc said if the increased dose of reglan doesn’t help then you’ve missed something. I would think that if the increased dose didn’t help, then it would be an indication that she doesn’t have DGE, and that she’s likely spitting up b/c she’s only 4 months old, and probably has an immature LES which needs to strengthen overtime. Also, reflux has shown to peak from 4-6 months, so that might have something to do with it as well.

I’m all for the scopes, as I think that they can give great info, but I don’t necessarily think that spitting up on reglan means that there’s something that “you’ve missed”.

Good luck.

[Anonymous]

I don’t know much about this, but my mommy intuition would tell me that as long as she’s growing and gaining, and she’s not in any pain, that it would be best to stay the course and not subject her to any testing. My son spit up and puked up constantly (due to reflux and dge) but his doc felt that as long as he was keeping enough down to grow and gain normally that we didn’t need to do anything about it. That’s just my (and my doctor’s) opinion, but I thought I’d share it…..

[Anonymous]

When Bryce was put on Erythromycin it reduced his spitting up quite a bit, but he still spit up a lot. It just reduced it enough that he could start gaining weight better. I guess the volume of his spitting reduced – he went from spitting up 3 or 4 oz at a time, to more like 2 oz. So if Lillian is starting to gain weight now, maybe the Reglan is working a little. Maybe instead of a scope though, you could ask to try a different DGE medicine? Just an idea. Also, like someone else mentioned, it might start to improve more once she’s past that “four-month peak” that some babies seem to go through.

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