Infantreflux.org | Been a long time since posting here!

This topic has 19 replies, 1 voice, and was last updated 16 years ago by Anonymous.

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September 11, 2008 at 11:45 am #56402

Anonymous
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Well, it’s been a LONG time since I’ve been able to post in the Hip Hip Hooray category, but today I finally can! Paige slept through the night last night, and woke up just before 7:00 am!!! This is the first time she has done this in all of 2008! She usually wakes at least once, often twice, crying in pain then wanting to eat. I really hope that this could be the start of something good, and it’s been a very long road getting here!

We have been working so hard on her gut. Testing has shown that she has huge levels of multiple strains of bad bacteria, as well as yeast, viruses and parasites in her gut. It appears that she has next to no immune defence in her gut, so absolutely anything she comes into contact with can “set up shop”. As per doctor’s orders, we have significantly increased her doses of probiotics and added S. boulardii. I think we are now finally starting to colonize the “good” and outcrowd the “bad”. And for the first time in her life, she has had normal looking poop for the last few days! Not hard as a rock, screaming and crying to pass it, and not loose or watery! Actual formed, soft poop! And now sleep? Am I in heaven??!!

September 11, 2008 at 11:49 am #56403

Anonymous
Inactive

Oh and how could I forget….. we stopped her Prevacid at the same time that we started the mega-doses of probiotics and she has had NO reflux! It’s been almost 3 weeks now!!!

September 11, 2008 at 12:25 pm #56407

Anonymous
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Oh Sheri ,

i am sooooooooooooooooooooooooooooooo happy to read this update. I know how hard you’ve been working to get her to feel better. I am glad your hard work is paying off.

yeah for good days and improvement

P.S i haven’t lost hope that we and the kids will get together someday.

Leo

September 11, 2008 at 12:35 pm #56409

Anonymous
Inactive

Wonderful, Wonderful News!!!

September 11, 2008 at 12:53 pm #56410

Anonymous
Inactive

Sheri,

i was wondering how is the dose of probiotic you are giving Page and also where do you get your S Boulardii?

i am thinking of trying the ladder one for Kendra since we never tried it before.

i tried PM you but your inbox is full.

Leo

September 11, 2008 at 1:28 pm #56411

Anonymous
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Yay! I’m so happy that something’s finally going your (& your kiddos’) way. I hope for more regular diapers & restful night. Congrats.

September 11, 2008 at 1:51 pm #56413

Anonymous
Inactive

WTG Paige and you too Sheri. This has been a long time coming and I am so excited to see this update. I am praying for many more sleep filled nights and regular poops in your future.

September 11, 2008 at 2:53 pm #56415

Anonymous
Inactive

yay 🙂 .. that is wonderful!!!

question.. how does she seem to gain good weight with all those gut issues (parasites etc)?? shane is soo skinny! i have often wondered what is up with him.. where do you get the testing done?

anyhow.. i am soo happy for u guys! cant believe she is off prevacid as well! when are you able to try solids again?

September 11, 2008 at 3:21 pm #56421

Anonymous
Inactive

Thanks everyone – I’m just so happy today!

Leo – Paige is now taking 1/4 tsp Klaire Ther-Biotic Infant, 1/2 capsule of Kirkman’s Pro-Bio Gold, and 1/2 capsule S. boulardii each twice a day. This works out to 40+ billion CFU’s (colony forming units) per day, plus the S. boulardii. We were given the S. boulardii from Ben and Paige’s new DAN and it’s made by a little known Canadian company. I had been looking into it previously though and would likely have ordered some from either Kirkman or Klaire since they both make a hypoallergenic S. boulardii supplement.

Lauren – I think the Neocate has been Paige’s saving grace in the weight gain department. Since everything in it is so easily absorbed, she gets all her nutrients, fats, etc. absorbed in the stomach and small intestine before anything passes into the large intestine, where most of her problems seem to be. Thankfully she’s been on it since she was very little so she has no problem with the taste and drinks lots of it, although it gets very expensive! Were hoping to try and add more solids in once we have her gut a little more balanced so that she has a better chance of being able to digest them. We did a comprehensive stool analysis on her which showed very high levels of bad bacteria and yeast overgrowth, and based on other symptoms our doctor believe viruses and parasites are also present (these are very hard to test for, and most tests aren’t able to accurately identify the presence of parasites). We had the stool analysis performed by Great Plains Laboratory: http://www.greatplainslaboratory.com/home/eng/stool.asp

September 11, 2008 at 3:23 pm #56422

Anonymous
Inactive

That is SUCH great news!!!!!!!!!!!!!!!

You have worked SO hard to get here with Paige and I hope things continue on in the right direction!!! YAY for sleep!!!!!

September 11, 2008 at 3:25 pm #56424

Anonymous
Inactive

Thanks Sheri!

i’ll look into it.

Leo

September 11, 2008 at 4:36 pm #56437

hellbennt
Keymaster

September 12, 2008 at 7:38 pm #56496

Anonymous
Inactive

Yay! Yay! Yay!! I am sooooooooooo excited to read this update! That is awesome!!!! I hope things continue to improve! Keep us posted!!!

September 12, 2008 at 11:04 pm #56503

Anonymous
Inactive

YAYYY!! I was thinking of you earlier this week. I am so glad to hear your good news!!

September 15, 2008 at 3:13 pm #56644

Anonymous
Inactive

Sheri,

Yay for Paige and for your whole family!!! I hope things continue to improve and you all can get some much-deserved rest 🙂
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