Hi guys. We thought that they had finally found out why my baby was so sick…he tested positive for the C-Diff, not just the bacteria, but the actual toxins. He did great until about 3 days after finishing the Flagyl, but within 3 days all the symptoms were back, pooping lots of pure mucous. Although the stool test was negative, the Doc started antibiotic again. Within 24 hours he was back to normal. But 3 days after finishing that set of antibiotics, he started passing even worse mucous. He is now on his 3rd round of antibiotics for C-Diff, even though the C-Diff test keeps coming back negative. The doc is now saying that the C-Diff may have been more of a result of different, probably bigger problem, with his intestines. He is saying that the colitis (obviously pretty severe) is being caused by something else that keeps flaring up whenever the antibiotics are stopped. Anybody have any idea what could be going on? They are scheduling a biopsy and endoscopy this week. I know the biopsy is looking for hirschprungs, which according the research I have done is a REALLY bad thing if you have colitis, but I have no idea what the endoscopy is looking for? I am so tired, tired of doctors appointments, tired of stressing out, tired of crying, and tired of not knowing what is wrong with my baby!
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I am so so sorry you are going through this!!! I’m sorry I have no advice, just wanted to let you know that you guys are in my prayers and although I’ve not been in this exact situation, I can certainly relate to stress and crying and having to wait to find out what is wrong with your child. Hang in there. He’s going to be ok. HUGS!
