Advice on GI Specialist

[Anonymous]

Hello everyone,

This is my first post. Just want to say that the information on this forum has been very useful. Thanks for taking the time to create such a great resource.

I believe my daughter has acid reflux. She is in Prilosec 1.8ml one a day and Nutramigen. She refused to eat because of the pain. After reading many posts on this forum I feel like her dosage should be increased, but her Ped will not increase it becasue she says it’s the recommended dosage for a 11.7 pound child. She is 7 weeks. We tried Zantac and it worked for maybe 5 days and then we were back to square one. I was finally able to get an appointment to see a GI specialist for next week. Does anyone have any advice on what tests we should have done? At this point we don’t know exactly how bad the reflux is and what medication dosage she should be on. Just trying to make sense of all this.

[Anonymous]

Has anyone ever tried taking their child to the hospital emergency room instead of waiting for their GI appointment? I wonder if they are able to do an upper GI test and ultrasound? I would see why not?

[Anonymous]

Welcome to the site! Our situation was slightly different because Kaelyn was choking on her spit up and turning blue. However, our ped admitted her to the hospital. It was partly to monitor the choking episodes, but mostly so we could see the GI and get the tests done right away. It was a scary time for us, but I’m really glad that he did that. It got us answers much more quickly. I know that in the past, others have posted about finding out which hospital a ped GI is affiliated with and then going to that ER.

[hellbennt]

hi & welcome!

here’s my welcome/intro that I post for all newcomers- it’s long, so you might want to scroll through it, bookmark it & come back to it as you have questions https://www.infantreflux.org/forum/forum_posts.asp?TID=853&am p;PN=1&TPN=1

glad you found us!

~laura

[Anonymous]

We went to the emergency room, but because she was choking and turning blue at 8 weeks. But, i wouldn’t have let it get that far if i had the choice. I did exagerate a little because i wanted the tests. I knew she had reflux, but… I needed to see if her lungs were damaged (yes, she was aspirating) so they did an xray. Also, I they did a test for delayed gastric emptying (dge) because she was spitting up her medicine 4-6 hours after i gave it to her. And they did a upper gi which showed reflux, but they were looking for more things like anomilies. ohh, yeah later they did a swallow study and found she had a swallowing dysfunction (hence, all the choking and gagging). You can go to marci-kids.com and print out the dosage chart and take it to the docs. (i learned that docs are working off of research that is 10 years old, infants metabolize ppi’s 3x faster than adults) if he doesn’t listen, find a new one. There is a post called “gi docs in your area”, where parents have posted their wonderful specialists in their areas that have help their kids.

in the mean time… alot of parents use the zantac with the ppi. Give the ppi and then the zantac 2-4 hours later so they don’t cancel each other out. Also, it takes 14 days for the ppi to take full effect. We did better on prevacid. Mylanta Cherry Supreme worked great before every bottle. I think we use .5 ml when she was that age. Hang in there, i have been were you are. I know how helpless and frustrating it is to see you daughter in pain. Sarah

[Author]

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