Home › Forums › Infant Reflux Support › HELP!!! › 7 wk old w/silent reflux
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hellbennt.
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March 22, 2012 at 2:27 pm #70105
Anonymous
InactiveSo my 7 wk old has silent relux. We started him on Zantac around 4 wks old and it seemed to help for about a week but he is having issues again and they are getting worse with no improvement even with the max dose for his weight.
He seems to have the attacks randomly but they are more frequent now. Writhing his head back and forth, gasping/choking and sometimes coughing, and then crying and gulping. He sounds so miserable and I hate that I can’t fix it.I called his pediatrician and asked about switching to prevacid to see if it works any better so she called it in to a drugstore to be compounded but the drug store told me that 9 times out of 10 insurance won’t cover it and it costs $60. (thats a bit much for us). We checked our insurance website and it says that its not a “preferred network” drug. I am going to call the insurance co to find out if there is any way that they would cover it and what process I have to go through before that happens but I wondered if anyone had any advice on this process. I can see from reading some of the forums that it can take quite a while to get the right medication and dosage figured out and I just want to speed the process anyway I can. I can’t handle this much longer, its so awful for him – especially at night. We have angled his cradle mattress which helps some but he ends up sleeping on my chest a lot. We are going to pick up the cherry supreme mylanta today and start using that too. Any advice??March 22, 2012 at 7:15 pm #70107hellbennt
KeymasterI have a LOT to say and most of it’s here, in a link called ‘groupie intro.‘
it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it. You’ll find yourself coming back to it!
https://www.infantreflux.org/forum/forum_posts.asp?TID=853Prevacid 101:
scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)
https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1I might ask for a RX of prevacid capsules and just give those?
Using capsules(, OTC or RX,) w/ applesauce, pedialyte, etc:
https://www.infantreflux.org/forum/forum_posts.asp?TID=14642&PID=113339#113339
or zegerid?
zegerid mixing– has instructions for mixing the prescription packets and for using zegerid that you buy over the counter:
https://www.infantreflux.org/forum/forum_posts.asp?TID=14637
zegerid has the drug prilosec in it and it has buffers, so that it can be given w/ food. Otherwise, you must give a PPI on an empty stomach, followed by a ‘meal’ 30 minutes later. Examples of situations where you have to follow the ’30 minute rule:’ if you use prevacid solutabs or, if you use either prevacid or prilosec capsules (you would open them up and give the beads inside the capsule- you would give on an empty stomach and administer the beads w/ 1/2 tsp of applesauce & then you would follow w/ a ‘meal’ 30 minutes later).
why should you care about zegerid? because you can give the medicine at any time, even with food, and you don’t have to worry about timing it around an empty stomach.
are there other options?
yes, you can buy over the counter capsules and administer the beads inside the capsule.
any other options?
you can try and TELL the pharmacist EXACTLY how to compound (make into a liquid) your prevacid or prilosec. However, for whatever reasons, it can be difficult to get a high enough dose prescribed and, for whatever reasons, pharmacist insist they’re doing it correctly their way and they don’t take kindly to compounding the way you or your doctor tells them to.
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