Home › Forums › Infant Reflux Support › HELP!!! › 6 weeks old – sandifer's and apnea
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hellbennt.
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January 7, 2009 at 1:26 pm #60128
Anonymous
InactiveI posted this in Misc. but maybe it goes better here (sorry – new here).
Hi, I posted in the introduction folder about my 6 week old who has severe reflux with Sandifer’s and apnea episodes. She was put on an apnea monitor last night and it went off 3 times. And she has had one blue episode.I keep reading that children with neurological issues have this – what percentage of reflux babies have only reflux and outgrow it and what percentage have other issues? What type of other issues should I be on the lookout for?She has had a CT scan and an EEG which seem normal. She makes eye contact, coos, smiles, can lift her head a little, has opened her hands . . . so she seems to be doing okay.When she sleeps she has these periods where she will kind of writhe, pull up her legs, and elongate her neck – I am thinking these are periods where she is having reflux pain. If she is in acar or bouncy seat when this happens sometimes she will lift her arms up high too. I guess this is the Sandifer’s. Also, sometimes right after I feed her and she seems to have a gas bubble stuck she will get real still and her eyes will dart back and forth like in a trance and then she is fine once she burps.When she is not fussy – she seems like a totally normal baby. Sadly, we have days where that never happens.However, our biggest issue is definitely sleep – it seems to be worse at night AND she gets congested, wheezy and snores at night. What can I do to help us all get some sleep?Also, she is taking Prevacid (liquid) – .7ml twice a day. The doctor also said I could give her Mylanta and gas drops. I asked about Gripe Water but they didn’t say. I also have read on here about probiotics and would like some more info about that? I need help figuring out how to give her medicines, at what intervals, etc. Doctors are surprisingly unhelpful in this area. Plus her feeding is so irregular it is hard to give her the Prevacid on an empty stomach.Does anyone use probiotics? Can you use them this young? Do they help? What kind?With the apnea – if the alarm goes off and it is literally like 20 seconds, it doesn’t do any damage to her, right? The doctors are surprisignly calm about this – like she has to be blue and out for a couple of minutes and need ressucitation (however you spell that) before it is a real concern regarding damage. Me, I don’t want this to be happening.Any help would be greatly appreciated.KarenIsabella – 6 weeks reflux w/sandifer’s and apneaJanuary 7, 2009 at 5:52 pm #60131InactiveOnly have a few minutes but wanted to address a couple of things…
-Nighttime congestion & wheezing: this is a red flag for intolerance (MSPI or MFPI) to me. Is she breastfeeding or on formula? If bf’ing I would consider some diet restrictions (I will elaborate more if this is the case). If formula – what kind is she on?
-Liquid Prevacid: if you’re on a liquid of Prevacid it’s probably compounded. In that case you don’t have to give on an empty stomach so don’t stress about that. You can give compounded @ any time.
-Prevacid dosage & form: to piggyback of that… check out marci-kids.com for info on dosage info & also about the problem w/ compounded prescriptions. Most likely your dose is too low & your rx was made inproperly. I don’t mean to discourage you… but I started exactly where you are: w/ a fussy, unhappy baby w/ a low dose of compounded Prevacid.
-Probiotics: we started Probiotics around 4-5 wks old. We use the Klaire Labs Ther-biotic Infant Formula. I have a link around here somewhere but don’t have it right now. We buy from theapexstore.com. They’ve helped us a lot.
Gotta run – HTH some & sorry I couldn’t answer all your questions & concerns.
January 7, 2009 at 8:11 pm #60133InactiveWe are on Similac Sensitive RS
January 7, 2009 at 10:26 pm #60138hellbennt
KeymasterI too only have a sec-
jonah was on apnea monitor-what helped Sandifer’s was MEDS and not just MEDS butPROPER MEDS, PROPER DOSING, and PROPER FORM of MEDSthis board & http://www.marci-kids.com got us on the right track!hi & welcome!
I have a LOT to say & (most of) it’s here:
J
Groupie Intro: my intro: https://www.infantreflux.org/forum/forum_posts.asp?TID=853&PN=1&TPN=1
Please PLEASE take the time to read/scroll/skim through the info from this link, as it truly will help you!
so glad you found us!
~laura
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