Lori (S H’s Mum)

Oh no Lori – I’m so sorry to hear that Hailey is still sick – I’ll be thinking of you guys and hope she feels better soon.

I’m so sorry to hear this, Sarah. Have they suggested a feeding clinic or Early Intervention to work on his eating?

I know how you feel Sarah. It’s awful. Big hugs. Hopefully they get over this soon. I took Hailey to the ped today because she was up all night (literally) and he just said that these things need to run their course. Hopefully it’s over for us both soon. It makes me paranoid about bringing her near other kids, like to playgroup, because if a little cold does this then it’s really scary.

Congrats on the job, Sarah. That’s great! Is it f/t or p/t? Were you in childcare before you had Isaac? Hailey is still sick, but a bit better today…just whining nonstop and not sure why. Still not eating. We have her EEG tomorrow, so hopefully they won’t turn us away b/c she’s got a cold (it’s a two hour trip so I’ll be pretty mad if that happens).

I know what you mean about the whining…. it’s maddening!

I’m so sorry about the eating, Sarah. How much fluid is he taking in? He’s off bottles, right? I’d try not to worry about it as long as he’s hydrated (though I know it’s easier said than done). Hope you feel better soon.

Hailey’s slowly getting over the cold, but not totally better yet. Last night was a night from h*ll!!! I couldn’t get her to sleep, and she was up for almost 2 hours screaming- not sure why. She’s cutting 4 teeth right now, but they’re mostly through so I’m not sure if that’s it. We took a chance and went down for the EEG today, and thankfully they did it. But she wouldn’t give the injection for sedation. We tried to get her to sleep there- got her up early and kept her awake and then tried to get her to zonk out, but she was freaking out so much that she couldn’t relax. Then the nurse told us that it’s up to her to decide how to sedate, not us, and that she wants to do oral sedation. I explained that Hailey has reflux as well as an oral aversion, and she didn’t know what that was. She kept saying, “what do you mean you feed her in her sleep. How does she take a bottle when she’s sleeping”….(sigh)… it’s so annoying to explain. Then she told me that she’s never had a mother get mad about oral sedation before, that she’s an expert, and that she can get Hailey to take it, and she won’t puke it up. So she started restraining her and forcing it in, and then pinching her nose closed… Hailey was wailing, and then right at the end of it, I heard it coming back up in her throat. I was able to convince her to leave the room, and to forget the last ml, and then I was able to calm her down by closing off the lights and pacing for half an hour. Eventually she fell asleep enough for them to do the test thankfully, but her sedation was so light that she was still sucking her tongue in her sleep, and whenever someone moved she flinched. But I’m so happy that she didn’t wake up fully and we got it done. I can’t stand going for tests when people don’t understand what a feeding aversion is… I always wonder how they could work with so many sick children and never have heard of it before. It makes me so irritated when they talk to me like I’m a moron when I tell them that “no, she won’t take a bottle, and yes, I know that an EEG isn’t to diagnose reflux!”….sheesh!!!!

Not sure. Probably about a week or so. I’m a little nervous because they did this thing where they put a light in front of her eyes and had it flash almost like a strobe light at different speeds. I assumed that it was standard. But when I asked my husband if they did that when Sarah had hers (I wasn’t in the room as Hailey was just a few weeks old at the time), he said that he didn’t think so. So I hope that he just forgot.