Home › Forums › Infant Reflux Support › Introduce Yourself!! › Mommy of 9 month Laura w/ GERD
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March 30, 2013 at 2:08 pm #71908AnonymousInactive
Hi everyone!
I’m new to this forum and am really mainly looking for open arms, hope that “there is a light at the end of the tunnel”, others who understand my frustration, etc.
My LO was a very challenging infant – constantly had to be held, cried ALOT, major sleeping issues, etc. She was diagnosed with reflux around 2 months – we tried Zantac for a coulple weeks but saw no change, and she has been taking Prevacid ever since (used to be 1/2 a tablet a day but is now twice a day). I kept on thinking her reflux would go away around 6 months (which happens with “most babies”) but I feel like it actually got worse once we introduced solids. Oh yay – instead of white/yellow puke, we get orange or green puke!!! The good news is that she is a happy baby, despite the spit up. Whiney sometimes, but that’s always cured once I pick her up & cuddle her and/or “wear her” in carrier. I’m stressing out now because she is still at a really low weight. The doctors (both pediatrician and GI specialist) have me doing weight checks now. We also had her taking erythromycin for a month to help her clear her stomach. I didn’t feel it made much of a difference, and it made me uncomfortable to have her on an antibiotic 4x a day. So we are taking a break for a couple of weeks to see if there is any change. I just get so frustrated when my LO doesn’t eat as much as her buddies, and I worry about my milk supply when she doesn’t eat much, and I can’t pump with her right there(I’m still nursing, but supplenting with formula to try to get her to get in more calories). I wish I could see a light at the end of the tunnel. Could she have this for the rest of her life? I wish I could fix it!!!! 🙁 I’m exhausted. Every day is so unpredictable (well, early 5:20 wake-up is usually predictable, but naps and eating and spit up quantities are all over the place).
Any words of encouragement or understanding would be greatly appreciated!!!
March 30, 2013 at 3:56 pm #71909hellbenntKeymasterthis will end soon! your little girl is in good shape that she’s not in pain!
so that’s a BIG start!
as for getting more into her- I would continue to nurse her & start giving her foods that are high in ‘good fat’
have you tried avocado?
what foods seem to agree with her? I can help w/ some ideas to fatten up her diet…
I understand about your supply- I would eat a LOT OF FATTY (good) foods your ownself and drink a LOT of water!!!
use flax seed oil (can’t cook with it- add to yogurt and salad dressing, & smoothies- cook w/ a LOT of olive oil….
there’s a mom here ‘happy mom’ who will chime in and tell you that her ‘cure’ was probiotics and digestive enzymes. well, you can certainly try!
probiotics, brands used:
https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1
my second child would not eat! I wound up researching & reading about baby-led solids and this is what worked! it was amazing for him! he was 7 months old.
basically, it’s about giving them chunks of food and letting them be in control – I was scared at first, but I was curious and worried, etc, so I tried-
there’s a post somewhere here where I posted about my son- he was 7 months old and I covered up his high chair w/ a hefty garbage bag and sat him in the seat and gave him a WHOLE (ripe!) banana (unpeeled, lol), the whole thing!
well, he got some into his mouth & voila! he started to eat better- I gave him chunks of foods like sweet potato, steamed veggies & fruits, etc- BIG chunks! and it was easier to go from there…
try it?
here you go, some links
https://www.infantreflux.org/forum/forum_posts.asp?TID=13768&KW=baby+solids+weaning
Erin’s sticky:
https://www.infantreflux.org/forum/forum_posts.asp?TID=12948&PID=105126#105126
More Erin: https://www.infantreflux.org/forum/forum_posts.asp?TID=13175&PID=106395#106395
Erin post: https://www.infantreflux.org/forum/forum_posts.asp?TID=13576
Great anne post: https://www.infantreflux.org/forum/forum_posts.asp?TID=9242
More recent post – TED and success also using probiotics
https://www.infantreflux.org/forum/forum_posts.asp?TID=15293&PN=1
April 1, 2013 at 10:06 pm #71914AnonymousInactiveThanks Laura!!! (a sign that the first person to so kindly respond has my daughter’s name 🙂
I do want to continue nursing her for two more months (my goal was at least till one year) – but my supply is really going down – I’ve been drinking mother’s milk tea, tried taking fenugreek, eating tons of oatmeal, etc. I’m even adding in a pumping session after she goes to bed (ick! What we do for love!). I put flax seed inmy oatmeal every morning, but I haven’t tried flax seed oil. Is there a difference?
You are right – I should try experimenting more with foods that are high in “good fat” for her – but I have gotten antsy about experimenting too much because I just want her to enjoy eating, so stick to things I know she likes – sweet potatoes, Cheerios, bananas, peanut butter, bread, and certain puree combos I’ve made (mixed veggies, chicken & brown rice for example). She doesn’t like avocado, unfortunately. Ironically, it was the first food I gave her at 6 months – but now she won’t eat it anymore – she can even tell when I try sneaking it into something else! I’ve tried giving her both Greek and regular yogurt too (whole milk “yo baby” banana & blueberry). She wasn’t as much of a fan as I thought she’d be. She would eat it, but only a small amount (like, 1/3 of the little single serving container – and that was with whining, and if I gave her a few Cheerios in between every bite to distract her). I should try what you did with your second child – because I do think Laura enjoys the foods more that she can pick up/ be in control of (now that she can use her fingers to pick things up, instead of sticking her entire fist in her mouth like she did only a couple of weeks ago, LOL). I have been giving her chunks of banana (instead of puree) but maybe I should just give her the whole banana & let her go to town?! Haven’t tried giving her chunks of sweet potato yet – only in puree form. That’s a good suggestion. Thx.
Were the probiotics and digestive enzymes things you took or that you added to your LO’s food? Is it something that doctor needs to approve?
In terms of TED – I had cut out dairy for about a month a while back and saw no difference. And Laura had no allergies show up when they did biopsy last month during colonoscopy. I keep track of everything she eats, when I nurse, how many ounces of formula when I supplement, how many times she spits up, how many wet vs. soiled diapers, how long she naps, etc EVERY day and feel like I go insane trying to find some pattern and I never do!!! I can’t tell why she spits up more on some days & not others, why she’ll eat better some days than others, and the sleep, oh the sleep!!!!!!! Have no idea what the ticket is there. I wish I hadn’t read so much about it in books, online, talking to other mommies – because I think you can just throw it all out the window when you have a baby with GERD.
April 1, 2013 at 10:28 pm #71915hellbenntKeymastermore later – but wanted to reply-
try baking/cooking the sweet potatoes in oil
try coating the sweet potato slices/fries in crushed cheerios
try crushed cheerios as coating for chunks of steamed foods, so they’re not so slippery
peanut butter? how old is she?
make french toast (pancakes, waffles) and put peanut butter on it
try other nut butters
hellbennt2013-04-01 22:28:57
April 1, 2013 at 10:51 pm #71916AnonymousInactiveInteresting ideas re: coating w/ crushed Cheerios!
Yes, I will try baking the sweet potatoes in olive oil.
My little Laura is 9 months old (she’ll be 10 months in a week). She’s been having peanut butter for a couple of months now (my doc actually encouraged having her try it sooner rather than later?! apparently the old way of holding off for a long time actually had a reverse effect and actually caused many babies to develop the nut allergies?) Maybe I should try almond butter too…
I was thinking about pancakes & french toast today since she likes carbs so much, so you must have read my mind. I wonder if a little butter & maple syrup would be ok, or if that’s a no, no?
I know honey is definitely off limits.
April 2, 2013 at 10:12 am #71921AnonymousInactiveIndeed… “Happy Mom” will chime in 🙂 Sorry it took so long. We were gone over the weekend and now the laundry piles are huge and so is the dishes pile etc…
Will post a long reply asap!
April 2, 2013 at 7:52 pm #71928hellbenntKeymasterslather those carbs with fatty nut-butters – there’s not much nutritional value in syrup…it sounds weird to *us* but
my little ones ate peanut butter, almond butter, cashew butter on all *kinds* of foods!
if she’ll eat it (my kids did at that age): black strap molasses– it’s full of iron!
who knew? look around a health food store…
if she’ll eat it: I put it on waffles, french toast (you sure she can have egg? I think I remember just the yolk, right?), pancakes
sweet potatoes, baked squash, even plantains…
at 9 months I gave beans…can she eat them?
hummous (probably too spicy, but you never know…)
organic canned beans right from the can (rinsed) – kidney beans, canneli beans, navy beans, garbonzo beans, lentils…
you can make ‘pancakes’ (think like crab cakes but of course, no crab!)
with all kinds of things: squash, potatoes, rice, etc. get creative
look through the various forums, I’m sure there are more ideas…
April 2, 2013 at 9:33 pm #71934AnonymousInactiveThx – I’ll check out the black strap molasses. Still need to do the pancakes.
I tried the cut up sweet potatoes (in olive oil) today but she didn’t really go for them (to my surprise). She still has no teeth, so maybe she wasn’t biting the pieces enough to taste the flavor (as she would when they were pureed). But I did give her a piece of whole wheat bread today. Didn’t even break into pieces. Just took off the crust and let her go to town. I think it made her feel pretty cool 😉 I do need to get to Trader Joe’s for that almond butter though.
I haven’t tried beans yet. They’re not a choking hazzard? I guess they’re squishy enough….
April 2, 2013 at 9:34 pm #71935AnonymousInactiveOh, and good call on the hummus! We even have some in the fridge. I’ll have to try that tomorrow.
Today was an average spit up day (about 13x). At least it only got on my shoulder twice….
April 2, 2013 at 9:43 pm #71936AnonymousInactiveThink this one is ok, or do you have a brand preference?
April 3, 2013 at 1:06 am #71938AnonymousInactiveOK… I am back…. First of all.. light at the end of the tunnel… oh yeah… I know all about wishing for that and wondering if there is such a thing!
Reflux go away at 6 months.. wouldn’t that be lovely?? I had hoped for that too but not to be so for us.
Orange and green puke… yep…. it makes for a very beautiful carpet. Give it another few more months and all the spots will start to merge together and any company that comes over will want to know where you bought your lovely carpet with the green and orange hues in it.
You have a happy baby? Yippee for you and her!! That’s awesome but I know that you are still having stress and I’m so proud of you for wanting to get to the bottom of her problems!
Low weight… well, yes, I know that can be of concern but does she look and act healthy? My little girl is happy and healthy so I was shocked to find last month that her height and weight were in the 5-10 percentile. I don’t take her to well-child checkups so have not been watching her weight. She is much “fatter” than my boys ever were! No wonder my first son was Failure to Thrive. But my husband and I are both on the smaller side. What kind of build are you and your girl’s dad? That can have a huge impact on the child’s size. Is she eating ok? Or is she refusing a lot of food/bottle/breast? Unless she is severely underweight and refusing to eat, her weight really may not be that big of a concern.
Antibiotics…. YIKES!!! I do everything under the sun to keep my children away from antibiotics. Yes, they can be a life saver but for people with digestive problems they can make things much worse. More later….
Will your child suffer the rest of her life? Many many babies outgrow their digestive problems. So most likely yours will too. But some don’t. I have come to accept the fact that my children will always have digestive problems. I don’t like it but I am glad that we have found things that aren’t drugs to help them.
Allergies… your baby probably doesn’t have food allergies. But rather food intolerances. And food intolerances won’t show up on allergy testing.
Diet… cutting out foods… awesome! YOU are an awesome dedicated mom!!! Round of applause for you!! 🙂
A few thoughts on some of the above mentioned foods… my daughter isn’t sensitive to a lot of foods but beans and bananas are among them. Bananas will cause a tummy ache and “sticky sand” in her diaper. Beans cause gas.
OK I’ll hit post now and then start on my probiotics and enzymes info. 🙂 Sometimes I spend a long time writing stuff and somehow lose it just as I go to post it. 🙁
April 3, 2013 at 1:22 am #71939AnonymousInactiveWell, I really like to write this out personally to people but since it is so late I will copy and paste some info that I have written on my blog about prbobiotics and enzymes. First I will say this… Have they “cured” my children? Well, it all depends on how you define “cure”. As long as my children take the probiotics and enzymes every day with every meal, then they can eat pretty much anything. Do they ever complain of a stomach ache? Yes, but normally it’s because they haven’t taken their pill. But as I said earlier, I think my children will always have sensitive digestive systems. But I am so happy to have children that sleep all night long pain free! And it was absolutely a wonderful thing to have a happy baby (3rd one) that hardly ever spit up. Like nothing more than something I couldn’t dab up with a kleenex. Burp rags?? I bought 3 for her and they still look nice. To learn more about how things went with her read here. http://help4acidreflux.wordpress.com/our-healthy-3rd-child/ I also tell there how taking the probiotics and enzymes while nursing made such a difference. Also make SURE to read this…. http://help4acidreflux.wordpress.com/should-i-quit-nursing-and-go-to-formula/
OK… here’s what is copied from my blog….
My first 2 children suffered badly from digestive problems. My oldest had blood in his stools before he was a week old and soon spent most of his time screaming in pain. He always acted hungry but very quickly threw up whatever he ate and he slept for only very short periods at a time. At a couple months of age his pediatrician labeled him “Failure to Thrive”. Eventually we figured out that dairy and soy were a big part of the problem. Until he was age one he drank Nutramigen, then we tried different milks with no success. He was on Prevacid until age 3. He was able to quit the meds when we started giving him alkaline water to drink. Although it did not cure him, he was quite a bit better with the water than the meds.
My second child was pretty much a rerun of my first except that I knew just a little bit more about reflux etc. He started taking Prevacid at 5 days old. At 9 months old I started making his bottles with alkaline water and by a year old he was off the meds.
Alkaline water helped with the reflux and pain, but did not make it so they could tolerate foods.
A year after starting them with the alkaline water, a friend suggested that I contact a well known nutritionist named Shan Stratton that specializes in digestion. I was surprised and impressed at how much he knew and how well he explained what was going on with my children. I will try my best to explain what I have learned from him along with some of what I have learned on my own through research. What I write is correct to the best of my knowledge, but it is possible that there is some incorrect statements and if so, I ask your pardon.
Before a baby is born, their digestive tract is sterile- meaning it is free from bacteria. The baby will pick up it’s first “dose” of good live bacteria (also known as probiotics or gut flora) from the birth canal. Whatever kind of probiotics mom has in there is what the baby will get. The next “dose” which is the highest strongest dose a baby will ever get, is from colostrum. Probiotics play a huge role in the health of the baby. They make up over 70% of the immune system and they are what line, coat, and protect the entire digestive tract.
Antibiotics kill not only bad bacteria but the good also. If a mother has been on many different antibiotics throughout her life it can alter her probiotics. This in turn will alter what kind the baby gets. If the mother has been on antibiotics while pregnant, for sure close to or at the time of giving birth this can severely alter the probiotics that baby gets. In fact, if on antibiotics at the time of birth, the mother may have no probiotics to pass on to her baby. And of course if baby has antibiotics at any given time it will kill off the probiotics. If the mother takes them while nursing, she will pass them on to her baby and it also will kill his/her probiotics.
If a baby is born by c-section, this can make him/her be behind in building up the probiotics. But if he/she gets plenty of colostrum it will certainly help.
Some babies who are born by c-section, are on antibiotics, get no colostrum, or all of the above, are not necessarily doomed for digestive problems. Some babies are really strong and healthy and their body has no problems making and building up its own probiotics. But for some, this can be the start to the digestive system not working well.
For some babies, they will greatly benefit from a probiotic supplement. When someone is low on probiotics, they are low on many, so the best supplement would be one that has at least 10 different strains in it. But the bottom line is that your child gets relief.
Another problem for some children can be a lack of sufficient digestive enzymes. Digestive enzymes are what are in all foods (before they are cooked or processed) to aid in breaking them down. They are especially needed for breaking down proteins. If a nursing mom eats a diet of mostly raw foods this can help some but unless the foods are organically grown, they are not very enzyme rich. The pancreas is what makes digestive enzymes and it will try to compensate for the lack of them in foods, but for some babies it can be difficult for their pancreas to keep up making enough to break down the food (proteins in particular) that they take in whether it be through breast milk, formula, or solids as they get older.
For some babies, they can inherit the problems of their body not making enough digestive enzymes, and for these children, they may carry this problem all of their life. Just like the diabetic doesn’t make enough insulin.
When “food” is placed in the stomach, the stomach will excrete a small amount of acid to activate the enzymes so they will start breaking down the food. If there are no or little enzymes, then the stomach will excrete a little more acid. Eventually the food is forced into the intestines even if it isn’t fully properly broken down. If the food isn’t broken down then it will very difficult for the body to be able to absorb and use it. For some children, this undigested food will sit in the intestines too long and the longer “food” stays in the intestines, the more moisture that is drawn out of it, and it can cause constipation.
This excess acid that the stomach makes, can play a major part in some babies digestive problems. Too much acid will kill probiotics. And beings that probiotics are the protective coating for the entire digestive tract, then without it, the food, reflux, or stool will rub right up next to the esophagus and intestines themselves and can cause them to become raw, inflamed, and even bleed sometimes.
There are many different brands and companies out there that sell probiotic and enzyme supplements. We use a product called “Digestive Health” sold by Core Health Products. It contains 13 different strains of pH stabilized probiotics, prebiotics (which are food for the probiotics), over 20 types of broad spectrum plant based digestive enzymes, and several different types of soothing herbs. http://www.corehealthproducts.com/products/digestive?
Wellllll I hope it all makes sense to you!! But if not feel free to ask questions! 🙂
April 3, 2013 at 7:54 am #71942hellbenntKeymasterbest EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2
Exposure to foods & blood testing:https://www.infantreflux.org/forum/forum_posts.asp?TID=12993
Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638
Another Sheri explanation- intolerance/allergy post:
https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442
Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies) https://www.infantreflux.org/forum/forum_posts.asp?TID=10815
April 3, 2013 at 7:56 am #71943hellbenntKeymasternot sure about bread? I can’t remember…watch corn? corn syrups?
there’s no brand of blacksrap molasses – I think I bought whatever whole foods had- if there’s a choice look to see whichone has more calcium (I forgot it has calcium?) & iron
April 3, 2013 at 8:38 am #71945AnonymousInactivethx
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