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January 26, 2013 at 7:27 pm #71526

Anonymous
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I am a first time mom to my daughter who is almost 3 weeks old.At first we had no issues feeding but it seemed like ask of a sudden she started spitting up, not sleeping unless we held her, her breath smelled like soured milk, gagging while feeding and what seemed to be stopping breathing while feeding. Of course, being new parents we where at a loss of what could be wrong with our little girl.

After going to two different pediatricians (we fired the first for other reasons) and a trip to the ER, she was diagnosed with ‘pretty’ severe acid reflux and started on Zantac 0.5 ml two times a day.

That being said, we have been giving her smaller feedings more often, sitting her up straight during and after feeding and we also propped up the head of her mattress. This all seemed to help somewhat but she is still suffering.

I am so glad I found this site and there are more parents out there who also deal with this issue. We felt so helpless not knowing what else to do to help our little one.

Any advice would be wonderful!!!

January 27, 2013 at 1:25 am #71528

Anonymous
Inactive

Hello and welcome! I’m really sorry your little one is suffering! It’s really hard on the mama…. I know!! It really “hurts” to watch our little ones be in pain and not know what to do for them to help. (((HUG)))

I would like to offer some advice but am not at home and don’t have time right now. So for now I will suggest that you read my blog. (see signature) I have created it for others to read because I hope that by having others read what we went through and what we found to help I can be of help.

January 27, 2013 at 10:31 am #71532

hellbennt
Keymaster

welcome!

you’ve found the {b}best place to research all you can to be the best advocate for your baby!

I have a LOT to say and most of it’s here, in a link called ‘groupie intro.’

it’s looong but TRULY will help you- read through it, refer back to it, scroll through it/skim through it.

You’ll find yourself coming back to it!

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

you can do this!

Next: if you’re even here (which you are)

it is a sign that you need to get your baby to a specialist, a ped GI.

There are recommendations for ped GIs in your area…

Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660

You really have to know your stuff and be able to TELL your doctor what it is that your baby needs.

Even OUR doctor, who was WONDERFUL, we had to tell. He didn’t object – he listened, our request(s) sounded reasonable, and our baby got what he needed. it was a long process. I hope to help others to get theirs going faster…

You need a game plan.

Me, I’d want to address PAIN and the SOURCE of the pain.

Is it MSPI or an immature LES? Or both?

This is all in Groupie Intro:

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

I don’t know what to tell you what to expect.

It’s hit or miss.

You could leave your doctor appt. (talking about the ped GI appt., but this is relevant to ped appts., too) feeling like you were listened to, and that the dr is really going to help your baby. Or, you could leave thinking that the whole visit was a complete waste of time.

Have symptoms down pat.

If baby cries, is it HOWLING? SHRIEKING? (that’s what my baby did).

When? After eating? (for my baby it happened any time, regardless of when he ate)

How are poops?

Are they mucousy? Mucous can look stringy, like the inside of a banana, or like jelly or cottage cheese.

Are they painful?

Does baby strain & grunt & push & then when it finally comes out it’s soft?

Is it hard little pebbles?

reflux what I have learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&a mp;PN=2

PLEASE read through Groupie Intro, you’ll learn that zantac is very weight sensitive & that babies ‘plateau’ on it.

Calculate the highest dose of zantac by weight. It’s 10mgs per kilo.

no need to ‘just’ take my word on this (or anything! please don’t! research and make your own decisions!)

Zantac dosing- my/other’s question (has axid & pepcid doses, too):

https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1

I have learned that it’s better (in most cases) to TELL your doctor and see what happens. So, I’d TELL the doctor whatever it is that you need to tell her/him for your baby.

For example: a referral to the Ped Gi, an increase in zantac dose, trying a PPI (PLEASE read PREVACID 101!) going to continue with the zantac, as you wait for the proton pumps to shut off (that’s what the PPI does). Research all you can in the Medicines Forum and then you’ll know what you’re talking about when you TELL the doctor.

To be honest, I found that FAXING the doctor(s) worked best.

TELL dr you need _______ (example: new rx for zantac or how to write the PPI Rx, or what dose of PPI) don’t ask. TELL.

FAX FAX FAX the dr

don’t wait for a call…

start off with a THANK YOU

keep it short & sweet

stick to the FACTS (no emotions and ramblings)

state current meds, doses & symptoms

make request- flat out- short & sweet

provide pharmacist name & contact info

THANK AGAIN

follow up by calling office to tell them fax was sent

call again later to discuss requests made in fax, ie:

is RX called in yet?

THANK YOU

sample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325

About faxing the doctor (& more): https://www.infantreflux.org/forum/forum_posts.asp?TID=2841&TPN=1

this is a LOT to learn, but you can do it & we’re here to help!

hang in there!

laura

Prevacid 101:

scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)

https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

in the meantime, I’d also research about ‘the products’ (again, in Prevacid 101)

and I can’t recommend them strongly enough- I am NOT paid by them, nor do I receive any compensation from them WHATSOEVER! I just BELIEVE in the University of Missouri and their research team and Dr. Philips, in particular.

Again, it’s in Prevacid 101 (or maybe in the ‘products’ page- the ‘products page’ is linked to from Prevacid 101)

January 27, 2013 at 5:33 pm #71533

Anonymous
Inactive

Thank you both! It is has been such a learning game since we had the little one. All of your info has truly helped!

January 30, 2013 at 9:16 pm #71571

hellbennt
Keymaster

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