Getting no where please HELP!

welcome!

you’ve found the best place to research all you can to be the best advocate for your child!

first of all, I have learned that it’s better (in most cases) to TELL your doctor and see what happens. So, since it can take up to two weeks to see the full efects of the PPI (prevacid or prilosec)

I’d TELL the doctor that you’re going to start with zantac, as you wait for the proton pumps to shut off (that’s what the PPI does). Research all you can in the Medicines Forum and then you’ll know what you’re talking about when you TELL the doctor.

Seeing a specialist may or not help, I’m afraid.

Look here to help you research:

Looking for GI: https://www.infantreflux.org/forum/forum_posts.asp?TID=660

there are recommendations for ped GIs in your area…

I don’t mean to discourage you, *sigh.* It’s just that you really have to know your stuff and be able to TELL your doctor what it is that your baby needs.

Even OUR doctor, who was WONDERFUL, we had to tell. He didn’t object – he listened, our request(s) sounded reasonable, and our baby got what he needed. it was a long process. I hope to help others to get theirs going faster…

If you were/are doing the compounded liquid, again, research and then TELL the doctor to please humour you and to write the RX a certain way for the pharmacist- it’s in

Prevacid 101:

scroll to the last page of this post, (it’s actually also about other PPIs like prilosec, too)

https://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1

in the meantime, I’d research about ‘the products’ (again, in Prevacid 101)

and I can’t recommend them strongly enough- I am NOT paid by them, nor do I receive any compensation from them WHATSOEVER! I just BELIEVE in the University of Missouri and their research team and Dr. Philips, in particular.

Again, it’s in Prevacid 101 (or maybe in the ‘products’ page- the ‘products page’ is linked to from Prevacid 101)

I’d also calculate the highest dose of zantac by weight. It’s 10mgs per kilo.

no need to ‘just’ take my word on this (or anything! please don’t! research and make your own decisions!)

Zantac dosing- my/other’s question (has axid & pepcid doses, too):

https://www.infantreflux.org/forum/forum_posts.asp?TID=8288&PN=1

To be honest, I found that FAXING the doctor(s) worked best.

TELL dr you need _______ (example: new rx for zantac or how to write the PPI Rx, or what dose of PPI) don’t ask. TELL.

FAX FAX FAX the dr

don’t wait for a call…

start off with a THANK YOU

keep it short & sweet

stick to the FACTS (no emotions and ramblings)

state current meds, doses & symptoms

make request- flat out- short & sweet

provide pharmacist name & contact info

THANK AGAIN

follow up by calling office to tell them fax was sent

call again later to discuss requests made in fax, ie:

is RX called in yet?

THANK YOU

sample fax: https://www.infantreflux.org/forum/forum_posts.asp?TID=10633&PID=90325#90325

About faxing the doctor (& more): https://www.infantreflux.org/forum/forum_posts.asp?TID=2841&TPN=1

I don’t know what to tell you what to expect.

It’s hit or miss.

You could leave there feeling like you were listened to and that the dr is really going to help your baby. Or, you could leave thinking that the whole visit was a complete waste of time.

Have symptoms down pat.

How are poops?

Are they mucousy? Mucous can look stringy, like the inside of a banana, or like jelly or cottage cheese.

Are they painful?

Does your child strain & grunt & push & then when it finally comes out it’s soft?

Is it hard little pebbles?

(muscous in the stool usually is a sign of a protein intolerance)

You might want to go in w/ a game plan.

Me, I’d want to address PAIN and the SOURCE of the pain.

Is it MSPI or an immature LES? Or both?

This is all in Groupie Intro:

https://www.infantreflux.org/forum/forum_posts.asp?TID=853

reflux what I have learned: https://www.infantreflux.org/forum/forum_posts.asp?TID=2948&a mp;PN=2

this is a LOT to learn, but you can do it & we’re here to help!

hang in there!

laura

(I edited your post- just because you quoted everything, & I like to keep things flowing smoothly on the board)

there IS a lot of reading/research to do, but, once you know your stuff you can ‘take charge’ and TELL what is best for your child.

Was your daughter on special formula? I’m trying to see if there’s any allergy/intolerances going on. That would be my first guess/hunch.

You need to research about the DIFFERENCES between intolerances and allergies.

best EXPLANATION OF FOOD ALLERGIES/INTOLERANCES and their RELATION TO REFLUX that I have found, to date: 2nd post: https://www.infantreflux.org/forum/forum_posts.asp?TID=2697&PN=2

Exposure to foods & blood testing: https://www.infantreflux.org/forum/forum_posts.asp?TID=12993

Sheri’s allergy/intolerance explanation: https://www.infantreflux.org/forum/forum_posts.asp?TID=10223&PID=87638#87638

Another Sheri explanation- intolerance/allergy post:

https://www.infantreflux.org/forum/forum_posts.asp?TID=11579&PID=97442#97442

Accuracy of allergy testing & great post by sherri explaining IgE and IgG (intolerance/allergies)

https://www.infantreflux.org/forum/forum_posts.asp?TID=10815

probiotics, brands used:

https://www.infantreflux.org/forum/forum_posts.asp?TID=8970&PN=1

erin posts that mentions enzymes:

https://www.infantreflux.org/forum/forum_posts.asp?TID=12781&KW=enzyme

https://www.infantreflux.org/forum/forum_posts.asp?TID=12610&KW=enzyme

https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzyme”>https://www.infantreflux.org/forum/forum_posts.asp?TID=12227&KW=enzyme

Post from me:

https://www.infantreflux.org/forum/forum_posts.asp?TID=12200&KW=enzyme

ok but when she was a baby, what did she eat? breastmilk? formula? if formula, what formula?

how are her stools?

is she constipated?

are they mucousy?

please read about INTOLERANCES because she could be intolerant to protein(s), not necessarily *allergic*

as for limiting dairy at night- with dairy it’s all of nothing- it’s the protein- if you’re going to limit it, I’d try for a good two weeks to DELETE it entirely- even as a *hidden* ingredient…

no worries about the quoting- if you were referring back to something specific, yes, please quote

I googled & found this article for you

http://erj.ersjournals.com/content/11/1/151.full.pdf

I can’t tell you that your girl’s respiratory issues are food-related, but I would not be surprised if they are, especially given her past with reflux…

Just read about food intolerances (links in above post) and you can decide what you think?

what does she eat? is there something that she eats a LOT? pasta or rice or potatoes or something?

maybe it’s not dairy, but wheat (& I DON’T mean celiac, or gluten, I mean wheat)

or apples or peaches or dried fruit (SULPHITES are a ‘biggie’ in the asthma/food intoerance world- raisins? dried apricots?) or fruit drinks

or seafood (I skimmed through the above article, but these are things I ‘know’ anyway) or sauces like tomato sauce

or soy products

or corn (corn syrup is in everything!)….

” Another kind of intolerance is being sensitive to sulfites or other food additives. Sulfites can trigger asthma attacks in some people.”

from:http://www.webmd.com/allergies/foods-allergy-intolerance

I know it’s a lot to digest (pun intended! )

It may wind up that it’s not related to foods/digestion…but, if it is, then keeping a food journal, taking notes, trying probiotics & enzymes might help (and if it doesn’t, then at least you’ll know you tried…)

not sure to tell you about when she’s not sick- maybe when she’s sick there’s foods that exaccerbate things? like maybe there are foods that make her nose runny but you don’t notice it & then, when she’s sick those same foods will make her cough/asthma-y? I truly don’t know!

yes, absolutely coughing can be from reflux…the meds don’t stop the reflux, just the pain- it might be time for a scope to ‘see’ what’s going on in there- if her esophogus is red & irritated, well it’s reflux & also they can do biopsies to find out more of what’sgoing on- also if you give her zantac & she sleeps better that’s a clue too. you can give her OTC zantac – you can crush it and simply add it to the Mylanta Cherry and shake well.

75mg in 5 mL

Mylanta Cherry Supreme is the one variety of mylanta that does not contain aluminum; you can’t find it anymore, but, you CAN find store-brand equivalents. Try rite-aid, cvs brand, walmart, target, Bartell Drug (West coast), Dollar General, brand names: Geri-Care & Geri-Lanta Supreme, meijer, etc- just look for one that does not list aluminum in the ingredients. you can give 1ml up to 5 times a day- it’s safe, even for newborns. if you see loose stools back off.

If you tell me her weight I can calculate zantac dose for you- or buy pepcid chewable and give 1/2 to her crushed & dissolved in some water- she’s 4 now so she can eat tums ,too…

well, the scope should give you some good information- read through and know what to ask about- like the presence of EOS cells – also do a search (upper right-hand corner) and search kevieb as the username- she’s posted recently about her own issues and a more recent post had scope info…

ask (TELL) your doctor you’d like to try tums/zantac/pepcid whatever – just to see if it helps her any? but those things wouldn’t help with a cough per se…