HeLp – Nutramigen making baby worse

My son (3rd child) was diagnosed with reflux at 3wks old. His Pedi started him on Zantac, but there was no change. (Note: He arched back, cried before/during/after feedings, has congestion, spit up and swallowed back down) At 7wks he went to a CHOP GI Specialist. She put him on Prevacid-compound (1/2 tsp or 2.5 ml). He was good the first 3 days, but hasn’t been since. He is now 13wks and his crying has gone down from 6-7 hours daily to 4-5 daily, but he still seems to be in pain and uncomfortable. Giving him the compound every morning on an empty stomach and not letting him eat til 30 mins after. I try to get him to take all of it, but it is a battle as he always spits it out. He was breastfed and even with a strict diet (dairy and soy free) he did not change. He had the barrium swallow and it showed reflux but pipes were clean. He went to GI again this past week and she has him trying Nutramigen for a week. He is on day 5 of the Nutramigen and seems to be worse. He spits up all the time, has diaper rash, takes 2oz cries calms down and takes another 2oz, and is arching his back again. He is scheduled for an endoscope on April 2.

I am at my wits end and don’t know what else to do to help him. I don’t know if it takes this long to see a change once on Nutramigen or if it’s posible he is reacting bad to it (Note: he would not take Alimentum at all). GI says the next step is Neocate, but that is super expensive and there is no definite that he has a food allergy, no blood or mucus in stool.

Sometimes I wonder if this will ever end…