I don't know where to turn. Please help!

Hi! I’m new to this site and am trying to find answers for my little girl. I posted this under “introduce yourself” but maybe it fits better here. She has reflux, but her treatments aren’t helping. I don’t know what to do.

I guess I will start from the beginning.  She is almost 4 months old.  We started noticing that she was throwing up a lot and not gaining weight well when she was just a few weeks old.  We have tried Zantac, Prilosec, and Axid.  Our pediatrician also recommended Nutramagin formula.  After a few weeks of that, I took her to a pediatric GI.  He put her back on Zantac (increased the dose and told us to mix it into a bottle this time), told me to continue breastfeeding (but eliminate all dairy), and continue supplementing with Neocate formula.  We also do 12 tsp of rice to 5 oz of formula.  It has been two weeks and no change.  I called this morning to see if we could try something new, but he said he didn’t want to see her for another 3 weeks to make sure all of the changes have had time to take effect.   We have also had an upper GI with barium done.  It showed reflux, but no obstructions. Even with all that, she is still hurting. I don’t know where to go from here.

My husband and I are at the end of our rope.  Babygirl cries all the time.  She cries when she eats (takes a few sips then screams then takes a few more sips and arches her back and cries more).  This happens especially when I nurse her. After she eats, she and cries for about 30 minutes straight unable to be consoled.  A lot of times after she eats she stretches her body out. It almost looks like a toddler’s temper tantrum, then she relaxes and cries. I feel so bad for her. I know she must just hurt all the time. She is fussy overall during the day.  She only naps in 30 minute intervals, but sleeps about 6 hours a night.  She sleeps on her side. When I wake up to check on her, she always has her head thrown back. I have found throw up by her mouth in the morning. I’m worried she will aspirate in the night and I won’t know. She throws up ALL the time during the day.  Not just a little spit up, but puddles on the floor.  She is still throwing up 2-3 hours after a feeding. I can hear the gurgling in her throat and her wet burps make her cry or stiffen her body.  She is a happy baby when she isn’t crying or throwing up, but 75-85% of the day is complete misery.  She wants to be held all of the time, so I spend my day trying to cuddle with her and cleaning up throw up.  I feel like this is never going to end. I get frustrated because I feel like nobody understands. I’ve heard “well at least it’s not colic.” and “you just need to buy a good swing.” I’ve only been away from her to grocery shop a few times, and I refuse to leave her with anyone but my husband because I can’t leave her knowing how bad she hurts. Am I crazy? Is this just normal?

If anyone has any new ideas, please share them!  I know we are blessed that reflux is our only health concern with our baby, but sometimes it feels like we are going insane.  I appreciate any tips or advice anyone can offer. I just want to help her feel better.

Thank you so much!