Do you think this is reflux?

kevieb wrote: we’ve had reflux and we have celiac. i’ll start with you’re middle son—-i think your doctor is an idiot to tell you to try an elimination diet. sorry for sounding so rude, but your son is old enough that he should most likely be producing Ttg antibodies. I agree with you 1000%.The problem is my husband and I don’t see eye to eye on the Gluten issue. Not even with me. if you put your son on an elimination diet you could end up keeping him off of foods that he doesn’t need to be off of—that comes from dr. green, who is supposesd to be “THE” authority on celiac. the tests usually are not accurate in children under 3 years old because they don’t always produce the Ttg antibodies at that age–don’t know why. you need to make sure that the doc runs the right tests for celiac also. i have 3 girls with celiac disease and we have been doing gluten free for going on 6 years now. we were lucky enough to get in on a celiac study being done by the university of california,irvine—and they did not only celiac testing, but genetic testing on all of us—and it didn’t cost us anything. my husband and i and 8 of my 9 children all carry one of the main celiac genes—for some reason, the disease has only activated in the 3 girls so far—but i periodically have myself tested when i am having other blood work done—and i really should have everyone else periodically tested, too–but i don’t seem to get it done. we used to get the celiac girls’ blood tested every 6 months to see how well they were following the diet—but we haven’t had insurance for awhile. we get back on insurance on insurance oct 1, thank goodness. my twins both had reflux and were on meds until they had been gluten free for about a year—and then they were able to go off the meds. I had extream reflux myself until I went GF. i would be willing to bet that if your baby has milk coming out of his nose that it probably burns like all get out. i’m surprised he isn’t fussy. As days go on, I see him getting more fussy ( he turned 4 weeks yesterday) sylvia had really bad reflux, but, she did not spit up very much the first couple of weeks–but she was a very fussy baby–and got fussier as time went on–and she also started to spit up more and more over time. we had to hold her almost 24 hours a day for about 2 months. if you are lying in bed and nursing your baby—and that is the only time he is getting stuffy, it sounds like it is probably being caused by the reflux—especially since you see milk coming out of his nose——i would want to treat the reflux if it were me—before he becomes really fussy. I go for the 1 month check up on Thursday. I think I am going to push the meds. I dont want a repeat of my middle child.

it would be pretty hard to get a strong willed 4 year old to not eat things he wants when you can’t give him a reason why. if you get him tested, and it is positive, you can (try) to explain to him all of the problems that he could end up with if he doesn’t stay gluten free. if it comes back negative, you can either do allergy testing to see if something else is causing his symptoms, or you can wait a few more years and test him for celiac again. by the way, what is happening that makes you susprct he has celiac? He had food allergies from the time he was born. He is in the 5th percentile for weight (both my kids are) he has the “buddah belly” He still has reflux, and I can tell he’s uncomfortable most of the time. He acts out at times, and I truly believe that it’s because he does not feel well. He has probablt never felt great, so he knows no different. He STILL has cradle cap at 4. He has very large “bulky” stools, and lots and lots of gas. He is also sick with some sort of URI, or ears every 2-3 weeks requiring antibiotics. He has been allergy tested twice and the first time he was positive for milk and eggs, and the second time he was negitive for everything. My oldest son, has the black eyes, extream gas, greenish stools (sometimes really soft) belly aches, and he is also in the 5th percentile. I brought up the weight thing on Friday (another sick visit for antibiotics) i asked him about pedisure. He recommended ice cream milk shakes every day for both of the kids to up the calories. I said I dont like to give them that much milk……and he told me to use another type. i dont know if i agree with that. all 3 of my girls had different symptoms–one of them actually didn’t even have any symptoms—except that she looked like an ethiopian child—but all of my kids are skinny, so i didn’t think too much of it—but i did have tonsils taken out of two of them because several people told me that as children they had been really skinny until they had their tonsils out–then they gained weight—the girls had large tonsils and swollen glands—so it seemed a reasonable thing to try.

we have been able to reproduce almost everything gluten free that we ate with gluten. we make muffins,pancakes, cookies,cake, soft thick pizza crust, fruit and cheese danish, even frog eye salad and sweet rolls. if you’re still figuring things out, let me know if you want any tips. we hardly even use the gluten free cookbooks, we use our old betty crocker recipes–or any recipe we find and want to try. my twins have become quite good cooks since 9th grade when they were diagnosed—good thing since they are both getting married before christmas!!!

My husband and i had a fight about the gluten thing yesrterday. I was tested a year ago, but negitive. I had been GF for 3 weeks prior to getting tested. We have no knowalagable Dr’s in the area that know what they are doing. I have a co worker that went to Italy to be diagnosed and treated. The Drs over here tell her she is negitive for celiac, but she has been GF for years.

I agree how frustrating it is. After my middle son was born, I had some health issues. I saw an endo, a gi, a neurologist, and my ob. The endo told me my thyroid was out of whack but not enough for meds, and basically I was over weight and that’s why my liver enzymes were high. The gi told me it was IBS and that I needed more exercise and water. The neurologist showed me positive for lupus, told me I was depressed, had fibromyalgia, and maybe chronic fatigue. She sent me to the sleep specialist who told me my tonsils and adenoids were enlarged. My gp put me on a med that is no longer on the market (it helped!) I met the girl at work who has celiac and I went gluten free. Everythig cleared up. My dh used to tell me that I would have to dig a hole in the back yard from now on since everytime I went to the bathroom I clogged it. I can always tell when i get gluten because that returns. When j don’t eat it I don’t have the problem.

No one around here understands gluten sensitive. Either you have celiac, or your ok with gluten. Makes diagnosing anything impossible. My dad is positive. My mom said she can trace my stomach issues back to when I was 3 weeks old. I had all the same things my middle son had. Rashes, acne, PMDD, panic attacks , major anxiety, etc.

I even told my pedi that I was positive for celiac just so he would take me seriously.

My husband on the other hand…… Just doesnt get it. He works a lot so I do all the cooking and shopping. It becomes A huge issue when he wants to go out and i pack my own food……

My poor baby boy is getting worse and worse:-( trying to hang in there until my dr apt on Thursday. His poop is green and mucusy. Is that a good intolerance or reflux? My other son had it and had both. My little guy is so miserable. It’s coming out of his nose and mouth. Hrs spitting up with each nursing and just uncomfy:-(