Home › Forums › Infant Reflux Support › Boo-Hoo! I need YOU! › worse than ever…
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July 15, 2009 at 11:06 am #63291AnonymousInactive
Argh. So things were starting to go well for Sam about a month and a half ago…he was nursing again, eating solids, and SLEEPING! He went from waking up 5-6 times a night to waking up only once. Then he started teething. He got 2 teeth and completely stopped eating. Also sleep went to crap again. Now he fusses ALL day because he is tired and hungry. He’s also starting to crawl and wants to do that all night in his crib. Last night he was awake from 115am until 445am. Maybe it seems so much worse now because I got to see how the other half lives…the half with babies that don’t have AR. We went to the pedi on monday just to be sure there wasn’t something else going on. He actually upped his dose of zegerid from 20mg to 30mg. I was shocked that he suggested it because he always played the low end of the doses and the GI would not increase either. Only been 3 doses at the new level but no improvement yet. I’m not optimistic since meds don’t make much difference to sam. I faithfully give the zegerid, carafate, and mylanta as needed all to no avail. He’s had every test (with the exception of a ph probe) and everything is normal so there is basically nothing else to be done. Also keeping up with the tylenol now since I think the top teeth are moving around a lot. I know this has been said before, but it’s just NOT FAIR. Not fair to the babies and not fair to the parents. I should be grateful I suppose that he will nurse at night so he looks very healthy and has maintained his weight. I’m so tired. Bone weary exhausted, physically, mentally, and emotionally. And frustrated… I know I shouldn’t be frustrated with Sam because he can’t help it, but I find that I am sometimes. I’m grateful that my husband is so wonderful and we have made it through the past 8 1/2 months with very little arguing in spite of the stress that the family is under. I had hoped he would be outgrowing this by about this age, but there is no end in sight now. Now I am constantly afraid that his eating issues will become completely behavioral even after the reflux is gone. To sum it all up, this sucks. a lot.
ok, vent over.July 15, 2009 at 8:57 pm #63300hellbenntKeymasterA BIG ‘OLE HUG TO YOU
July 16, 2009 at 9:29 am #63305AnonymousInactiveThere are many of us on here who have been where you are. It’s OK to have those moments. I went through the same thing w/my LO. As far as it becoming behavioral…In my LOs case, once the teething wasn’t an issue she did a complete turn around. She’s little Ms Piggy now(THANK GOD). 🙂 Averi didn’t start eating well until she was about 14-15 months old. Some kids it takes time. I just want to give you hope! Vent any time 🙂
July 16, 2009 at 9:40 am #63307AnonymousInactiveMy son, now 3 years, had a g-tube, and he was about the most difficult baby I have ever known due to reflux pain, vomiting massive amounts and food aversion. He is now g-tube free and in no pain. He eats completely normally and sleeps peacefully.
It was without question the hardest time of our lives. It does get better. Just hang in there. Give the new dose some more time. Your son is so lucky to have you as his mommy. -
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