bad for weeks,months,

Brenda, I don’t have answers just offering some support to you and your family by passing on what we have learned. I hope Carson grows out of it soon. I know how hard it must be on the other kids in the family too. You mentioned marci-kids… Ryann is 8 months old and on 30mg of prevacid. We split it up 3 x a day, apparently babies metabolize 3x faster than adults. Also, we give the beads to her in a bit of applesauce, wait 30 mins. and then feed her a full meal.

The neocate is awful! My dd takes it now, but only after we mixed it with nutramigen and then gradually phased it out. We also thicken it with simply thick and beechnut oatmeal (no soy). DD doesn’t like baby food either, I have to distract her to take the couple spoonfuls with medicine in it. She is living off of those gerber puffs, corn flavor, with no soy in it. Good enough for now, they have added iron and zinc, so doc. said allright.

Also, it really helped with ear infections when we put her in a sling and wedge combo. She sleeps alot better too on her tummy.

We have started giving her coats aloe- strawberry/kiwi kind. My husband knows the owner, he has given it to his own children who had reflux and grandchildren. Supposed to have a healing effect. I have notice a difference, can’t hear her hoarsness or stridor anymore. She is taking 1 oz. 2x a day straight from a syringe.

So difficult with refluxers, you never see immediate results. Hope you find something that helps him soon!

Has carson had an endoscopy yet? My andy was scoped recently since he wasn’t responding to his dose which was also a decent amount for his weight etc. After the biopsies the ped GI doubled his dose in order to prevent his damage from getting worse.

Hang in there until you see the ped GI. sometimes they are willing to tread where peds are not.

You can’t stop the reflux but you can neutralize the acid so that your little guy has time to heal. I would recommend the Aloe and possibly even probiotics. The probiotics will really help move things(food) along and probably what you’ll see is less forceful reflux coming up. Also since your little guy was most likely taking antibiotics in the recent past the probiotics will help to set things right in his stomach.

I do agree with you on getting the reflux under control before going gung ho on the tubes. Between the ENT and the ped they have always told me that tubes are only recommended after about a year of chronic infections(i was considering them for dd 2 yrs ago when she went through constant infections but she magically outgrew it at age 3).

Other than that i would still recommend constant diligence about positioning that i am sure you have already heard.

uh oh the kids are getting restless so i gotta go 🙂

If he’s only eating when sleeping he is probably so uncomfortable from the constant acid burning his esophagus that he won’t eat when he’s awake. I’d really push for a higher dose of Prevacid. Too little just won’t do the trick. My son suffered for months until I found this site and the marci-kids site and finally convinced my doctor to put him on the right dose. I printed the information and sent it to her so she could see the research and the PPI dosing information for herself. Then, and only then would she put him on the dose he needed, 10mg/3x’s per day. I would highly recommend that you print the information on PPI dosing and take it with you to your GI appointment. Many doctors (including Ped GI’s) are not aware of this research and our babies are under dosed.

Here’s the link http://www.marci-kids.com/

It’s quite possible that if he was getting enough Prevacid he would feel a whole lot better and his eating issues would improve dramatically, and he’d probably sleep a whole lot better if he didn’t have chronic heartburn. The higher dose helped my son tremendously!

Good luck and glad you found us

i think you would want an endo and ph probe done to see if surgery is really necessary. there is usually certain criteria to be met before a doc will do surgery. my daughter had a fundo at almost 10 months old, but she was anemic, failure to thrive, had an ulcerated esophagus, and was refluxing almost 25% of the time.

kevieb2006-4-17 20:12:29

Brenda:

I am also from South Dakota – where did you take Carson? We are from the Aberdeen area. Have been to a pediatiric gastroenterologist in Fargo but he was such a jerk. Things are going ok now but wonder for future reference.

Thanks!!

Great news about the Prevacid increase!!! Hopefully Carson will be feeling much, much better soon. I’m with you on the frustration with these doctors not knowing about PPI dosing in infants. It drives me nuts because my first reflux baby suffered needlessly for nearly 9 months. I didn’t know about this site and didn’t have any information to help her. My son (second reflux baby) also suffered for months, but thank God and thanks to this site and Marci-kids, I was able to convince my doctor to put him on the correct dose of Prevacid and he finally began to feel better and eat better. I feel so, so bad for people who don’t find this information or can’t convince their ill informed doctors to prescribe the right PPI dose. These poor babies.

Anyway, I’m so happy for you and Carson. Please let us know how he is doinng.

ndrose2006-5-23 15:43:3

Great! I’ll give you my email and we can maybe make plans to meet one day. That’s cool that our oldest girls are the same age. They’d have fun at story book land together.

I’m actually fairly new to North Dakota (5 years) so I don’t know all the surrounding communities yet. I’ve heard of Licthville, but don’t know where it is, and I thought Sioux Falls was in northern SD!! I guess I should go out exploring more, or at least study the map a little! My friend who’s lived here all of her life told me about Story Book Land. Otherwise I would never have found it.

I hope to hear from you and meet you soon. Here’s my email

[email protected]