Home › Forums › Infant Reflux Support › Boo-Hoo! I need YOU! › He got his tests done, already
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November 6, 2008 at 10:45 pm #58418
Anonymous
InactiveThey called me tuesday night to bring him in Wednesday morning. They have diagnosed him with GERD. He was aspirating into his lungs frequently. They were white. So he’s on antibiotics and steroids for 4 to 6 weeks. If by now thickening all his milk intake and starting him on solids he isn’t cleared up or having a major improvements they will be putting in a feeding tube. I’m just not sure if this is really good news or bad..
November 7, 2008 at 9:01 am #58420InactiveI am sorry for so much trouble, but so happy for you that you have an answer and a plan that will help get things better for you and your LO. It is so important to do what you need to in order to help him and you are doing a great job at finding out so much so quickly! I think that it is tough to find out, but also, so great to know it is something he will be able to overcome in time and things will get so much better even if he needs the tube.
Hugs and hang in there!!!!!!November 8, 2008 at 10:04 pm #58489InactiveJust as a great note about feeding tubes, they are truly life savers to children like mine. And maybe yours.
Let me know if you have any questions.How old is you LO and what kind of tube ar ethey thinking aobut putting in??? It makes a big differnce on WHAT kind it is since there is an aspiration issue.November 9, 2008 at 2:07 am #58495InactiveCayden is 5 months old. The tube will be through the nose. Dr said it would be for 6 weeks to give his throat a break.
Also they are booking a swallow study to be done asap.
November 9, 2008 at 7:35 am #58496InactiveHi there,
i am very sorry your baby is struggling so much. If he is aspirating so frequently, have the drs said anything about trying thickening his milk before trying the feeding tube? If thickening doesn’t help the aspiration issue, he might need the feeding tube for longer than 6 weeks. If that the case a G-tube(a feeeding tube in his stoamch) is way better than the tube through the nose.That said, my dd has a feeding tube for other reasons and it saved our sanity and helped my dd have a better quality of life.If you have more question, please ask away.Big hugs. It will get better.November 9, 2008 at 1:41 pm #58501InactiveLemoliana wrote: Cayden is 5 months old. The tube will be through the nose. Dr said it would be for 6 weeks to give his throat a break.
Also they are booking a swallow study to be done asap.
The swallow sutdy is a good idea. That way they can tell on what thickeness he does well. So you can thicken it properly.Is it going to go in the nose and just to the stomach (NG tube).It all depends on which way the aspirations are coming from. If they are comign form above while swallowing, then thickening and Speech Therapy will help and the NG tube in the mean time.If the aspirations are coming form below form the reflux comign up and going into the lungs you’re gonna want a differnt tube other than an NG tube, well, it all depends. If you do slow continuos feeds with the NG that would be best for a child who is aspirating form below.That would provide that the stomach isn’t “full” so the chances of the reflux going up high enough to aspirate woudl be lessend.However some kids aspirate so badly form below they need to be ND or NJ tube fed. Into the Duodinum or the Jejunim. (I know I spelt that wrong..LOL)Even more rare is the kiddo who will aspirate on stomach juices so they have to be fed to the J and drain form the G to help.That all said, if you are looking at having the tube longer than 6-8 weeks, I really would look into having one surgically placed. Believe me, after shoving that tube donw his nose for a hwile, you’ll want one.And yes, they teach YOU how to do it. The nurse will NOT come out at the drop of a hat and do it for you. I know some parents who will go to the ER to do it, but then you ahve the wait, and the co=pay along with it, SOOOO not worth it.You’ll get used to it. It’s hard, but you will. And before long, you’ll want an G tube.I know alot of times, paretns are todl they will only have the tube for short term and end up with it long term. That was the case with us. It was o nly supposed to until he had his heart surgery at 6 months old. He got an NG tube at 9weeks old a G tube at 9 months old and still has it. We only just stopped using it recently in July. -
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