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Ok, so have the time & prep info for the procecedures (EDG & colonoscopy) tomorrow.
It’s @ 7:30am (1st procedure of the day!) & we have to be there @ 6:30am (leave the house @ 5:30am). So he can’t nurse past 3:30 am
. It will be hard, but we’ll get through it.They said to do 1 Baby Lax enema @ bedtime.Anyone know where to buy that? I’m going to have to go w/ the boys by myself to get them b/c dh will be late getting home (we’re also buying a car tonight w/ all the mayhem going on
) so I’d like to only have to make 1 stop-lol.But since he can nurse up until 3:30am won’t he still have poop in his system?I called the children’s hospital & asked this question & she just said to do what the GI office’s instructions said & that it would be fine b/c they don’t like to do a lot w/ the babies… but the instructions are for babies 12mths & under. So are they assuming that those kiddos won’t be eating past bedtime (after the enema)? I called the GI office & they weren’t much help either.Oh, also… no IV or mask. They use a sedation drug & Evan will breath on his own, etc. So, that’s good to hear.So, after 4 phone calls & more confusion…
The BabyLax enema is now Pedia-Lax enema & the instructions say “DO NOT USE UNDER 2 YRS OLD”. I called Ped GI office & they said if I can’t find BabyLax (well, I won’t be able to find it b/c THEY DON’T MAKE IT ANYMORE) then to only give Pedialyte from 3pm today until 3:30am… um, to a 2mth old? They said yes.Thankfully the Ped GI nurse called Walgreens & they said the Pedia-Lax enema will be fine.Then, I questioned about doing the enema before bedtime or to just wait to do it after his last feeding (@ 3:30am) & they said to do it after 3:30am… so that will be a good time
.Sorry for the late update. When we got home earlier Evan & I laid down for a rest & JUST got up.
I guess getting up @ 3:30am took it both out of us.Anyway…
Evan did great & was such a good little guy. He slept until 2:45am last night (!!) so I fed him then & woke him again @ 3:30am to feed him. Then we woke him @ 4:30 am to do the enema. We left @ 5:30am & he slept the whole way up to the hospital so that was nice.
We arrived @ 6:30am & they pretty much prepped him starting right away… weight, height, temp, blood pressure, pulse, etc. He did have to get an IV but he was a trooper…& that nurse is talented finding his little vein. He got a little fussy around 3.5hrs (7am) but they have sugar water to dip the paci in & he really liked that. He actually fell asleep until 7:45am when they took him back.
He was in the procedures for about 20min, then they paged us & when we got to recovery he was sleeping on his little baby stretcher so peacefully. They had to wake him up after about 20min & he was groggy & out of it, but didn’t cry @ all. They wanted me to nurse him right away & I did, but he was really struggling b/c he was so out of it.
The EDG (upper endsocopy) showed everything normal & good. No irritation or ulcers from reflux & no esophageal thrush.The colonoscopy showed some inflammation & irritation (allergic colitis) most likely from Milk/Soy Protein Allergy but it’s almost all healed… only slight inflammation. He has a tear near the rectum so that’s probably what’s been causing the majority of the bleeding – although the inflammation could still be bleeding some too.He took multiple biopsies from both the EDG & colonoscopy. They will have the results in 3-5 business days & will call us. I think if I understand correctly that this will confirm if the inflammation in his colon is from allergic colitic or something else. It will also hopefully obviously rule out major problems.
So, basically Ped GI says to just keep doing what we’re doing. We have a follow-up appt w/ him in 4-6 wks (I need to call & make the appt).
Evan no longer has stinky gas. His diapers alternate b/w yellow & green and actually smell like a breastmilk diaper (finally). I will probably start adding things back into my diet in the next couple days.
We are still going back & forth trying to make a decision w/ his Prevacid. He gets really bad bloating & gas from the CaraCream (from either the corn syrup solids or sodium bicarbonate) so we went back to the capsules w/ pureed pears. He does better w/ this but strains quite a bit to get the pears out (probably just a lot of work for his little system still). Last night we went back to the solutab & gave that to him (so we wouldn’t have to enema out pears-ick) & he slept until 2:45am.. but we worry about him reacting to the lactose (milk) in them b/c of the Milk/Soy Protein Allergy. So…there’s not really an easy answer there. On the other hand, he hasn’t had any Prevacid today & hasn’t cried @ all since being home – so who knows-lol.
Thank you for all the support & prayers. Although we don’t really have any super definitive answers we do know some things we didn’t know.
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