Suseptibility Testing?

I haven’t checked Lab Corp….I doubt they do it. It seems most of the more local labs do it rather than large chains. I am going to check it out though. Thanks for the suggestion. I have family in Idaho and Utah where every doc office has its own lab. I may do some research there and maybe fly home for a bit. I’m going to try the local hospitals as well. Does anyone know how expensive it is?

I haven’t gotten a 2nd opinion from another GI, but I do have an appointment with a Ped Infectious Disease doc on Tuesday that is supposed to team up with my Ped GI. I’m excited about that because I really like my GI, I just don’t think he deals with the medication of C-Diff babies often (he’s never put a baby on Vanco before). Ped infectious disease docs should have lots of that specific experience. This way I will hopefully have the best of both worlds.

It is true that many babies test + for the C-Diff bacteria. However, it is my understanding most do not test + for the toxins. The bacteria will eventually get weeded out by a healthy GI, but once the toxins are being produced, its a whole new ball game. They cause lots of damage in the intestines and are super hard to get rid of. Sometimes they result in removing pieces of the intestines. They determine damage to the intestines by endoscopy which makes me curious….Erin, did your doc say anything about the toxins? Did he seem to think the toxins were normal? Or was he just talking about the bacteria? If a baby can have toxins and have it be normal (in the sense that it will just go away eventually), I will cry with joy. This is not something I have heard. But if your doc only treats C-Diff based on endoscopy, then he has to be only treating when there is actual damage done to the colon…right? Hmmm…interesting.

Thank you everyone for the support, I really don’t know what I would do without you all!!

Thanks for the link (and for doing research for me). I will check into this today and let you know what I find out. It sounds like your doc might not even treat the toxins unless there is actual damage. I’m going to ask the GI and ID docs about that. Also, I was going to ask how Evan is doing? Are you nervous about the endoscopy? Do you know if they are doing a full endoscopy? I mean how far into the colon are they going to look?