I’m completely and totally frustrated with the physicians in my local area. We’re 50 miles from a “major” hospital and I’ve always trusted our local people to send us there if we need to be…but this is getting silly.
Xavier started power-hurling last Saturday, bright and early in the morning, and continued throughout the day…every single thing that went in, no matter if we did an ounce at a time or three, came back out. Sometimes within a matter of minutes, sometimes he “saved it up” for three hours before launching it back. By Saturday evening we were concerned enough to take him to the local ER. “Must be his reflux.” *Sighs* That’s all we ever hear when we say “vomitting, no fever, no diarrhea” and “he’s got a history of acid reflux”. Like, because he’s a reflux baby there’s NO WAY he might get a stomach bug.
Dr says “Feed him less at a time”
I say “It isn’t working, we’ve already tried it and he’s down to not wanting to eat now. An ounce every three hours or so”
Dr says “Give it some time”
So, we go home and keep up the fight of keeping him hydrated.
Monday comes and he’s still throwing up. I take him to his ped’s office and see a nurse practitioner. After keeping us waiting for 2 HOURS in the lil 6 x 7ft room and sticking him for blood and doing an abdominal xray….must be his reflux.
Dr says “Try feeding him less at a time”
I say “We’ve tried that, it isn’t working.”
Dr says “Clear liquids…better yet, only pedialyte.”
I say “He won’t take it, he hates the taste.”
From there we just get in a battle of wills. Mine wins when I walk out and ask for his records to be sent to me at home and I’ll find a different office.
So, I take him to a different office today. We’re on day 5 of throwing up at least two or three times a day. Guess what??? Must be his reflux AGAIN.
So, I catch this dr up on what we have so far. We’re “maxxed out” on his prevacid dose at this point…30 mg a day. She’s in shock at the amount he’s taking “That’s an adult dose!” Uhhuh. He’s still not running a fever, he’s still not “sick”….so, ok, maybe it IS his reflux…but what are we going to DO about it????
Dr says “We got him an appointment with the peds GI guy to see what they want to do….in three weeks.”
I say “Three WEEKS???”
Dr says “That’s as early as they can get him in. In the mean time (you guys are going to love this) Feed him less at a time.”
I (again) say “It doesn’t work, we’ve tried it.”
Dr says “Well, it’s about all we can do for now.”
Do YOU guys have any other ideas??? We already thicken his bottles to sludge with a tsp of cereal per ounce and we give him his prevacid plus some cherry mylanta for breakthrough, we do the whole hold him upright stuff…I feel like we’re hitting that “worst case” time and have NO idea where to go now!! It seems like he’s got to have the absolute worst case of reflux ever known to man for all the “I don’t know”s I get when I ask anyone around here. And if I hear “Feed him less at a time” one more time I’m going to pull my hair out!! We’re down to feeding him an ounce every three hours…and he’s STILL throwing it up!
XaviersMom2008-03-26 14:33:10
.
He’s done very well with the sweet potatoes, carrots, squash, and cereal. Actually…we’ve had to use food coloring to turn fruits orange so he’ll even go near them to try them out! Not only do I have a refluxer…but apparently he likes the color orange so much he won’t touch a food that is a different color. Figures, huh?My husband and I are seriously thinking about taking him the 50 miles this weekend to go to the ER at the major hospital that happens to be home of the elusive peds GI so that we can get him seen sooner.
Until then…I’m buying stock in laundry detergent!
