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I’ve actually never been one to put a lot of stock in my intuition, but I’ve come to believe that, when it comes to my child, I really do have a gut instinct. And, that gut instinct is telling me that my 6 month old baby is not being medicated properly!
Here is a brief rundown:
Went to see a ped GI on 2/4.
Started on compounded Prevacid on 2/5.
New baby emerged immediately. After a few days, I believed we’d found a miracle drug.
9 days later, the bottom dropped out, and my dear LO was back to screaming at naps/bedtime.
After some internet research, I saw that the compounded form of Prevacid is tricky to do correctly, so I phoned the doc and asked for a new Rx. They sent us to a different pharmacy that supposedly does it “right.”
Started new compound on 2/16. Again, saw a new baby that same day. She was able to go to sleep peacefully on her own.
That lasted for exactly one week. Now, we’re back to crying, no, make that screaming, at nap times.
I’ve been on the phone numerous times with the ped GI’s office, but feel as though they don’t believe me. I just talked to them again today and was basically begging for a new Rx. Something. Anything!
I’ve decided that at her next nap, I’ll videotape the video monitor. Maybe if they see what I see, they’ll stop acting like I’m a lunatic? They are hinting that this is behavioral, but here’s what my poor little girl does: I lay her down in her crib, she turns her head, and closes her eyes. She’s laying there peacefully trying to go to sleep. A few minutes go by . . . she starts to turn her head from side to side . . . then her arms start to flail . . . then she starts fussing, which escalates into crying . . . it’s not like she is refusing to go to sleep. SHE TRIES!!!! But, after a few minutes, it’s like she CAN’T do it! She didn’t just suddenly decide, “Eh, screw it. I don’t feel like napping right now.”
I am so, so, so frustrated at this point.
FAX FAX FAX the dr
dont wait for a call…
keep it short & sweet
stick to the facts (no feelings and no rambling emotions)
state current meds, doses, symptoms
make request- flat out- short & sweet
THANK AGAIN
follow up by calling office to say fax was sent
call again later to discuss requests in fax, ie: have you called in the increased prescription yet? or: have you written the prescription for the compound how I requested? THANK YOU
compounding (from lori):https://www.infantreflux.org/forum/forum_posts.asp?TID=7855&TPN=1
Bensmama wrote: Hey, sorry to hear about this… I hope the Zegerid eventually solves the problem, but just wanted ot mention that until you get the Zegerid, the solutabs have to be given on an empty stomach at least 30 minutes before a meal. The compound (and Zegerid, for that matter) don’t have to be timed, but the solutabs do. Maybe that’s why they aren’t working properly for you.
I wish the answer were that easy. We’ve been diligent about timing the solutabs. We wait at least 30 minutes before feeding her.
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