Infantreflux.org | Could this be MSPI after all this time???

This topic has 35 replies, 1 voice, and was last updated 16 years, 6 months ago by Anonymous.

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February 20, 2008 at 7:00 pm #48427

Anonymous
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UGH! I have been silent on the message boards because Amelia had been doing great! After a setback in early November, we added Axid (2 CC’s /day) in the evening and began giving her the full dose (15 mg/day) of Prevacid in the morning. Over the last week and a half or so, she’s been vomiting every day once a day (it smells pretty bad). She is old enough now that when she refluxes, it typically doesn’t come out I just hear the gulp and then the throat-clearing noise. The reflux episodes have increased as well. Today she vomited 3 times! She doesn’t have a fever, and is otherwise fine. I took her to her Pediatric Gastro today. I am not thrilled with his advice. He wants me to give her smaller meals more frequently and have her be less active after a meal (she’s 14 months old, yeah right!). If the symptoms don’t improve, he wants me to take her off of dairy… she LOVES cheese! Her stools are normal, so I don’t know what to think. Any advice or if you have a similar story, I’d love to hear back! Thanks!

February 20, 2008 at 8:25 pm #48431

Anonymous
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Even though she isn’t showing any signs she may really have a stomach bug and lets just hope that is what it is. Other wise she may just be having a flare. I would think if she has been doing dairy for so long that it is something else, teething, stomach bug or maybe a reaction to a new food? Have you introduced anything new recently? I am just guessing. Good Luck.

February 20, 2008 at 8:35 pm #48432

Anonymous
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Thanks, Beth! I really don’t think it’s a stomach bug, but would rather have that than MSPI! I have been giving her a good bit of yogurt for breakfast. She usually throws up about an hour after breakfast, although a couple of times this week she threw up after I breastfed her in the morning (I still breastfeed twice/day). I do eat dairy. I am disappointed that she hasn’t grown out of this! I think I will start with removing the yogurt and see what happens. I really don’t want to remove all dairy, but if it’s necessary I will. She does have a rash on her face that she has had for months. The peds office just said to put some Aquphor on it. I am now thinking it’s due to a food allergy! BTW, Cooper is so cute! I need to get Amelia’s pic on here…

February 20, 2008 at 9:00 pm #48436

Anonymous
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ugh! I hate this for you… the rash and vomiting an hour after eating the dairy does sound pretty suspicious to me. Have you noticed if the increased refluxing coincided with the introduction to the dairy?

I know when I started trialing with Ben, he was able to eat a small amount of yogurt, but I still had to watch how much I was ingesting myself. I know.. WEIRD. . it also took him several months before he could handle cheese, and I’m still too chicken to actually trial straight milk. I need to though. At this rate my boobs are going to sag down to my waist!!!!

On the other hand, Ben spit up a bit today for the first time in AGES, but he is cutting two teeth, one of them a molar, so teething really can cause a reflux flare. Could she be cutting any teeth??

Bensmama2008-02-20 21:03:52

February 20, 2008 at 9:16 pm #48438

Anonymous
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Thanks, Naomi! I am now wondering if Amelia has had a food allergy/intolerence all this time! UGH! She is drinking milk, eating cheese, cottage cheese, and has been eating yogurt. I started the yogurt and milk in January, but the rash has been around longer than that. I am not sure if the rash coincided with giving her cheese or not. Oh, that would be awful! She gets so excited when I get the package of cheese out of the refrigerator!!!!! I will start with the yogurt first.

Amelia is cutting teeth, so that is definitely not helping. I am also going to watch what I eat and see if it affects her.

Thanks again!

February 21, 2008 at 6:44 am #48444

Anonymous
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Mary,

Now that you mention the rash on her face and the vomting after the dairy, they I think that might mean it is an intolerance. I would start cutting out her dairy sources one at a time to see if maybe just one of them is bothering her. Good Luck.

February 21, 2008 at 7:13 am #48446

Anonymous
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Thanks, Beth! I am going to start with the yogurt since that was the latest dairy addition and the vomiting just started. The rash has been around for a while, though . So, I think you’re right that it may be an intolerance. I don’t think it’s severe, which is good.

February 21, 2008 at 9:33 am #48452

Anonymous
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Unfortunately, skin rashes and eczema are common symptoms of milk allergy/intolerance. From what I’ve recently read, the 2 most common food culprits in causing skin rashes are milk and egg (whites in particular).

I hope the vomiting stops soon! And hopefully you find the cause of the rash.

My son (nearly 3 years old) is completely milk free. At first I thought it was going to be an overwhelming undertaking to change to milk and butter alternatives, and change the way I bake, etc. but it has been surprisingly easy once you get the hang of it. If you do eventually have to go down this road, let me know and I can give you lots of tips!

February 21, 2008 at 9:35 am #48453

Anonymous
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Thanks, Sheri! What does Benjamin drink? And what butter alternatives do you use?

February 21, 2008 at 9:53 am #48454

Anonymous
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There are lots of good milk alternatives. Ben is drinking Vance’s DariFree which is a potato based beverage. It tastes pretty good and is fortified with calcium, vitamin D, etc.

It is likely best to avoid soy milk as many (but not all) little ones who react to milk also react to soy. There are lots of good rice milks that are easy to find, but unfortunately Ben is allergic to rice too. Rice Dream, Whole Foods, Pacific and Natur-a are all good brands of rice milk. (However, if someone is avoiding gluten as well, they shouldn’t use the Rice Dream) I know a lot of parents who use Living Harvest hemp milk because it has more fat and protein content than a potato or rice based milk alternative, and it is also calcium and vitamin D fortified. (Unfortunately for us it contains brown rice syrup, or else that would be what I would have Ben on) I would avoid Almond milk for now since your daughter is still quite young and it is likely best to avoid nut products until the age of 2 or 3, but I’ve heard it tastes great.

A really good butter alternative for baking with is refined coconut oil. It is a white solid (at room temp) and relatively tasteless, but behaves much like butter and margarine when used in baking. You use just a little less of it in a recipe. For example, if a recipe calls for 1 cup of butter you would use a “scant” cup – closer to about 7/8 of a cup of coconut oil. I know others who use Spectrum brand palm oil shortening as well, but I haven’t been able to find it around here.

For soft margarine, I use President’s Choice Celeb lactose free margarine – it is completely dairy and casein free, but you might not be able to find that in the US. I know many who use Fleischmann’s Unsalted Spread as it is dairy free. Also around the time of passover (March-April) some stores will carry “kosher for passover” margarine which is milk and soy free. I think the brand is Mother’s, but I will be on the lookout for that soon!

Cheese is tricky, as many soy and rice cheeses have casein added to them (I know – why would they do that!). You would have to read labels there. We don’t do cheese unfortunately, since Ben can’t tolerate either soy or rice.

Hope that helps!

MFPIx22008-02-21 09:55:41

February 21, 2008 at 10:04 am #48455

Anonymous
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I forgot to mention checking ingredients in all of your non-dairy foods for milk products. Many commercial baked goods (breads, crackers, cereals, cookies, etc.) and soups, sauces, mixes, etc. have milk products in them. If you do go milk free, it is best to read the labels on everything.

February 21, 2008 at 10:52 am #48458

Anonymous
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Thanks, Sheri! That is a BIG help!!! I eliminated the yogurt for Amelia’s breakfast this morning… so far so good! I am not going to give her milk today, but may give her some cheese, we’ll see. I was eating yogurt too, so it was a double whammy for her (I am breastfeeding twice/day)!

I am trying to go back and figure out if it’s been a milk/soy protein allergy/intolerance this whole time or if it was reflux or both. I may never know, but to think I could have saved her all those months of suffering with diet changes or putting her on milk/soy-free formula really upsets me! I’m also thinking that her docs should have recommended that I try it. Well, we can’t go back, so I will do what I can for her now!

February 21, 2008 at 8:07 pm #48480

Anonymous
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Good luck, Mary! I know how frustrating this guessing game can be. Hopefully, she isn’t truly allergic and will be fine with just a simple reduction of the dairy products.

February 21, 2008 at 8:40 pm #48485

Anonymous
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Thank you Naomi! Are you still breastfeeding? Did you have to cut back on dairy while you breastfed?

February 21, 2008 at 10:23 pm #48487

Anonymous
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just wanted to add that we give shane the smart balance FLAX oil kind of butter.. no dairy or soy.

hope you see some improvement! shane too has excema and a dairy intolerance.. i think a lot of our refluxers are intolerant to dairy for some reason.. or the dairy is why they reflux.. i havnt figured out which came first 😉
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