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October 24, 2007 at 12:14 am #44643
Anonymous
InactiveThe doctor took my daughter off of Nutramigen Tuesday night. She switched her to Similac Sensitive RS. I am afraid she has MSPI so I was leary about making the switch (my doc does not think she has MSPI).
She took one bottle fine but on her second feeding we did not make through one ounce before she sounded like she was having severe breathing problems.She had been refluxing on Nutramegin. So now changing her diaper today she had a little mucousy, bloody stool. Could have that been from the one and half bottle of RS since it is milk based?Could this be from the milk based formula or her developing a problem with Nutramegin? It seems eveyday that the reflux is worsening with the heavy spit-up, choking and gasping for breath. She is now getting to be choked at every feeding.If she really has MSPI could she be starting to have a reaction?October 24, 2007 at 6:43 am #44646Inactivethat is a good question. We have mucousy poops until we started solids with Nutramigen but that was our only symptom other than the spitting and when i told my ped GI he was okay with me keeping him on Nutramigen as I was comfortable with it and didn’t want to go on neocate/elecare. I would def stay on Nutramigen. We were told to switch at 6 months and I still haven’t done it, I am planning on switching at around 9 months to Gentelease, but I may change my mind when we get there.
October 24, 2007 at 9:47 am #44651InactiveMight I ask why you didn’t want to switch to Neocate?
HeathJS282007-10-24 10:54:57
October 24, 2007 at 11:24 am #44652Inactivebloody stool would also concern me. I would say that even if your baby is MSPI, some can handle the Nutramigen and some can’t. Both our boys were still able to detect the broken down proteins and could not handle the nutramigen. Both ended up on Neocate and then we had NEW babies within two weeks. Now, Dylan, our older one, can still only handle dairy in small doses and still drinks rice milk, but Carter, our younger one, can eat anything and everything under the sun happily and has no more GI issues at all.
If your insurance company will pay for the Neocate, then they may need to see the progression that you have tried MULTIPLE other alternatives and used Neocate as a last resort in order to justify covering it. For Dylan this was the case. For Carter, I didn’t mess around with the other ones, and just paid for the Neocate out of pocket. It is extremely expensive. Looking back, I maybe should have taken the time to try other formulas with Carter, but was so scared because of how hard it was with Dylan, I was just doing what I thought was right.Hang in there. I guess what I am saying is Neocate may be the right answer, but hang in there with your doc and just ask what the plan is, so that you know if she is willing to go to Neocate if this formula doesn’t work.Ann MarieOctober 24, 2007 at 2:03 pm #44656InactiveI talked about it with my GI and since our only intolerance symptom was the mucousy poop which some babies have even without intolerances then we could stick with Nutramigen. If there had been any other issues, I would have definately switched to Neocate or Elecare, but luckily we didn’t have to.
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