Home › Forums › Infant Reflux Support › Boo-Hoo! I need YOU! › Ugh…double whammy…
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June 8, 2007 at 6:53 pm #36021AnonymousInactive
Not only has today been especially spitty, yuck, but his meds aren’t working as well again either so he’s been especially crabby & not napping well. His 2 month appt is on Wed. so it seems silly to try and get him in before then.
And to add injury to insult, our insurance is refusing to cover the cost of any reflux wedge for his crib. They said it doesn’t qualify as a durable medical device.
He’s currently napping on me (and I’m typing one handed) as he hasn’t napped good at all today, and I don’t want to wake him up by trying to move him to his swing or bouncy seat.
strollerfreak 2007-6-8 18:54:50 June 8, 2007 at 7:13 pm #36025AnonymousInactiveFeeling your pain here! We’re kinda going through the same thing here, Owen is refluxing, teething, etc, etc. I’m not sure what the main prob, is if there is one!
Insurance makes me furious, so you have my sympathy there! They won’t cover our neocate, even a small portion of it so I pay out of pocket. But they will however pay for the hospital stays, NG tube, and the tons of medical tests we’ve had done the last 4 mo. that wouldn’t have been necessary had we had the right formula! I throw my hands up!!
I work in a hospital, and I know about that equiptment issue. A lot of our elderly pts have to pay for things that they really need b/c insurance calls it a luxury item! HA! Apparently good sleep for you and your child is also a luxury!!
You seem to be so carefree and a great mommy! Hope things turn around for you soon!
June 8, 2007 at 8:07 pm #36035AnonymousInactiveHi Mel. Sorry things are not going so well today. My guess is that he’s probably outgrown his Zantac dose. Zantac is a very weight sensitive drug and babies quickly outgrow their dose, and many times they plateau on it and can no longer get any relief. This is what happened to my first reflux baby. Poor thing!
Are you open to trying a PPI medication? Most of us have had much better success with PPI’s over Zantac and other H2 Blockers.
Sorry about insurance not covering the wedge. I despise insurance companies. This is totally unrelated but our insurance is doubling our co-pay, raising our deductibles, and dropping coverage down from 80% – 70%!
Anyway, have you looked into the tucker sling? You can use it without a wedge because you can raise the crib mattress yourself. Maybe that would be more affordable.
Good luck. I hope things are better soon.
ndrose2007-6-8 20:9:51
June 8, 2007 at 8:25 pm #36041AnonymousInactiveSo sorry to hear about this Mel. When it rains, it pours, eh?
I second Christine’s suggestions both about the PPI and the Tucker sling. Also, if you are really desperate… we propped Ben’s bed up on books. To keep him from sliding down the bed, we rolled up a towel and duct taped it to the mattress in a U formation. Then we put the sheet on top of that. That way if he slides, he should only go so far before his bum his the U and stops. Maybe that would work until you figure out something else??
June 8, 2007 at 8:35 pm #36042hellbenntKeymasterJune 8, 2007 at 8:59 pm #36051AnonymousInactiveNaomi, have you ever seen the book, 1001 and one ways to use Duct Tape? I bet even they didn’t think of your ingenious idea!
June 8, 2007 at 9:04 pm #36052AnonymousInactivendrose wrote:
Hi Mel. Sorry things are not going so well today. My guess is that he’s probably outgrown his Zantac dose. Zantac is a very weight sensitive drug and babies quickly outgrow their dose, and many times they plateau on it and can no longer get any relief. This is what happened to my first reflux baby. Poor thing!
Yup, that’s what I figured as well. I weighed him this morning and he’s up almost 2lbs since the last time they changed his dosage, so I’m guessing that’s what the problem is.
ndrose wrote:
Are you open to trying a PPI medication? Most of us have had much better success with PPI’s over Zantac and other H2 Blockers.
Yup, I’m open to anything to help him feel better. It makes me feel so helpless to see him as happy as he was this morning (he actually laughed for the first time!) and then 45 minutes later be crying almost to the point of being unconsolable, and “swimming” because of his discomfort. I’m just not sure if his Ped will be comfortable with trying a PPI since he has been responding to the Zantac, just his weight gain is on the typical newborn upswing and so it obviously needs to be tweaked quite frequently.
ndrose wrote:
Sorry about insurance not covering the wedge. I despise insurance companies. This is totally unrelated but our insurance is doubling our co-pay, raising our deductibles, and dropping coverage down from 80% – 70%!
Anyway, have you looked into the tucker sling? You can use it without a wedge because you can raise the crib mattress yourself. Maybe that would be more affordable.
Good luck. I hope things are better soon.
I hate insurance too…but I’m much happier with this company (Humana) than with BCBS…I’ve had nothing but headaches with them in the past. At least with Humana, I know that I will at least end up with an answer even if *I* don’t agree with it. BCBS refused to pay for a anesthesia bill for a surgery I had in the past, I sent it back so many times to get it “coded correctly” and finally the anesthesia place did code it correctly, and the insurance paid it, but by that point the insurance had already sent it to collections. The collections agency wouldn’t do anything about it without written confirmation from the insurance company stating that they wanted the account taken out of collections…even the letter I had from BCBS, addressed to me, on BCBS letterhead stating that the bill had been paid in full, wasn’t good enough for them. So DH & I swore that we’d never use BCBS again; and we haven’t, and won’t.
I have looked into the tucker sling…I actually spoke with Terri (sp?) the owner and she was so surprised that my insurance would deny coverage on the sling/wedge combo that she said she’d sell me the set at dealer price, which saves me $40. DH & I are discussing it, and trying one more thing this weekend before we order one on Monday. At that point it’s almost as cheap as just the sling itself, and I don’t have to worry about making sure I have a crib/mattress to use it if/when we go on vacation & stuff.
June 8, 2007 at 10:20 pm #36059AnonymousInactivehey mel.. you can have my tucker sling! i feel horrible.. it is just sitting around! if you really want one.. i’d be happy to give you mine.
the only thing is that it didnt work for us… but that doesnt mean it wouldnt work for you.
let me know!
June 9, 2007 at 12:07 am #36075AnonymousInactiveMel, I would up the Zantac and see how it goes. It did seem to work for Alana for awhile.
But then even when I upped it it when she was around 5-6 kilos it didn’t help. So its quite possible you will need to go to the PPI. The problem is that if your Dr wants to have evidence that your bub needs a PPI then that is quite a few days of misery for you family. Maybe ask him to humour you???
June 9, 2007 at 9:14 am #36081AnonymousInactiveI hate insurance too, ours is horrible, I don’t even try to get things covered b/c I already know that they will say no… Another solution for the wedge would be to roll up a blanket and place it under to matterss and see if that works, we did it for awhile until I got a wedge from Target, I think it was only like $20 and it has been working really well for us. I can’t remember what is it called but it works pretty good and wasn’t too expensive. I would go ahead and increase his dose of Zantac depending on what you are on. Cooper started on .5ml 2x/day and within 2 weeks we were up to .7ml 2x/day and then changed to prevacid, upping .2 ml shouldn’t be too much and might do the trick until you can get to the doctor. Good Luck.
June 9, 2007 at 10:06 am #36084AnonymousInactiveMel,
That’s what we have; BCBS. We don’t have any other options though excep HMO which I would never have.
About the PPI, some of us have better luck getting PPI’s (at a good dose) for our babies from our family docs, They seem to have more experience with reflux and PPI’s since they see so many adults with reflux and they are often more sypmathetic about the pain reflux causes, probably because their adult patients can tell them how much it hurts. Myles’ doc is a family doc and very sympathetic.
Good luck, and please keep us posted.
June 9, 2007 at 3:03 pm #36107AnonymousInactiveOh no, Mel. Sorry to hear that his zantac isn’t working well. If upping the dose doesn’t work, then I’d go for a PPI (or you can go for a PPI anyways). We were able to elevate Hailey’s crib mattress (not that she slept in her crib, but that’s another story) by putting one side on the highest rung and the other on the lowest. We also tried putting a pillow under one side which worked well too. I’ve heard of insurance companies paying for the pediacraft wedges, but the tucker ones seem to be more popular. They have a website, I don’t know what it is (maybe http://www.pediacraft.com ?). Good luck. I’d see if getting a letter from your ped that your son needs the wedge/sling will be enough for the company to pay for the tucker one. Hope that things turn around soon.
June 9, 2007 at 4:37 pm #36122AnonymousInactiveWell, after DH had to get up with Reiker 3x’s last night because he wanted to actually at least try having him sleep in his crib on his back, he told me to just buy a Tucker wedge/sling. We’ll fight with our insurance to see if they will cover it afterwards. So I’ll be ordering one on Monday. I did look into the Pedicraft wedge combo as well, but their sales rep never returned my phone call yesterday. Oh well, guess they don’t want my business.
I’ve gotten another idea from a pediatric RN for positioning him on his mattress until it gets here though. She said to take a twin size blanket, and roll/fold it and then shape it into a U. Put the U into a standard size pillowcase with the open end of it at the open end of the pillowcase so it makes it kind of like a nest. She said that unless he’s extremely wiggly, he should stay put on it, and that that’s what they do in the hospital cribs where she works.
I can’t really put anything under his crib mattress though, as the support for the mattress isn’t a solid piece of wood or anything, it’s several round metal bars that run the width of the crib. I mean I could elevate his mattress if I put something solid (like cardboard) down first and then phone books or whatnot on top of it, but I don’t think that I could put anything “squishy” under there and get it to work.
He’s on .8mL 3x’s a day already, and this morning I was a “bad” mom and gave him 1mL just so that the sweetie could get some comfort for a little while at least. He’s been comfortable all day and not freaking out like he had been…so that’s a good thing…but I don’t want to do it too long without knowing dosing, because I’m not a dr, and I don’t want to OD him either, KWIM?
strollerfreak2007-6-9 16:38:35
June 10, 2007 at 3:02 pm #36190AnonymousInactivePoor little guy! I hope that the wedge/sling helps. Did the higher dose help him at all? Good luck.
June 10, 2007 at 4:07 pm #36196AnonymousInactivepoor baby, i remember those screaming, painful days pretty well. One thing about the pedicraft versus the tucker sling (a mom pedicraft user told me when i was looking to buy one, so iam not 100% sure) is you can only position the child on the back on it, but the tucker sling you can do both positions (back and tummy). i have the tucker sling and we use it both way. I hope it helps him sleep better.
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